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Found 561 results
  1. News Article
    Lawmakers say minorities may disproportionately suffer from long-term symptoms of coronavirus infection. A pair of Democratic House members asked the Centers for Disease Control and Prevention (CDC) in a letter Tuesday to release data on the number of Americans who suffer lingering symptoms of coronavirus infection, including breakdowns along race, gender and age. The National Institutes of Health and the CDC have launched detailed studies of Long Covid, but those examinations are expected to take years. In the meantime, policymakers lack good information about how many people in the United States and worldwide suffer from long-term, debilitating effects of the disease. “People suffering from Long Covid have been ignored and overlooked for far too long. Collecting and publishing robust, disaggregated demographic data will help us better understand this illness and ensure that we are targeting lifesaving resources to those who need them most,” said Rep. Ayanna Pressley, who co-signed the letter Tuesday to the CDC.“We’re calling on the CDC to publicly report this data because that which gets measured gets done — and we can’t have an equitable recovery from this pandemic without it.” Read full story Source: The Washington Post, 25 January 2022
  2. News Article
    A major IT incident at an acute trust is disrupting treatment for eye patients after a significant data loss, it has emerged. Sandwell and West Birmingham Hospitals Trust chief executive Richard Beeken revealed to his trust’s board that a data loss incident in December had “impacted on staff and patient care” after disrupting 20 systems across the organisation. Recovery of the full data set for patients receiving treatment at the Birmingham and Midland Eye Centre is still under way, and some have had operations postponed. Despite the incident, ophthalmologists are continuing to see the majority of patients, Mr Beeken said, telling HSJ: “[Numbers affected] are being kept to a minimum through the extraordinary efforts of the clinical team who are putting in extra hours to reassess each patient’s needs.” Scanning continues in the majority of cases and the trust is pressing on with recovery work for all historic images and patient contact details, though leaders believe the chances of 100% data recovery are “still slim”. No patient data was extracted during the incident and the information commissioner was made aware. Read full story (paywalled) Source: HSJ, 10 January 2022
  3. News Article
    Thousands of patients a year are dying because of overcrowding in A&E units in Britain, and more fatalities will follow this winter, emergency care doctors claim. An estimated 4,519 people in England died in 2020-21 as a direct result of people receiving less than ideal care while delayed in A&E waiting to start treatment in the hospital. “To say this figure is shocking is an understatement. Quite simply, crowding kills,” said Dr Adrian Boyle, a vice-president of the Royal College of Emergency Medicine (RCEM). There have also been 709 deaths in Wales and 303 in Scotland so far this year for the same reason, according to a report by the college. Another 566 excess deaths caused by overcrowding occurred in Northern Ireland in 2020-21. The 4,519 in England “may be an underestimate”, it adds. The four figures taken together mean the college has identified at least 6,097 deaths across the four home nations that it believes occurred because overcrowding hampered the person’s treatment. “There’s a lot of human misery behind these figures. It’s uncomfortable and unbearable that people are being put through this. It’s impossible not to feel upset and angry about this,” Boyle said. Read full story Source: The Guardian, 18 November 2021
  4. News Article
    Police forces will be able to “strong-arm” NHS bodies into handing over confidential patient data under planned laws that have sparked fury from doctors’ groups and the UK’s medical watchdog. Ministers are planning new powers for police forces that would “set aside” the existing duty of confidentiality that applies to patient data held by the NHS and will instead require NHS organisations to hand over data police say they need to prevent serious violence. Last week, England’s national data guardian, Dr Nicola Byrne, told The Independent she had serious concerns about the impact of the legislation going through parliament, and warned that the case for introducing the sweeping powers had not been made. Now the UK’s medical watchdog, the General Medical Council (GMC), has also criticised the new law, proposals for which are contained in the Police, Crime and Sentencing Bill, warning it fails to protect patients’ sensitive information and could disproportionately hit some groups and worsen inequalities. Read full story Source: The Independent, 18 October 2021
  5. News Article
    A drug used to treat rheumatoid arthritis appears to help patients who are admitted to intensive care with the most severe coronavirus infections, researchers say. Tocilizumab, a medicine that dampens down inflammation, improved outcomes for critically ill patients, according to early results from an international trial investigating whether the drug and others like it boost survival rates and reduce the amount of time patients spend in intensive care. The findings have not been peer-reviewed or published in a journal, but if confirmed by more trial data, the drug will be on track to become only the second effective therapy for the sickest Covid patients, following positive results for the steroid dexamethasone earlier this year. “We think these are very exciting results, we are encouraged by them,” said Prof Anthony Gordon, of Imperial College London, the UK’s chief investigator on the REMAP-CAP trial. “It could become the standard of care once we have all the data reviewed by guidelines groups, and also drug regulators.” Read full story Source: The Guardian, 20 November 2020
