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Found 454 results
  1. Content Article
    As reported recently, the Scottish Healthcare Workers Coalition called upon the Scottish Government to reinstate 'universal masking' in health and social care settings.  In this statement written in support of their campaign, an occupational safety and health practitioner, David Osborn, explains the legal requirements for risk assessments that the Government ought to have undertaken before reaching such a decision that exposes healthcare staff to the life-changing consequences associated with repeat Covid-19 infections.  He also explains the legal duty of the Government to consult with workers before implementing changes that may affect their health and safety. Neither duty (risk assessment nor prior consultation with workers) appears to have been well met, putting the Scottish Government and Health Boards in breach of UK-wide health and safety law. 
  2. Content Article
    The UK Covid-19 Inquiry is the independent public inquiry set up to examine the UK’s response to and impact of the Covid-19 pandemic, and learn lessons for the future. In order to fully understand the impact of the pandemic on the UK population, the Inquiry is inviting the public to share their experiences of the pandemic by launching Every Story Matters. It will inform the Inquiry’s work by gathering pandemic experiences which can be brought together and represent the whole of the UK, including those seldom heard. The output of Every Story Matters will be a unique, comprehensive account of the UK population’s experiences of the pandemic, to be submitted to the Inquiry’s legal process as evidence. This toolkit contains information and creative assets that can be used to encourage participation in Every Story Matters. Every Story Matters aims to provide inclusive methods for people to talk about their experience of the pandemic, so anyone that wants to share their story feels heard, valued, and can contribute to the Inquiry.
  3. Content Article
    A significant number of doctors and other healthcare workers have developed post-acute COVID, including a large number who developed it as a result of workplace exposure to Covid-19. This paper examines the impact post-acute Covid symptoms have had on the medical workforce, personally and professionally. It provides a unique and valuable insight into the experience of UK doctors suffering from post-acute Covid. It has been informed by a UK survey of over 600 doctors suffering from the continuing effects of an infection with Covid-19, as well as wider research of the issues. The survey was undertaken by the British Medical Association (BMA) in partnership with Long COVID Doctors for Action. This is the first comprehensive survey of doctors with post-acute Covid health complications. This paper should inform the support needed by current sufferers of post-acute COVID in the NHS workforce, and help protect services and patients now and in the future.
  4. Content Article
    This study from Walker et al. describes self-reported characteristics and symptoms of treatment-seeking patients with Long Covid and assesses the impact of symptoms on health-related quality of life (HRQoL) and patients’ ability to work and undertake activities of daily living. It found that a high proportion were of working age with over half reporting moderately severe or worse functional limitation. There were substantial impacts on ability to work and activities of daily living in people with Long Covid. Clinical care and rehabilitation should address the management of fatigue as the dominant symptom explaining variation in functionality.
  5. Content Article
    This podcast series from Julie Taylor aims to raise awareness of Long Covid, provide a platform of support, education and the lived experience. Julie is a registered nurse in the UK and became unwell with Covid in May 2020 while working on the frontline, during the first wave of the pandemic. She now lives with Long Covid and POTS (postural orthostatic tachycardia syndrome). In this podcast series, Julie shares her journey and lived experience, the symptoms and how each impacts daily life, not only the physical issues but also the impact this has had mentally and emotionally.
  6. Content Article
    The 'Living with Long Covid' podcast series from Julie Taylor aims to raise awareness of Long Covid, and provide a platform of support, education and the lived experience.
  7. Content Article
    ‘Mum… Do you think if I had a wheelchair, I could go into school sometime? Just for a while?’  There have been many lows since my son, Tarka, got Covid in January 2022 but that moment, 2 nights ago, was the moment that broke my heart.  In this blog, Susanna Stanford talks about how Long Covid has left her 15 year old son incapacitated at times, with continued and worsening symptoms affecting his whole body as well as his ability to get on with his life. Susanna argues that the system is not set up to respond to either new symptoms or deterioration in Long Covid patients.
