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Showing results for tags 'Patient engagement'.
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Content ArticleDr S. Vincent Rajkumar is a Professor of Medicine at the Mayo Clinic in Rochester, Minnesota. In this account, originally published via a Twitter thread, Dr Rajkumar remembers how the insight of Mike Katz, a patient with myeloma, left an incredible legacy for patient safety.
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Content Article
Patient Leadership Training Programme (InHealth Associates)
Patient Safety Learning posted an article in Leadership
Patient Leadership signals a breakthrough in healthcare that moves beyond traditional engagement and uncovers the pioneering and transformative work of patient leaders - those affected by life-changing illness, injury or disability who want to lead change in the healthcare system. Or ‘those who have been through stuff, who know stuff, who want to change stuff’. This course lays the foundation for understanding patient leadership – it is designed for both patients and non-patients to explore together different facets of this emerging social movement. It is for Patient and Carer Leaders, health professionals, managers, non-clinical staff and those from the independent, voluntary and charitable sector. And open to international attendees. 4 x weekly sessions of 2.5 hours £195 delivered by David Gilbert, InHealth Associates Director. -
Content ArticleThe human element can give us kindness and compassion; it can also give us what we don't want— mistakes and failure. Leilani Schweitzer's son died after a series of medical mistakes. In her talk she discusses the importance and possibilities of transparency in medicine, especially after preventable errors. And how truth and compassion are essential for healing.
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Content ArticleDespite decades of research, improving healthcare safety remains a global priority. Individual studies have demonstrated links between staff engagement and care quality, but until now, any relationship between engagement and patient safety outcomes has been more speculative. This systematic review and meta-analysis from Gillian et al. assessed this relationship and explored if the way these variables were defined and measured had any differential effect. Despite a limited and evolving evidence base, they cautiously conclude that increasing staff engagement could be an effective means of enhancing patient safety. Further research is needed to determine causality and clarify the nature of the staff engagement/patient safety relationship at individual and unit/workgroup levels.
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Content ArticleThis webinar is part of a series of seminars from the Yorkshire Quality and Safety Research Group. Jo Wailing, Registered Nurse, Research Fellow and Facilitator, talks about her work exploring the potential of restorative approaches to support healing following adverse clinical events. Jo draws on the lessons learned from investigations into the use of, and harm caused by, surgical mesh.
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Content ArticleThe Patients Association had not previously carried out work with patients on the topic of accredited registers, so in order to inform their response to this consultation they conducted an online survey of our members and supporters. Here are the results.
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Content ArticleHow do we know how a patient is coping with their medicines once they have left our care? How do we know that they are using their medicines safely at home? Surprisingly few medicine errors in children in the home setting are reported, yet evidence suggests that parents sometimes struggle here. We can tackle this hidden medicines safety issue by putting families’ insight at the heart of our interventions. We have to ask. And not least for our infant, children and young adult patients, and their families. Medicines use in this patient group has long been known to be challenging, and many families continue to struggle to use medicines safely at home. But a collaborative approach between healthcare professionals and families can remedy this.
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Content ArticleA recent survey of over 1,700 patient groups around the world has revealed the true toll the COVID-19 pandemic has had on patient communities, with many individuals feeling more vulnerable, confused and uncertain about the consistency and continuity of their care. Now, more than ever, the life sciences industry has a responsibility to listen to the unique and changing needs of patients. They must continue to work with patient organisations on their vital work to safeguard continued access to treatment and to understand their need for holistic support ‘beyond the pill’. Dr Berkeley Phillips, Country Medical Director of Pfizer UK, explains in this article how Pfizer continues to partner with patient organisations across a broad spectrum of conditions from cancer to rare diseases, ensuring patients feel equipped, informed and empowered despite the uncertainty.
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The Patients Association: World Patient Safety Day 2021
Patient Safety Learning posted an article in Maternity
While childbirth in the UK is generally a safe event, progress to improve safety seems to have stalled, and how safe mums and babies are depends on where you are and who you are, writes the Patients Association in this article for World Patient Safety Day. The Patients Association firmly believe that involving patients in their care improves outcomes and safety. Mums-to-be developing plans with the midwives and obstetricians seems a perfect example of this. However, research shows that clinicians meaningfully partnering with patients is not mainstream practice. "It will take leadership, training and funding to make patient partnership in maternity care everyday practice", says the Patient Association. "This World Patient Safety Day we call on all those in a position to bring about change in how maternity care is delivered and to pledge to introduce true patient partnership." -
Content ArticleAt the age of 15, Helen Haskell's son, Lewis, died due to treatable surgical complications. Following a routine elective surgery, he developed signs of sepsis, a life-threatening response to infection. Like most patients in postsurgical distress, Lewis deteriorated slowly. As he became weaker and weaker over the course of many hours, his bedside caregivers downplayed the significance of his mounting pain and unstable vital signs. Finally, his blood pressure became undetectable and he went into cardiac arrest, from which he could not be saved. His death, like thousands of others, was preventable. In this article, Helen discusses the erosion of patient safety reporting at the United States' CMS. Each year, CMS proposes changes to quality reporting programmes. Longstanding evidence-based patient safety measures, especially those used to detect harm to patients, are gradually being removed. These measures are largely extrapolated from hospital records and do not add to the workload of hospital staff. But they are embarrassing to hospitals, and hospital representatives lobby against them. The trend of downgrading patient safety is concerning.