  6. News Article
    An official review carried out for the health secretary, leaked to HSJ, reveals plans to bolster the law to require greater sharing of patient data, saying it would help improve safety for those wrongly prescribed drugs. A draft of the report on overprescribing, carried out for Matt Hancock by NHS England, says a major problem is that clinicians in different parts of the system can’t see what’s been prescribed and dispensed elsewhere. It says “wider access” should be given, which would also ensure “many eyes” are looking at the data to detect patterns or problems. This should include making it a requirement that prescribing apps make their data openly available, according to the report by chief pharmaceutical officer Keith Ridge. Read full story (paywalled) Source: HSJ, 16 November 2020
  7. News Article
    Pfizer and BioNTech have said that their coronavirus vaccine may be more than 90% effective, after the two pharmaceutical firms released interim data from their ongoing large-scale trial. Preliminary analysis, conducted by an independent data monitoring board, looked at 94 infections recorded so far in the vaccine’s phase 3 study, which has enrolled nearly 44,000 people in the US and five other countries. Of those participants who were infected with COVID-19, it is currently unclear how many had received the vaccine versus those who had been given a placebo. The current efficacy rate, which is much better than most experts expected, implies that no more than eight volunteers will have been inoculated. The data have yet to be peer-reviewed, and Pfizer said the initial protection rate might change by the time the study ends. The longevity of the immune response provoked by the mRNA-based vaccine also remains unknown. However, the findings are the most promising indication to date that a vaccine will be effective in preventing disease among infected individuals, handing humanity a crucial tool in tackling the pandemic. Pfizer and its German partner BioTech will continue with the phase 3 trial until 164 infections have been reported among volunteers - a figure that will give regulatory authorities a clearer idea of the vaccine’s efficacy. This number is expected to be reached by early December in light of the rising US infection rates, Pfizer said. The two companies said they have so far found no serious safety concerns and expect to seek US emergency use authorisation later this month. Read full story Source: The Independent, 9 November 2020
  8. News Article
    The number of people suffering with long Covid should be published routinely, as happens with those infected with or hospitalised with coronavirus, MPs and peers are urging Boris Johnson. The cross-party group of parliamentarians want the prime minister to ensure that the “untold human suffering” that the condition involves helps shape future government policy towards the pandemic. Thirty-two MPs and 33 peers have signed a letter urging Johnson to give greater priority to the potential harm posed by long Covid following the Office for National Statistics’ finding last week that an estimated 1.1m people are suffering its effects – far more than previously thought. The signatories come from eight parties and include the Tory MP Dr Dan Poulter, a former health minister; Lord Darzi, the surgeon and ex-health minister; and the SNP MP Dr Philippa Whitford, who is an NHS breast surgeon. In the letter, coordinated by the all-party parliamentary group on coronavirus, they say: “Cases, hospitalisations and deaths are not the only measure of this pandemic. We urge the government to also count the number of people left with long Covid, many of them whose lives have been devastated by this pandemic. Read full story Source: The Guardian, 9 April 2021
  9. News Article
    Miscarriage may be associated with an increased risk of early death, researchers have said. The BMJ published a study suggesting that this risk is particularly acute for those who have experienced repeated miscarriages, especially ones that occurred early on in a woman’s life. US-based researchers said that women who had experienced a miscarriage were 19% more likely to die prematurely. They pointed out that a miscarriage “could be an early marker of future health risk in women.” The authors of the paper hoped to see if there was any link between miscarriage and a risk of death before the age of 70. Data used was taken from 101,681 women as part of the Nurses’ Health Study in the US. This was made up of female nurses aged between 25 and 42 years. The researchers followed the women for 24 years and said that 2,936 premature deaths were recorded, this included 1,346 from cancer and 269 from cardiovascular disease. It appeared that death rates from all causes were comparable both for women with and without a history of miscarriage. However, rates were higher for women who had experienced three or more miscarriages as well as for women who had their first miscarriage under the age of 24. The study found that the association between miscarriage, or “spontaneous abortion,” and premature death was strongest for deaths from cardiovascular disease. Read full story Source: The Independent, 25 March 2021
  10. News Article
