Back in April the ME Association (MEA) became aware of an increasing number of people who had been ill with COVID-19 and were not improving, even after several weeks. Almost all had been self-managed at home with an illness that mostly varied from mild to moderate in severity, but not requiring hospital admission. Most had debilitating fatigue, sometimes with continuing COVID-19 symptoms involving the lungs or heart in particular. Some had symptoms that are more consistent with the sort of post viral fatigue syndromes that may precede ME/ CFS.
Five months on and we are now in a situation where some people are being given a diagnosis, or a possible diagnosis, of post COVID-19 ME/CFS. Back in April the ME Association produced an MEA guide to post COVID fatigue and post COVID fatigue syndromes. This information and guidance has now been fully updated to cover all the developments that have occurred since then.