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Content ArticleProf Danny Altmann of Imperial College London is a clinical immunologist who is passionate about understanding the immune system and how it impacts on human health. Here he is interviewed by Margaret O'Hara and Claire Hastie of Long COVID Support, to answer questions about the COVID vaccines and the implications for people with Long COVID.
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Long Covid week: Parliamentary content
Patient Safety Learning posted an article in Patient recovery
As part of March for Change's efforts to improve the government’s response to COVID-19, Long Covid week (11-15 January 2021) highlighted the experiences of the hundreds of thousands of people living with Long Covid with a briefing for politicians; the first ever Parliamentary debate on Long Covid in the House of Commons; and a live Q&A event on Long covid with a panel of MPs and experts.- Posted
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Times Radio: Long COVID (8 January 2021)
PatientSafetyLearning Team posted an article in Patient recovery
In this section of Kate Borsay's Time Radio programme (listen from 1:08), we hear from three patients who are suffering debilitating and long term symptoms of COVID-19, in some cases more than a year after first feeling unwell. They are joined by former Minister of State (Department of Health), Norman Lamb and Dr David Arnold as they discuss the widespread impact on people's lives, the growing number of people suffering and the need for greater support and resource for this growing crisis. -
Content ArticleA significant number of patients with COVID-19 experience prolonged symptoms, known as Long COVID. Few systematic studies have investigated this population, particularly in outpatient settings. Hence, relatively little is known about symptom makeup and severity, expected clinical course, impact on daily functioning, and return to baseline health. Davis et al. conducted an online survey of people with suspected and confirmed COVID-19, distributed via COVID-19 support groups and social media. Patients with Long COVID reported prolonged, multisystem involvement and significant disability. By seven months, many patients have not yet recovered (mainly from systemic and neurological/cognitive symptoms), have not returned to previous levels of work, and continue to experience significant symptom burden.
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Content ArticleThis survey has been designed by the Long Covid Support Group to collate information on the patient experience of Long COVID clinics in England (also referred to as Assessment Centres), announced on December 18th, 2020. Data collected will be anonymised and analysed to produce a report to inform medical professionals, health organisations and interested stakeholder groups such as NHSE, Royal Colleges and research bodies. This survey is initially open for a 4 week period, with results expected to be published in Spring 2021.
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Content ArticleThe Queen’s Nursing Institute has published a resource for community nurses caring for people living with COVID-19. Commissioned by NHS England and NHS Improvement, ‘Living with COVID-19 (Long Covid) and Beyond’ provides information to support nurses working in community, care homes and primary care and also to the wider multi-disciplinary team including clinical knowledge, care responses and skills when caring for people during their recovery and rehabilitation. It is predicted that there will be a ‘new wave’ of physical, mental and emotional health challenges as individuals enter recovery from COVID-19 infection – and for some this is combined with issues resulting from the social and economic impact of lockdown, such as isolation and unemployment. The resource also aims to help nurses assist people, families, carers and employers to work towards managing post COVID-19 symptoms, regaining everyday life activities and returning to independent living wherever possible. It includes information on physical care, psychological and neuro-psychological care, social impact and features several case studies.
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Content ArticleThis guideline covers identifying, assessing and managing the long-term effects of COVID-19, often described as ‘Long COVID’. It makes recommendations about care in all healthcare settings for adults, children and young people who have new or ongoing symptoms 4 weeks or more after the start of acute COVID-19. It also includes advice on organising services for Long COVID.
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The Long Covid Forum 2020 video (12 December 2020)
Patient Safety Learning posted an article in Patient recovery
Coverage from the Long Covid Forum 2020, in association with ISARIC and GLOPID-R LongCovid.org. -
Content ArticleMultiorgan symptoms after COVID-19 are being reported by increasing numbers of patients. They range from cough and shortness of breath, to fatigue, headache, palpitations, chest pain, joint pain, physical limitations, depression, and insomnia, and affect people of varying ages. At the Lancet–Chinese Academy of Medical Sciences conference on Nov 23, Bin Cao presented data (in press at The Lancet) on the long-term consequences of COVID-19 for patients in Wuhan, and warned that dysfunctions and complications could persist in some discharged patients for at least 6 months. So-called long COVID is a burgeoning health concern and action is needed now to address it.