    For the first time, a new linked health data resource covering 54.4 million people – over 96% of the English population – is now available for researchers from across the UK to collaborate in NHS Digital’s secure research environment. This resource will enable vital research to take place into COVID-19 and cardiovascular disease, with the aim of improving treatments and care for patients. This work has been led by the CVD-COVID-UK consortium in partnership with NHS Digital. The new resource links health data from GP records, hospital data, death records, COVID-19 laboratory test data and data on medications dispensed from pharmacies, and is accessible to CVD-COVID-UK consortium researchers in NHS Digital’s Trusted Research Environment (TRE) Service for England. The CVD-COVID-UK consortium is a collaborative group of more than 130 members across 40 institutions working to understand the relationship between COVID-19 and cardiovascular diseases. The consortium is managed by the British Heart Foundation (BHF) Data Science Centre, led by Health Data Research UK. The ability to link different types of health data from almost the entire population of England provides a more complete and accurate picture of the impact of COVID-19 on patients with diseases of the heart and circulation than has been possible before now. It will also provide the data to understand whether patients with COVID-19 are more likely to go on to develop diseases of the heart and circulation, such as heart attack and stroke. Read full story Source: HDRUK, 24 February 2021
  11. News Article
    Thousands of similar errors contributing to patient deaths are being repeated by hospitals despite warnings from coroners, according to new research. An analysis of four years of official reports by coroners, issued after the conclusion of inquests into patient deaths, has revealed the impact of the NHS struggling with a lack of resources and staff. Coroners found similar mistakes across hundreds of inquests. Professor Alison Leary, chair of healthcare a workforce modelling at London South Bank University, and who led the study, told The Independent: “We are missing opportunities to prevent deaths. What we are seeing is the hard edge of underinvestment in the workforce and the under resourcing of the service. “Each of these coroner’s reports are someone’s sorrow. From talking to families, they assume when one of these reports is issued, they are acted on and the system learns from it. But the system doesn’t seem to be learning and people pay for this with their life.” Read full story Source: The Independent, 3 March 2021
  12. News Article
    Scientists have warned that emerging data on Long Covid in children should not be ignored given the lack of a vaccine for this age group, but cautioned that the evidence describing these enduring symptoms in the young is so far uncertain. Recently published data from the Office for National Statistics (ONS) suggests that 13% of under 11s and about 15% of 12 to 16 year olds reported at least one symptom five weeks after a confirmed COVID-19 infection. Although children are relatively less likely to become infected, transmit the virus and be hospitalised, the key question is whether even mild or asymptomatic infection can lead to Long Covid in children, said Danny Altmann, professor of immunology at Imperial College London. “The answer is that it certainly can, and the Long Covid support groups contain a not insignificant number of children and teens,” Altmann said. Frances Simpson, a lecturer in psychology at Coventry University and co-founder of the Long Covid Kids group, said she was very worried about the emerging data on Long Covid in children. “We just think that there should be a much more cautious and curious approach to long Covid rather than a kind of a sweeping generalisation that children are OK, and that we should just let them all go back to school without any measures being put in place.” One issue, she said, is the sizeable gap between acute infection and Long Covid kicking off. Some children are initially asymptomatic or have mild symptoms but then it might be six or seven weeks before they start experiencing long Covid symptoms, which can range from standard post-viral fatigue and headaches to neuropsychiatric symptoms such as seizures, or even skin lesions." At the moment there is no consensus on the scale and impact of long Covid in adults, but emerging data is concerning. For children, the data is even more scarce. Recent reports from hospitals in Sweden and Italy have generated concern, but this data is not from national trials – they are single-centre studies – and include relatively small patient numbers, said Sir Terence Stephenson, a Nuffield professor of child health at University College London. Stephenson was awarded £1.36m last month to lead a study investigating Long Covid in 11- to 17-year-olds. “I don’t have a scientific view on what long Covid is in young people is – because frankly, we don’t know,” he said. Preliminary results are expected in three months. Read full story Source: The Guardian, 2 March 2021
  13. News Article
    The number of covid positive patients in English hospitals fell by 1,491 yesterday, by far the biggest decline recorded since the start of the pandemic. The previous record was set during the decline of the first wave, when numbers fell 1,055 on 17 April. The largest drop in the third wave before yesterday’s record was the 798 seen last Saturday. The national total of covid positive hospital patients now stands at 30,846, a drop of 9 per cent on the peak set on 18 January, but still 163 per cent of the mid-April peak. All seven English regions are now seeing a week-on-week decline in the number of their covid hospital patients for the first time. All have well established trends in falling admissions, with London and the south east seeing the running seven-day total fall by almost a third since a peak on 9 January. The east and south west have seen their admissions total decline by a fifth, while the midlands total has dropped 16 per cent in just five days and north east and Yorkshire nine in only four. Read full story (paywalled) Source: HSJ, 28 January 2021
  14. News Article