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Content ArticleIn this blog Barbara Melville-Jóhannesson, Long Covid campaigner, highlights the importance of including lived-experience in research and service-design. She lays out six actions for organisations to help ensure that involvement is not just a tick-box exercise.
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Content ArticleHealthcare organisations strive to improve patient care experiences. One way is to use one-on-one provider counselling (shadow coaching) to identify and target modifiable provider behaviours. Quigley et al. examined whether shadow coaching improves patient experience across 44 primary care practices in a large urban US health centre. They found that shadow coaching improved providers' overall performance and communication immediately after being coached. However, these gains disappeared after 2.5 years. Regularly planned shadow coaching "booster" sessions might maintain or even increase the improvement gained in patient experience scores, but research examining additional coaching and optimal implementation is needed.
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Content ArticleAs part of a Patient Safety in Surgery Webinar Series held by Massachusetts General Hospital’s COMPASS (Center for Outcomes and Patient Safety in Surgery), Vivian Lee, president of Verily Health Platforms, shares strategies for leading quality improvement and change to work toward a healthcare system that provides better care, more efficiently and at a lower cost.
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Patients For Patient Safety US
Patient Safety Learning posted an article in International patient safety
Patients for Patient Safety US (PFPS US) is a network of people and organisations aligned with the World Health Organization (WHO) and focused on making healthcare safe in the United States. It is led by people who have experienced medical error as a patient or in their families, and is committed to implementing the World Health Organization Global Patient Safety Action Plan in the USA. Read their 'Stories That Impacted Change' -
Content ArticleIn this short film, Susanna Stanford and Sarah Seddon share a positive message about managing adverse events in healthcare. Drawing together the patient and clinician perspectives, they discuss how clinicians and other healthcare professionals can prepare for the inevitability of things going wrong, and how both patients and clinicians need the same things in the aftermath of adverse events.
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Content ArticleIn this short film, Susanna Stanford and Sarah Seddon share a positive message about managing adverse events in healthcare. Drawing together the patient and clinician perspectives, they discuss how clinicians and other healthcare professionals can prepare for the inevitability of things going wrong, and how both patients and clinicians need the same things in the aftermath of adverse events.
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Content Article
AHRQ: Toolkit for engaging patients to improve diagnostic safety
Mark Hughes posted an article in Diagnostic error
Research suggests that a key factor contributing to diagnostic errors is the breakdown of communication between patients and healthcare professionals. The Agency for Healthcare Research and Quality (AHRQ) in the United States has developed this toolkit to promote enhanced communication and information sharing between patients and healthcare professionals. It is designed to help patients, families, and health professionals work together as partners to improve diagnostic safety. -
Content Article
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One in 20 patients who undergo a surgical procedure contract an infection afterwards, in the part of the body where the surgery took place. 60% of these are preventable. We’re looking for patients to help raise awareness of the damaging impact these infections can have on people, and guide improvements. Have you ever contracted an infection after surgery? How did it affect you? Would you be happy to share your experience? -
Content ArticleThis is the response submitted by the Patients Association to the Department of Health and Social Care as part of its consultation seeking views on the proposed legislative details on the appointment and operation of the Patient Safety Commissioner for England. In this they argue for arrangements for the Commissioner's appointment and operation to guarantee their independence as securely as possible, and express disappointment that the role will not cover all aspects of patient safety.
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Content Article
In this blog Patient Safety Learning outlines the key points included in its response to the consultation on establishing a Patient Safety Commissioner for England. This sets out their feedback to this consultation and describes the powers and resources this role will require if it is to effectively influence change and improve patient safety. -
Content ArticleCo-producing a research project is an approach in which researchers, practitioners and the public work together, sharing power and responsibility from the start to the end of the project, including the generation of knowledge. This guidance, from the National Institute for Health Research, is a first step in explaining what is meant by co-producing a research project. It sets out the key principles and features of co-producing a research project and suggests ways to realise them. It also outlines some of the key challenges that will need addressing, in further work, to aid those intending to take the co-producing research route. Read the guidance in full. Related reading: Patient engagement resources Listening to the patient saved many lives
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Content ArticleHealthcare is becoming both increasingly data driven and automated. Authors of this blog, published by the London School of Economics, found that opportunities for patients to influence and inform these future technologies are often lacking, which in turn may heighten disillusionment and lack of trust in them. As such, they propose four priorities for new data driven technologies to ensure they are ethical, effective and equitable for diverse patient groups: Public voice Individual’s diversity Participatory co-design Open knowledge development and exchange. Read the blog in full via the link below.
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Content Article
The Perfect Patient Information Journey (PPIJ) is a 7-step process to embed high-quality patient information along care pathways, helping people get the right information at the right time. This video from the Patient Information Forum (PIF), explains why this is so important and how it can improve patient outcomes and safety. -
Content ArticleThis page from Pulse Today provides a list of resources concerning Covid-19 vaccination for patients in the UK. It includes information about where to find providers of private covid tests and how to check vaccination status. It is sourced from Public Health England, the Royal College of Obstetricians and Gynaecologists, the British Fertility Society and the Association of Reproductive and Clinical Scientists.
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Content Article
What I never consented to (24 June 2021)
Mark Hughes posted an article in Consent issues
In this blog in the BMJ, Andrés J Lessing considers how consent forms and conversations about care and treatment often do not account for the possibility of incidental findings. The author suggests that incidental findings can be very stressful for patients and that as part of the pre-treatment consent process healthcare professionals could provide a reminder about the likelihood of incidental findings and what might be done to address them.
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