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Content ArticleAlthough most majority of COVID-19 cases are mild, some patients with initial mild to moderate forms of COVID-19, complain of persistent or resurgent symptoms. The aim of this study from Salmon-Deron et al. was to describe the clinical, biological and imaging profile of such patients in order to suggest a classification of the symptoms and raise hypotheses about their pathophysiology.
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Content ArticleIn this opinion piece, authors highlight the growing cohort of patients who are suffering symptoms many months after their initial COVID-19 infection and the increasing demand on GP services. They also highlight a need for studies that can illuminate the underlying mechanism and for insights into the nature of this condition, how long it’s likely to go on for, what can be done about it, and through which clinical specialties. "Many estimates of long covid suggest that greater than 10% of acute cases have features that do not resolve over the subsequent months. Extrapolated to the current global burden of covid-19, this suggests potentially over five million current "long haulers"."
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Content ArticleLast week, Patient Safety Learning’s Chief Executive, Helen Hughes, gave an overview of some of the patient safety issues we’ve focused on this year. We then published the first of five mini blogs, looking at one of these key areas, namely the impact of the COVID-19 pandemic on patient safety. This week, we turn our focus to Long COVID. Long COVID is a condition where people experience debilitating and sometimes severe symptoms for more than 12 weeks following confirmed or suspected COVID-19, and where their condition cannot be explained by an alternative diagnosis.
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Content ArticleEarlier this week, Patient Safety Learning’s Chief Executive, Helen Hughes, looked back over 2020, highlighting some of the big themes in patient safety we’ve seen this year and our own work in these areas. This is the first of five mini blogs, where we give an overview of each of these themes in turn. In this blog, we look at the impact COVID-19 has had on patient safety. As an additional option to the text below, you might like to watch the following short video from our Business and Policy Manager, Mark Hughes.
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Content ArticleThe All-Party Parliamentary Group (APPG) on Coronavirus was set up in July 2020 to conduct a rapid inquiry into the UK Government's handling of the COVID-19 pandemic. It's purpose is to ensure that lessons are learnt from the UK Government's handling of the coronavirus outbreak to date, and to issue recommendations to the UK Government so that its preparedness and response may be improved in the future. This is the biggest review to date of the UK response to the pandemic. It comes with 71 key findings and 44 recommendations to government. In total, the APPG spoke with 65 witnesses and held 30+ hours worth of public evidence sessions streamed on social media. They received and processed just under 3,000 separate evidence submissions.
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Content ArticleIn this letter to the British Medical Journal, a group of clinicians call for thorough assessment and investigation for patients with Long COVID, highlighting that many were initially advised to 'stay at home' and were unable to access usual care. The authors note: "Pathological consequences such as myocarditis or a thromboembolic episode may explain symptoms, and these have been noted to occur months after onset in long covid support groups. The medical profession needs to evolve rapid transformative pathways to deal with the long term sequelae of covid-19 that include full investigation of patients." To read the letter in full, follow the link below.
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Engaging Long COVID patients (30 November 2020)
Patient Safety Learning posted an article in Blogs
Patient Safety Learning looks at some of the concerns facing people living with Long COVID in this blog for the Patient Information Forum.- Posted
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Content ArticleIn response to the rapid spread of COVID-19, this paper from Tamar Wildwing and Nicole Holt provides health professionals with better accessibility to available evidence, summarising findings from a systematic overview of systematic reviews of the neurological symptoms seen in patients with COVID-19. Implications of so-called Long Covid on neurological services and primary care and similarities with other neurological disorders are discussed. Note: This article is a preprint and has not yet been peer-reviewed.