    The growth in covid positive hospital patients is rapidly slowing in every English region and appears to have stopped in the south east. The weekly increase in covid inpatients across England fell to 8% yesterday, the first time it had dropped to single figures since 12 December. A week earlier, on 10 January, the growth rate stood at 23%. There are now 33,352 covid hospital patients in English hospitals, an increase of 2,594 in the last seven days. The previous week had seen a rise of 5,801. The weekly growth rate of covid positive hospital patients in the seven English regions currently ranges from 26% in the south west to zero in the south east. In every region, the growth rate is seven to 20 percentage points lower than recorded on 10 January. London’s weekly growth rate is now three per cent and the east’s is 2%. There has been no substantive change in the south east total in the past week. It is likely covid patients will be seen to have peaked in these three regions between 13 to 15 January. The slowing in the growth of national covid patient numbers means the total is likely to peak during the next seven days at a level lower than many had feared and expected. HSJ has seen internal NHS England projections from last week that saw growth continuing into February and total covid patient numbers rising well above 40,000, this now seem very unlikely. Read full story Source: HSJ, 18 January 2021
  15. News Article
    Plans to force the NHS to share confidential data with police across England are “very problematic” and could see patients giving false information to GPs, the government’s data watchdog has warned. In her first interview, Dr Nicola Byrne, the national data guardian for England told The Independent she has serious concerns over Home Office plans to impose a responsibility on the NHS to share patient data with police which she said “sets aside” the duty of confidentiality for clinicians. She also warned that emergency powers brought in to allow the sharing of data to help tackle the spread of Covid-19 could not run on indefinitely after they were extended to March 2022. She also told The Independent she had raised concerns with the government over clauses in the Police, Crime, Sentencing and Courts Bill which is going through the House of Lords later this month. The legislation could impose NHS bodies to disclose private patient data to police to prevent serious violence and crucially sets aside a duty of confidentiality on clinicians collecting information when providing care. Dr Byrne said doing so could “erode trust and confidence, and deter people from sharing information and even from presenting for clinical care”. She added that it was not clear what exact information would be covered by the bill: “The case isn’t made why as to why that is necessary. These things need to be debated openly and in public.” Read full story Source: The Independent, 10 October 2021
  16. News Article
    New commentary interprets the data published in the national patient safety incident reports (NaPSIR) for England in September 2021. Access the commentary here (PDF, 20 pages)
  17. News Article
    A national tech chief has called for a ‘radical simplification’ of the way in which NHS patients can opt out of having their data shared. NHSX chief executive Matthew Gould today said the current system was “overly complicated” with “too many different opt out mechanisms” and it needs to be made “super simple” for the public. His comments come as NHSX, NHS Digital and the Department of Health and Social Care are working on the much-delayed and controversial GP data-sharing programme. The scheme was paused indefinitely this summer after backlash from GPs and campaigners. Speaking at the Healthcare Excellence Through Technology conference, Mr Gould said the NHS had a “rich history of misfiring” on getting the public’s trust for data-sharing projects, which included the recent furore around the paused General Practice Data for Planning and Research. He said: “Where we are at the moment is an overcomplicated overlap of too many different opt out mechanisms and we’re trying to work out how to radically simplify this." Read full story (paywalled) Source: HSJ, 28 September 2021
  18. News Article
    Life expectancy in England has fallen to its lowest level since 2011, a Public Health England (PHE) report has said. Deaths were 1.4 times higher than expected between 21 March 2020 and 2 July 2021, according to the report’s findings. The increase, largely driven by the pandemic the report said, resulted in a life expectancy decrease of 1.3 years in males, to 78.7, and a 0.9 year decrease in females, to 82.7 years - the lowest life expectancy since 2011. Life expectancy inequality is also widening between people in the most and least deprived areas. The gap in male life expectancy between the most and least deprived areas in England is 10.3 years in 2020, which is a year higher than the 2019 level. Similarly for females, this same gap was 8.3 years in 2020, 0.6 years greater than in 2019. The PHE report said the inequality gap reached its highest since it began recording data on deprivation linked life expectancy over two decades ago. Its report stated: “This demonstrates that the pandemic has exacerbated existing inequalities in life expectancy by deprivation. Read full story Source: The Independent, 16 September 2021
  19. News Article
    In a positive step towards the future of pathology, NHS Digital has received approval from the Data Alliance Partnership Board (DAPB) for a new set of pathology information standards, and as part of NHS England CCIO7 workstreams, NHS Digital are delivering the ability to share pathology results across health and care. This move will enable clinicians to share and access critical information about pathology tests and results and receive the right information when they need it, which will help support improved clinical decision making and patient safety. Read full story. Source: Wired Gov, 19 August 2021
  20. News Article