  8. News Article
    People who are vaccinated are less likely to develop Long Covid even if they catch the virus, a rapid review by the UK Health Security Agency reveals. It looked at the available evidence to date from 15 studies around the world. The findings suggest that while some who are jabbed catch Covid, vaccines reduce infection risk and illness, including symptoms like fatigue. And unvaccinated people who catch Covid and get symptoms of Long Covid, do better if they then get vaccinated. Vaccine effectiveness against most Long-Covid symptoms was highest in people aged 60 years and over In people who already had Long Covid symptoms, it found that vaccines may improve rather than worsen Covid symptoms, either immediately or over several weeks According to the UK Health Security Agency (UKHSA), around 2% of the UK population have reported symptoms of Long Covid, such as fatigue, shortness of breath and muscle or joint pain. Symptoms like these can last for more than four weeks after the infection. Read full story Source: 15 February 2022
  9. News Article
    Even a mild case of COVID-19 can increase a person’s risk of cardiovascular problems for at least a year after diagnosis, a new study1 shows. Researchers found that rates of many conditions, such as heart failure and stroke, were substantially higher in people who had recovered from COVID-19 than in similar people who hadn’t had the disease. What’s more, the risk was elevated even for those who were under 65 years of age and lacked risk factors, such as obesity or diabetes. “It doesn’t matter if you are young or old, it doesn’t matter if you smoked, or you didn’t,” says study co-author Ziyad Al-Aly at Washington University in St. Louis, Missouri, and the chief of research and development for the Veterans Affairs (VA) St. Louis Health Care System. “The risk was there.” People who had recovered from COVID-19 showed stark increases in 20 cardiovascular problems over the year after infection. For example, they were 52% more likely to have had a stroke than the contemporary control group, meaning that, out of every 1,000 people studied, there were around 4 more people in the COVID-19 group than in the control group who experienced stroke. The risk of heart failure increased by 72%, or around 12 more people in the COVID-19 group per 1,000 studied. Hospitalization increased the likelihood of future cardiovascular complications, but even people who avoided hospitalization were at higher risk for many conditions. “I am actually surprised by these findings that cardiovascular complications of COVID can last so long,” Hossein Ardehali, a cardiologist at Northwestern University in Chicago, Illinois, wrote in an e-mail to Nature. Because severe disease increased the risk of complications much more than mild disease, Ardehali wrote, “it is important that those who are not vaccinated get their vaccine immediately”. Read full story Source: Nature, 10 February 2022
  10. News Article
    Staff on prolonged sick leave due to long covid could be dismissed if ‘redeployment is not an option’ and they are unable to fulfil their contract, new NHS England guidance says. The advice was set out in guidance published this month and follows the government’s temporary, non-contractual guidance that was issued in response to the coronavirus pandemic during its first waves. The government’s advice aimed to provide a temporary enhancement of covid sick pay and meant that staff who were absent with covid would remain on full pay, therefore, did not feel pressured to return. However, NHSE’s guidance warned that “while this provision is still available, it is possible that it may change”. The move has been seen as an inevitable step as the guidance was brought in as an emergency measure, while some employers may have been holding off dismissing staff with long covid or covid-related absences due to guidelines in place. NHSE’s new Guidelines for supporting our NHS people affected by long covid said: “According to [the] guidance, periods of covid-19 sick pay would not be counted towards a colleague’s normal sickness entitlements. “However, if a colleague is approaching long-term sickness (for a period of 12 months or more), the employing organisation would be expected to complete a review at 12 months to understand the ongoing need and potential challenges with a return to work. It adds: “Consideration of dismissal due to the colleague being unable to fulfil their contract should only be considered if redeployment is not an option.” Read full story (paywalled) Source: HSJ, 11 February 2022
  11. News Article