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Content ArticleAs research into the long-term impact of COVID-19 continues, this guide from the Royal College of Nursing explores the symptoms and how clinicians can support their patients’ recovery. Topics covered: Post-viral fatigue Fluctuating multi-system symptoms Lasting organ damage Post-intensive care syndrome Mental health Learning and training
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Content ArticleStu King is is joined by Dr Nisreen Alwan and Prof Susan Michie. Nisreen is Associate Professor in Public Health, University of Southampton. Susan is Director, UCL Centre for Behaviour Change & a committee member of Independent Sage. In this podcast, Nisreen shares her experience of long COVID, what it means and its effects. They look at how both those with long COVID and healthcare workers are affected - how the range of symptoms can be difficult to diagnose, causing anxiety. Plus, the challenge for patients of managing with such unpredictability. Nisreen and Susan discuss the evidence of who is at risk, including young people. And how the public messaging around COVID could do more to alert this group of the risks to their health & wellbeing. Nisreen shares the support available through healthcare and peer support. And Susan shares how indieSAGE will be discussing it in order to advise the government.
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Content ArticleBack in April the ME Association (MEA) became aware of an increasing number of people who had been ill with COVID-19 and were not improving, even after several weeks. Almost all had been self-managed at home with an illness that mostly varied from mild to moderate in severity, but not requiring hospital admission. Most had debilitating fatigue, sometimes with continuing COVID-19 symptoms involving the lungs or heart in particular. Some had symptoms that are more consistent with the sort of post viral fatigue syndromes that may precede ME/ CFS. Five months on and we are now in a situation where some people are being given a diagnosis, or a possible diagnosis, of post COVID-19 ME/CFS. Back in April the ME Association produced an MEA guide to post COVID fatigue and post COVID fatigue syndromes. This information and guidance has now been fully updated to cover all the developments that have occurred since then.
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Content ArticleWith delays to promised support and trusts accused of penalising staff during their recovery, HSJ dig into why the NHS must provide support sooner rather than later for those experiencing Long-COVID. Patient Safety Learning has recently published a blog calling for better information and engagement with patients who have Long COVID: Clear NHS plan needed to reassure Long COVID patients. We have also co-produced a patient information leaflet with the Royal College of General Practitioners, to help patients understand what they can expect from their GP. To listen to the HSJ podcast, click on the link below.
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Content ArticleEach year, Carers UK carries out a survey of carers to understand the state of caring in the UK, and this is the largest State of Caring survey carried out by Carers UK to date. Over 8,500 carers and former carers shared their experiences.
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Content ArticleThe UK Health Security Agency (UKHSA) has undertaken a rapid evidence review looking at the effects of vaccination against Long COVID or post-COVID symptoms. The review includes 15 UK and international studies that were undertaken up until January 2022. An estimated 2% of the UK population have reported symptoms of long COVID or post-COVID syndrome, which can last for more than 4 weeks after their initial infection. The three most common symptoms are fatigue, shortness of breath and muscle or joint pain. Eight of the studies in the review looked at the effect of vaccinations administered before infection. Most of these studies suggest that vaccinated people (1 or 2 doses) were less likely to develop symptoms of long COVID following infection compared with unvaccinated people – in the short term and long term (4 weeks up until 6 months after infection).
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Content ArticleIn this blog, Aleyah Babb-Benjamin, Outreach and Insight Manager at National Voices, shares insights from a Long Covid Webinar event that looked at how to develop a community-focussed response.
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Content ArticleThis guideline developed by the World Health Organization (WHO) is intended for healthcare professionals involved in the care of patients with suspected or confirmed Covid-19. It is not meant to replace clinical judgment or specialist consultation, but rather to strengthen frontline clinical management and the public health response. Considerations for special and vulnerable populations, such as paediatric patients, older people and pregnant women, are highlighted throughout the text. This guideline is a product of the contributions of several WHO team members and independent experts from all over the world.
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