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Content ArticleWith delays to promised support and trusts accused of penalising staff during their recovery, HSJ dig into why the NHS must provide support sooner rather than later for those experiencing Long-COVID. Patient Safety Learning has recently published a blog calling for better information and engagement with patients who have Long COVID: Clear NHS plan needed to reassure Long COVID patients. We have also co-produced a patient information leaflet with the Royal College of General Practitioners, to help patients understand what they can expect from their GP. To listen to the HSJ podcast, click on the link below.
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Content Article
Your COVID recovery guidance (6 November 2020)
PatientSafetyLearning Team posted an article in Patient recovery
This NHS document outlines new guidance on accessing and referring into the digital COVID-19 rehabilitation programme, Your COVID Recovery. -
Content Article
The National Institute for Health and Care Excellence (NICE), is developing the COVID-19 guideline: management of the long-term effects of COVID-19. The final scoping document and associated project papers are now available. -
Content ArticleOn 28 August 2020, LongCovid.org and partners sent a letter to Jeremy Hunt, Chair of the Health & Social Care Committee, to ask for the UK Government to assemble a multi-disciplinary Long Covid taskforce to consider: improvements to (continuing) professional education more and better research quality psychosocial and mental health services better public health programmes help for NHS and social care workers to return to work safely funding for patient-led support groups. The full letter can be read via the link below.
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Content ArticleAuthors of this BMJ Opinion piece, recently had the opportunity to present the existing evidence and highlight patients’ experiences of having Long Covid at a meeting attended by Maria Van Kerkhove, (WHO Covid Technical Lead) and Janet Diaz (WHO Head of Clinical Care) from the central WHO team. At the meeting, Clare Rayner and Amali Lokugamage, both doctors who are experiencing long term impacts of COVID-19, discussed their perspective of having long covid. In this article, the authors summarise the points they raised at the meeting. They also highlight the supportive comments made by Dr. Tedros Adhanom Ghebreyesus, which indicated genuine recognition of long covid sufferers and hope for the future.
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Content Article
Critical Care Recovery: COVID-19
PatientSafetyLearning Team posted an article in Resources for patients
Critical Care Recovery and Life Lines have teamed up to develop this web resource, designed to help patients and families recover from COVID-19. Informed by published expert guidance, they have also worked very closely with front line health care professionals, patients and families. This website will be updated regularly, as more information becomes available. -
Content ArticleThis webinar recording from ICU Steps is a session with trustees about recovery from critical illness and what can be done to help.
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Content Article
NHS: Your COVID Recovery
PatientSafetyLearning Team posted an article in Resources for patients
When recovering from COVID-19 people may still be coming to terms with the impact the virus has had on both their body and mind. Your COVID Recovery is a digital resource that has been developed by the NHS to help people understand what has happened and what they might expect as part of their recovery. Content includes: Managing the effects Wellbeing Exercises When to seek help Information for family, friends and carers. -
News Article
Largest Independent Randomized Controlled Trial of a Digital Therapy against Chronic Pain
Clive Flashman posted a news article in News
In the largest independent randomized controlled trial (RCT) of its type, a multimodal digital therapy program for patients with non-specific chronic low back pain has outperformed standard-of-care treatment across all medical outcomes. Results of the study, published in the Journal of Pain Research, show that patients using Kaia, the back pain management app developed by leading digital therapeutics company Kaia Health, reduced pain levels, anxiety, depression, stress, and improved wellbeing and body functionality significantly more compared to standard-of-care treatments, e.g. pain killers, surgeries, physical therapy. “This large-scale study demonstrates the significant benefits for people managing low back pain when using Kaia to deliver a multimodal treatment through a digital device, such as a smartphone,” says Thomas R. Toelle, M.D., Ph.D., Head of the Pain Center of the Technical University Munich, Germany. “These results add to the growing body of medical evidence that supports the use of digital multimodal treatments for chronic conditions, such as back pain.” Low back pain is one of the leading causes of global disability, with an enormous cost for healthcare systems worldwide. 1,2 According to a 2018 report on the impact of musculoskeletal pain on employers, chronic pain, including back pain, accounts for 188.7 million lost work days, and $62,4 billion in lost productivity cost.3 Kaia is an app-based, multimodal digital therapy program for chronic back pain, which focuses on Physical therapy, Relaxation exercises, and Medical education. -
Content ArticleThis article, published by The Conversation, highlights the mounting evidence that some people who have had COVID-19 but were not hospitalised, are experiencing prolonged illness. Reported after-effects of the virus include; overwhelming fatigue, palpitations, muscle aches and pins and needles. The author of this article looks at the research to date and talks about using twin studies to gain further insight into 'post-COVID syndrome'.