    It is one of many mysteries about Long Covid: Who is more prone to developing it? Are some people more likely than others to experience physical, neurological or cognitive symptoms that can emerge, or linger for, months after their coronavirus infections have cleared? Now, a team of researchers who followed more than 200 patients for two to three months after their Covid diagnoses report that they have identified biological factors that might help predict if a person will develop long Covid. The study, published by the journal Cell, found four factors that could be identified early in a person’s coronavirus infection that appeared to correlate with increased risk of having lasting symptoms weeks later: The level of coronavirus RNA in the blood early in the infection, an indicator of viral load. The presence of certain autoantibodies — antibodies that mistakenly attack tissues in the body as they do in conditions like lupus and rheumatoid arthritis. The reactivation of Epstein-Barr virus, a virus that infects most people, often when they are young, and then usually becomes dormant. Having Type 2 diabetes, although the researchers and other experts said that in studies involving larger numbers of patients, it might turn out that diabetes is only one of several medical conditions that increase the risk of Long Covid. The researchers said they had found that there was an association between these factors and Long Covid whether the initial infection was serious or mild. They said that the findings might suggest ways to prevent or treat some cases of Long Covid, including the possibility of giving people antiviral medications soon after an infection has been diagnosed. “I think this research stresses the importance of doing measurements early in the disease course to figure out how to treat patients, even if we don’t really know how we’re going to use all that information yet,” said Jim Heath, the principal investigator of the study. However, the study authors and other experts cautioned that the findings were exploratory and would need to be verified by considerably more research. Read full story (paywalled) Source: The New York Times, 25 January 2022
  12. News Article
    Lawmakers say minorities may disproportionately suffer from long-term symptoms of coronavirus infection. A pair of Democratic House members asked the Centers for Disease Control and Prevention (CDC) in a letter Tuesday to release data on the number of Americans who suffer lingering symptoms of coronavirus infection, including breakdowns along race, gender and age. The National Institutes of Health and the CDC have launched detailed studies of Long Covid, but those examinations are expected to take years. In the meantime, policymakers lack good information about how many people in the United States and worldwide suffer from long-term, debilitating effects of the disease. “People suffering from Long Covid have been ignored and overlooked for far too long. Collecting and publishing robust, disaggregated demographic data will help us better understand this illness and ensure that we are targeting lifesaving resources to those who need them most,” said Rep. Ayanna Pressley, who co-signed the letter Tuesday to the CDC.“We’re calling on the CDC to publicly report this data because that which gets measured gets done — and we can’t have an equitable recovery from this pandemic without it.” Read full story Source: The Washington Post, 25 January 2022
  13. News Article
    Doctors have discovered an “antibody signature” that can help identify patients most at risk of developing long Covid, a condition where debilitating symptoms of the disease can persist for many months. Researchers at University hospital Zurich analysed blood from Covid patients and found that low levels of certain antibodies were more common in those who developed long Covid than in patients who swiftly recovered. When combined with the patient’s age, details of their Covid symptoms and whether or not they had asthma, the antibody signature allowed doctors to predict whether people had a moderate, high or very high risk of developing long-term illness. “Overall, we think that our findings and identification of an immunoglobulin signature will help early identification of patients that are at increased risk of developing long Covid, which in turn will facilitate research, understanding and ultimately targeted treatments for long Covid,” said Onur Boyman, a professor of immunology who led the research. Read full story (paywalled) Source: The Guardian, 25 January 2022
  14. News Article
    NHS trusts in England lost nearly 2m days in staff absences due to long Covid in the first 18 months of the pandemic, according to figures that reveal the hidden burden of ongoing illness in the health service. MPs on the all-party parliamentary group (APPG) on coronavirus estimate that more than 1.82m days were lost to healthcare workers with long Covid from March 2020 to September 2021 across England’s 219 NHS trusts. The estimate is based on data obtained under the Freedom of Information Act from 70 NHS trusts and does not include the impact of the highly transmissible Omicron variant that has fulled record-breaking waves of infection in the UK and globally since it was first detected in November. Layla Moran, the Liberal Democrat MP who chairs the APPG, said the government had paid “almost no attention to long Covid and the severe impact it was having on vital public services” and called for immediate support for those affected. “Thousands of frontline workers are now living with an often debilitating condition after being exposed to the virus while protecting this country,” she said. “They cannot now be abandoned.” Read full story Source: The Guardian, 24 January 2022
  15. News Article