    A new tool by NHS Digital has recently been launched that will allow patients to see which organisations can access their data. The Data Uses Register has revealed which organisations can access the data, such as public sector bodies and charities. Each organisation wanting to use the data must have a legitimate and legal reason such as health and care planning and research purposes. Simon Bolton, NHS Digital’s interim CEO, said: “The new Data Uses Register is an important improvement to make our data sharing agreements more transparent and user-friendly. We take our responsibility as the guardians of NHS data very seriously and we are committed to being transparent so that people can see exactly who their data has been shared with and why. It is important that the public can see openly and clearly how NHS data is shared to build confidence and trust and this new tool will help to ensure that.” Simon Bolton, NHS Digital’s interim CEO, has said. Read full story. Source: Digital Health, 27 July 2021
  21. News Article
    Ministers are to legislate more powers over how data on patients is collected and are imposing a 'duty' on the NHS to share patient information when doing so would benefit the system. The Health and Social Care Act 2021 already allows for sharing of data on an individual basis but staff have reported finding it hard to share it when it comes to primary and secondary care and administrative purposes. The new draft strategy produced by NHSX, has suggested it may want to use cloud storage to create a set of “structured data records” with the idea that it would make it easier for patients to access their own data. Read full story. (paywalled) Source: HSJ, 22 June 2021
  22. News Article
    The NHS has been advised to change the way they identify patients who are sick from coronavirus and those who test positive. Up until now, hospitals have recorded patients sick from the virus and those who tested positive together, whether they presented with symptoms or not. The new advice has been given with the hope that it will reduce the numbers of patients in hospital for the virus. Read full story. Source: The Independent, 9 June 2021
  23. News Article
    A group of patient activists has set up a new website using official NHS data to allow patients to check the waiting times for treatments at their local hospital. The new waiting times tool is thought to be the first automated and regularly updated website that shows hospital performance against key waiting time targets, by medical specialty such as cardiology or orthopaedics. The service, developed by volunteers from the not-for-profit Patient Experience Library, not only shows patients how many people are waiting to be treated overall but also shows data on the median waiting time as well as how well the hospital is performing against targets over time. Patients can also compare different hospitals and look at the performance of the NHS in England overall. Wait times for mental health services are treated separately and not included. Miles Sibley, co-founder of the Patient Experience Library, said the website was an attempt to bring transparency to NHS England’s “impenetrable spreadsheets” which not only affected patients but also other NHS staff who told Sibley they spend hours downloading data and working out their organisations performance. Read full story Source: The Independent, 7 June 2021
  24. News Article
    Labour has urged the NHS and Matt Hancock to pause their plan to share medical records from GPs to allow time for greater consultation on how the idea would work, saying that maintaining patients’ trust must be paramount. In a letter to the head of NHS Digital and the health secretary, the shadow public health minister, Alex Norris, said Labour backed the principle of improved data collaboration but shared the concerns of some doctors’ groups. The Royal College of General Practitioners warned NHS Digital a week ago that plans to pool medical pseudonymised records on to a database and share them with academic and commercial third parties risked affecting the doctor-patient relationship. NHS Digital needed to explain the plans better to the public, the group said, as well as outlining how people could opt out. The British Medical Association (BMA) has also called for a pause to the General Practice Data for Planning and Research scheme. Another group, the Doctors’ Association, said it was worried it would “erode the doctor/patient relationship, leaving patients reluctant to share their problems due to fears of where their data will be shared”. Read full story Source: The Guardian, 6 June 2021
  25. News Article
    ‘Disparity ratios’ highlighting how staff with minority ethnic backgrounds are represented at different levels in each trust have been created by the national workforce race equality standard programme to help tackle ‘racist practice’ in the NHS. NHS England head of WRES Professor Anton Emmanuel said the data had been created to indicate the differences in progression between white people and those from an ethnic minority background through the ranks of each organisation. Detail of the methodology used to calculate the ratios has not been published, but it appears they have been determined by comparing the share of staff by ethnicity in different bands. Speaking at the Ambulance Leadership Forum last week, professor Emmanuel, said: “We have gone through each of the seven regions of the country and presented to them the local disparity ratios for each trust and put that into a heatmap…The whole point is to make that data digestible and actable on.” The data can be adapted to look at different points in a trust’s progression routes and can also be used with other groups, such as disabled staff. Read full story (paywalled) Source: HSJ, 24 May 2021
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