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Content ArticleThis short film was created by patients who are experiencing long-lasting and debilitating symptoms of COVID-19, to raise awareness of their ongoing issues, also known as 'Long COVID'.
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Content Article
My experience of suspected 'Long COVID'
PatientSafetyLearning Team posted an article in Blogs
In this blog, intensive care doctor Jake Suett draws on his personal journey and that of others to highlight the prolonged and frightening symptoms many patients with confirmed or suspected COVID-19 are experiencing. Jake outlines his concerns and sets out recommendations for future action to address the needs of these 'Long COVID' patients. Included is an example letter that can be adapted by others to call on MPs to raise awareness of those suffering persisting symptoms of COVID-19.- Posted
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Content Article
Patient safety concerns for Long COVID patients (6 July 2020)
PatientSafetyLearning Team posted an article in Blogs
An increasing number of people with confirmed or suspected COVID-19 are continuing to struggle with prolonged, debilitating and sometimes severe symptoms months later.[1] Many were never admitted to hospital and have instead been trying to manage their symptoms and recovery at home. These patients are sometimes referred to as the ‘long-haulers’ or described as having ‘post-acute’, ‘chronic’ or ‘long-term’ COVID-19. Here, we will use the term ‘Long COVID’. With social distancing restrictions still in place, patients in the UK and across the world have been turning to social media support networks[2] to connect with others who are experiencing similar challenges. These patients have raised very credible concerns about the care they are receiving[3] and the uncertainties they face. Their concerns are revealing many implications for patient safety. We have recently shared on the hub the story of Dr Jake Suett[4], one of the many people experiencing symptoms of Long COVID. When we conclude this article, we will return to his story and highlight the changes that he is calling for. However, first, we will focus on the patient safety aspects of Long COVID, highlighting key areas of concern and action needed (a full list of actions can be found summarised here). -
Content Article
COVID-19 Recovery Collective
PatientSafetyLearning Team posted an article in Patient recovery
The COVID-19 Recovery Collective is a small team of collaborators that wanted to do something constructive to help those that are in recovery from the COVID-19 virus. The impact of the virus across the globe has been rapid and far reaching. Many are struggling to keep pace with developments, from the recovery process of the infection itself, to the economic consequences of the virus and also the sociological impact of lockdown.The collaboration started as a token action towards helping those that are in recovery from COVID-19, in the hope that by encouraging people to share their own experiences of recovery they can instil some reassurance in others of potential expectations. Through this sharing of experiences, we might see some similar patterns of recovery and also provide an opportunity to share any knowledge or actions that might have helped others to deal with the personal impact of the infection on their health. -
Content ArticleAs COVID-19 spread throughout the world, clinicians and researchers rapidly published guidance and data and shared their experiences in the hope of understanding the virus better. Their shared purpose was to keep more patients safe from becoming acutely unwell or dying. While the initial focus was on treating the hospitalised, one Trust was also thinking ahead to the challenging recovery many would face.
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Content Article
Co-producing COVID-19 recovery (June 2020)
PatientSafetyLearning Team posted an article in Patient recovery
There is an increasing amount of evidence that co-producing change and improvement in health care leads to new approaches that are more likely to succeed and be sustained. This blog, by the US-based Institute for Healthcare Improvement, asks: 'As health care systems grapple with planning for an uncertain future during the COVID-19 pandemic, how do we ensure that people with lived experience are real partners in what comes next?' -
Content ArticleCOVID-19 rehabilitation will improve exercise tolerance, muscle strength, and help patients manage breathlessness, and potentially allow someone to be discharged earlier. The treatments in this guide, produced by Liverpool Heart and Chest Hospital, focus on breathing, functional and physical exercises. Only complete exercises at home and in hospital that have been discussed with a clinician.