    About 1.3 million people in the UK have Long Covid symptoms lasting more than four weeks after an initial infection, an Office for National Statistics survey suggests. Of those, 892,000 (70%) first caught the virus at least 12 weeks ago and 506,000 (40%) at least a year ago. The survey asked nearly 352,000 people to record their own symptoms. There is no universally agreed definition of long Covid and different studies use varying definitions. The ONS survey, over four weeks in November and December 2021, suggests, of those with Long Covid: 51% have fatigue 37% have loss of smell 36% have shortness of breath 28% have difficulty concentrating. University of Exeter senior clinical lecturer Dr David Strain said: "The stark warning here is that, based on this, in the previous waves, over 800,000 people have their day-to-day activities significantly affected over three months after catching Covid and nearly a quarter of a million report this has a dramatic impact on their quality of life. "As we continue to see case numbers of Omicron rise, we must be wary that our reliance purely on hospitalisations and death as a measure of the risk from Covid could grossly underestimate the public-health impact of our current Covid strategy." Read full story Source: BBC News, 6 January 2022
  16. News Article
    Data from a new study suggests that the coronavirus that causes COVID-19 can persist in different parts of the body for months after infection, including the heart and brain. Scientists at the National Institutes of Health (NIH) found the virus can spread widely from the respiratory tract to almost every other organ in the body and linger for months. The researchers described the study as the "most comprehensive analysis to date" of the virus's persistence throughout the body and brain. They performed autopsies on 44 patients who died either from or with COVID-19 to map and quantify virus distribution across the body. Daniel Chertow, principal investigator in the NIH’s emerging pathogens section, said along with his colleagues that RNA from the virus was found in patients up to 230 days after symptom onset. The findings, released in a pre-print manuscript, shed new light on patients who suffer from Long Covid. The study found that the virus had replicated across multiple organ systems even among patients with asymptomatic to mild COVID-19. While the "highest burden" of infection was in the lungs and airway, the study showed the virus can "disseminate early during infection and infect cells throughout the entire body,” including in the brain, as well as in ocular tissue, muscles, skin, peripheral nerves and tissues in the cardiovascular, gastrointestinal, endocrine and lymphatic systems. "Our data support an early viremic phase, which seeds the virus throughout the body following pulmonary infection," the researchers wrote. Read full story Source: The Hill, 27 December 2021
  17. News Article
    Nearly two years into the pandemic, people like me are still out of action. We need better support and more funding, writes Joanna Herman, consultant in infectious diseases in London. Joanna caught Covid in March 2020, and was by definition a “mild” case: not admitted to hospital and no risk factors for severe disease, but how it has affected her and her family is anything but mild. Having been fit and active, Joanna now finds that on bad days that she still struggle with everyday chores, and her usually quick-firing brain "remains in slo-mo ('brain fog')". For many months, it has felt as though long Covid has not been on the political agenda, but many people are still struggling with their everyday lives, and struggling to get the help they need. Why is long Covid not included in the daily statistics, or as one of the main incentives to avoid Omicron, and to get a vaccine and booster jab? It’s never mentioned, and it often feels as if sufferers don’t exist. Even if the new variant results in milder disease than previous ones, could more people still end up like Joanna? And how will an already stretched NHS cope if there are new cases of long Covid after this current viral surge? There’s a lot we still don’t know about Omicron; a fuller picture will become evident over the coming weeks and months... Read full story Source: The Guardian, 22 December 2021
  18. News Article
    People who were hospitalised with COVID-19 and continued to experience symptoms at five months show limited further recovery one year after hospital discharge, a key finding of the Post-hospitalisation COVID-19 study (PHOSP-COVID) has revealed. The NIHR/UKRI-funded study, led by the NIHR Leicester Biomedical Research Centre, also confirmed that people who were less likely to make a full recovery from COVID-19 were female, obese, and required invasive mechanical ventilation (IMV) to support their breathing during their hospital stay. The study found that one year after hospital discharge, less than three in ten patients reported they felt fully recovered, largely unchanged from at five months. The most common ongoing symptoms were fatigue, muscle pain, physically slowing down, poor sleep and breathlessness. Participants felt their health-related quality of life remained substantially worse one year after hospital discharge, compared to pre-COVID. This suggests