Jump to content
  • Content Count

    3
  • Joined

  • Last visited

Blodwen

Members

Community Reputation

0 Novice

About Blodwen

  • Rank
    Starter

Profile Information

  • First name
    Deborah
  • Last name
    Clarke
  • Country
    United Kingdom

About me

  • About me
    I’ve experienced serious life changing complications following surgery. I’m therefore very interested in patient safety.

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. Content Article Comment
    Really interesting article and one that resonates deeply with me. Before I continue I’d like to say my heart goes out to all who have lost love ones, so tragic and I’m so sorry. i had catastrophic surgical complications which left me unable to eat or drink ( I was vein fed for months but I can now eat ), spent months in hospital, suffered respiratory failure and sepsis. Five years on im still broken physically and mentally ( I have a very complex abdominal fistula, a sight threatening eye condition which is linked to the bowel problem and PTSD, depression and anxiety. When it happened it was somehow normalised and I was made to feel I should be grateful to be alive not sad my health had been so severely compromised. I never pursued it as I was too traumatised. I suppose there are two types of harm, where someone is to blame or when it’s ‘one of those things’. I was even told ‘ well you signed the consent form’ ( not by my consultant who is very kind). It’s been hell on Earth and still is yet there is no help. I’m now so traumatised about going back into hospital , I keep putting a much needed procedure off. I think things will get worse for people like me after Covid as there will be a lot of traumatised people out there. I am told ‘oh what happened to you is very rare’ ( so it doesn’t count ), to which I sometimes say ‘it’s only rare until it happens to you’. sorry if my comment isn’t appropriate, I can't imagine how it feels to lose someone through harm and don’t pretend to. I have lost myself though in all of this and my husband has lost his wife. I feel invisible and irrelevant.
  2. Community Post
    Hi I had a hysterectomy that caused life changing complications. It’s a long story but I ended up with a fistula which means I have a connection from my small bowel to skin, it’s a real health burden. I have 3 bags. When they tried to fix the fistula two years later, that surgery initially went ok but then I had to go back to theatre for an anastomotic leak . I returned to the ward and felt awful, ‘wanted to die’ awful. I didn’t feel believed and as the week went on I deteriorated. I had a naso gastric tube in as my gut was on stop, after a nurse aspirated the tube the drainage stopped - I got worse eventually suffering respiratory arrest. I could not breathe yet I was told I was having a panic attack until she saw the SATS reading of 68. I ended up in ICU minutes from death. I’ve never recovered and am now terrified of hospitals. I don’t think I will ever feel safe again, difficult because I still have the fistula and have to spend a lot of time in hospital.
×