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Content ArticleThis document, developed by McMaster University's School of Rehabilitation Science in Canada, provides a guide for rehabilitation practice during the COVID-19 crisis. Informed by the best available evidence, including consultation with the clinical community, this living document consolidates findings from resources for front line rehabilitation professionals.
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Content ArticleA significant number of people, who may or may not have been acutely unwell with COVID-19, are experiencing a prolonged and debilitating recovery at home. Symptoms and experiences of care seem to vary greatly among this group, sometimes known as the COVID-19 ‘long-haulers’. Many are finding comfort and reassurance through online communities, set up by and designed for patients who are struggling to get back on their feet.
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Content ArticleThis patient information pack has been produced by staff at Homerton University Hospital. It is designed to help people recover and manage their symptoms following COVID-19.
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News ArticleDemand for oxygen from COVID-19 patients recovering at home is set to place the NHS under strain, the health service has warned. NHS England has issued guidance to out-of-hospital health providers on the extra demands likely to be placed on them given the number of people recovering after a hospital stay with the coronavirus. It warns that the provision from its home oxygen services and community respiratory teams across the NHS is expected to be an issue as the scale of demand increases. Andrew Whittamore, a practising GP and clinical lead for the Asthma UK and British Lung Foundation partnership, said concerns about the potential for hospitals to be overwhelmed in the early part of the pandemic had led to community oxygen teams being primed to take on more patients – but he described that ramping up as “a short-term fix”. “We don’t know how long people are going to need oxygen or other services for,” he said. “There are definitely going to be extra patients added on to our community teams’ workloads.” The Taskforce for Lung Health – of which the British Lung Foundation is a member – has raised particular concerns about access to pulmonary rehabilitation. An education- and exercise-based treatment, which is proven to be more effective for lung patients than many drug-based treatments, and face-to-face classes have been suspended during the pandemic. It may be that such treatment would also be helpful for some patients recovering from COVID-19. Jackie Eagleton, policy officer at the British Lung Foundation, said there had been issues with access to pulmonary rehabilitation for a long time, but the need to offer this form of support to people with lung conditions “has never been more pressing than it is now”. Read full story Source: The Independent, 16 June 2020
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Content ArticleRehabilitation is fast becoming the new priority in dealing with the impact of this pandemic and is crucial for people recovering from COVID-19 infection.The Royal College of Occupational Therapists (RCOT) have published three guides to support people to manage post-viral fatigue and conserve their energy as they recover from COVID-19. These guides are endorsed by the Intensive Care Society.Practical advice for people who have been treated in hospitalPractical advice for people who have recovered at home’Practical advice for people during and after having COVID-19.You can download the guides via the link below.
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Content ArticlePaul Garner is Professor at the Liverpool School of Tropical Medicine. He is Director of the Centre for Evidence Synthesis in Global Health and Co-ordinating Editor of the Cochrane Infectious Diseases Group. In this blog for BMJ Opinion, Paul describes how he has struggled in the weeks following his COVID-19 infection and the relapses in fatigues that have occurred after any exertion.
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Content ArticleThis statement outlines the UK's four nations’ collective strategic priorities and approach to Allied Health Professional (AHP) rehabilitation leadership during and after COVID-19. Rehabilitation is critical to ensuring our population’s recovery from the impacts of the pandemic and the long-term sustainability of the health and social care system. AHPs are at the centre in shaping the rehabilitation agenda while working as part of the wider multidisciplinary and multiagency teams across all sectors.
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Content ArticleAsthma UK and British Lung Foundation have created a post-COVID hub. This part of their hub provides support for patients who have breathing difficulties after having COVID-19.