the physical and mental health impairments reported in the study are unlikely to be pre-existing conditions. Professor Chris Brightling said: “The PHOSP-COVID study is further evidence of the UK’s ability to combine expertise across both disease area and geography to rapidly gather data to help us understand the longer term implications of Long-COVID in hospitalised patients with persistent symptoms. Our findings show that people who were hospitalised and went on to develop Long-COVID are not getting substantially better a year after they were discharged from hospital. Many patients in our study had not fully recovered at five months and most of these reported little positive change in their health condition at one year. “When you consider that over half a million people in the UK have been admitted to hospital as a result of COVID-19, we are talking about a sizeable population at risk of persistent ill-health and reduced quality of life.” Read full story Source: National Institute for Health Research, 16 November 2021
  19. News Article
    A doctor who became very unwell with COVID-19 at the start of the pandemic was later found to have multiple blood clots in his brain which could easily have killed him. Dr Ian Frayling started suffering with a "bone-cracking" fever, muscle pain and a "cough like no other" in March 2020, weeks before the national lockdown was announced by the UK and Welsh governments. His condition then took a turn for the worse when he started experiencing problems with his breathing and encountering such extreme brain fog that entire days would pass him by. The 62-year-old said his "frightening" range of symptoms, which also included irritable bowel syndrome, disruptive sleep and difficulty with coordination, persisted for many months and left him a fatigued shell of his former self. After sharing his story with WalesOnline 12 months ago, Dr Frayling was invited to meet the Senedd's health committee in March 2021 to give evidence of his battle with Long Covid. It led to a respiratory consultant reaching out to him and offering him a full clinical assessment at the University Hospital Llandough. Not only did she find problems with his heart and blood pressure, which were to be expected, but a referral for CT scans in May 2021 revealed that he was living with several blood clots in his brain which were very likely to be attributed to the after-effects of coronavirus. It meant suffering a catastrophic stroke was highly likely. After being given the deeply distressing news, Dr Frayling said his mind began turning to other people with Long Covid who may be experiencing similar neurological symptoms but are waiting many months to be referred to see a specialist doctor by their GP. "The consultant used her clinical skills and expertise [to properly assess me and give me a CT scan]. I'm one of the lucky ones. A GP can't directly send people off for these kind of tests, so there could be thousands of people with Long Covid, just like me, who aren't getting the help they need and are just being fobbed off." Read full story Source: Wales Online, 28 November 2021
  20. News Article
    NHS bosses have warned the high prevalence of long Covid among staff is adding to rising healthcare pressures, amid growing concern that the new omicron variant could further drive infections and absences in the workforce. Some 40,000 (3.26%) of healthcare workers in the UK are estimated to have long Covid, according to the Office for National Statistics. This figure has risen by 5,000 since July. Many will be unable to work, though others are continuing to work despite their debilitating symptoms, experts say. “Trust leaders have told us they are concerned about the prevalence of long Covid amongst health and care staff,” said Chris Hopson, chief executive of NHS Providers. “Staff who are unwell need time to recover with support. But this may worsen unavoidable absences and sickness levels in the NHS at a time when pressures on the health service are mounting.” Read full story Source: The Independent, 9 December 2021
  21. News Article
    Many people suffering from “long Covid” are still unable to work at full capacity six months after infection, a large-scale survey of confirmed and suspected patients has found. While COVID-19 was initially understood to be a largely respiratory illness from which most people would recover within two or three weeks, as the pandemic wore on increasing numbers reported experiencing symptoms for months on end. These long haulers – with symptoms affecting organs ranging from the heart to the brain – have no real explanation and no standardised treatment plan for their long-term condition. There is no consensus on the scale and impact of long Covid but emerging data is concerning. In one of the largest studies yet, which has not been peer reviewed, Patient Led Research for COVID-19 (a group of long Covid patients who are also researchers) surveyed 3,762 people aged 18 to 80-plus from 56 countries who responded in nine different languages to 257 different questions Two-hundred and five symptoms across 10 organ systems were recorded, with 66 symptoms traced over seven months. On average, respondents experienced symptoms from nine organ systems. Read full story Source: The Guardian, 5 January 2021
  22. News Article
    With the excitement of the Covid vaccine’s arrival, it may be easy to forget and ignore those of us with “long Covid”, who are struggling to reclaim our previous, pre-viral lives and continue to live with debilitating symptoms. Even when the NHS has managed the herculean task of vaccinating the nation, COVID-19 and the new mutant variants of the virus will continue to circulate, leaving more people at risk of Long Covid. Data from a King’s College London study in September suggested as many as 60,000 people in the UK could be affected, but the latest statistics from the Office for National Statistics suggest it could be much higher. Joanna Herman is a consultant in infectious diseases. "Long Covid' is anything but a mild illness". Nine months on from having the virus, she is seriously debilitated. She explains how the new NHS clinics need to help the thousands of people with Long Covid. Read full story Source: The Guardian, 27 December 2020
  23. News Article
    People who suffer from the debilitating effects of long Covid should be offered psychiatric care, the first clinical guidance to be published on the subject recommends. The guidelines urge healthcare professionals to look out for signs that patients who continue to suffer symptoms of COVID-19 for weeks after contracting the virus are at risk of self-harm. In the new advice, the National Institute for Health and Care Excellence (NICE) and the Royal College of General Practitioners, say people with ongoing symptomatic COVID-19 or suspected post-Covid 19 syndrome, whose symptoms last longer than 12 weeks, should be “urgently” referred for assessment if they have severe psychiatric symptoms or are at risk of self-harm or suicide. The guidelines state: “Follow relevant national or local guidelines on referral for people who have anxiety and mood disorders or other psychiatric symptoms. Consider referral for psychological therapies if they have common mental health symptoms, such as symptoms of mild anxiety and mild depression, or to a liaison psychiatry service if they have more complex needs (especially if they have a complex physical and mental health presentation).” Read full story (paywalled) Source: The Telegraph, 18 December 2020
  24. News Article
    Layla Moran, Lib Dem MP for Oxford West and Abingdon and Chair of the APPG on Coronavirus, has secured the first Commons debate on Long Covid on Thursday 7 January following cross-party support. The Backbench Business Committee granted the application by Layla Moran, co-sponsored by Dr Dan Poulter MP (Con) and Andrew Gwynne MP (Lab) and supported by many others. Layla said that the debate “is long overdue” and called on “those with lived experience and clinical experience to tell us your stories” in advance of the debate. Layla Moran said: “I’m pleased that we’ve been able to secure this important debate on Long Covid, which is long overdue. The APPG on Coronavirus, which I chair, has submitted recommendations to the Government on this, and the debate will give us the opportunity to hold them to account and represent our constituents suffering from it." “What’s really important now is that as many MPs as possible take part in the debate, so we can give this the profile it deserves and give the Government the opportunity to listen and respond to our concerns. Thank you to my cross-party colleagues for supporting this. I’m calling on those with lived experience and clinical experience to tell us your stories between now and the 7 January. This is a crucial opportunity.” Read full story Source: Liberal Democrats, 19 December 2020
  25. News Article
    Thousands of patients suffering with the long term symptoms of coronavirus can now access specialist help at more than 60 sites, NHS England announced today. The assessment centres are taking referrals from GPs for people experiencing brain fog, anxiety, depression, breathlessness, fatigue and other debilitating symptoms. NHS England has provided £10 million for the network of clinics, which started opening last month. There are now 69 operating across the country with hundreds of patients already getting help. The new centres bring together doctors, nurses, physiotherapists and occupational therapists to offer both physical and psychological assessments and refer patients to the right treatment and rehabilitation services. Ten sites are now operational in London, seven in the East of England, eight in the Midlands, South East and South West respectively, nine in the North West and a further 18 across the North East and Yorkshire. A further 12 sites are earmarked to launch in January in the East Midlands, Lancashire, Cornwall and Isle of Wight. The National Institute for Clinical Excellence (NICE) has today also issued official guidance on best practice for recognising, investigating and rehabilitating patients with long COVID. Patients can access services if they are referred by a GP or another healthcare professional, so that doctors can first rule out other possible underlying causes for symptoms. Read full story Source: NHS England, 18 December 2020
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