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Showing results for tags 'Recovery'.
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Content ArticleMyalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS) is characterised by persistent and disabling fatigue, exercise intolerance, cognitive difficulty, and musculoskeletal/joint pain. Post-exertional malaise is a worsening of these symptoms after a physical or mental exertion and is considered a central feature of the illness. Scant observations in the available literature provide qualitative assessments of post-exertional malaise in patients with myalgic encephalomyelitis/chronic fatigue syndrome. To enhance our understanding, Stussman et al. formed focus groups and listened to patients’ experiences to better understand post-extertional malaise. The authors found that the experience of post-exertional malaise in ME/CFS varies greatly between individuals and leads to a diminished quality of life. ME/CFS patients describe post-exertional malaise as all-encompassing with symptoms affecting every part of the body, difficult to predict or manage, and requiring complete bedrest to fully or partially recover. Given the extensive variability in patients, further research identifying subtypes of post-exertional malaise could lead to better targeted therapeutic options.
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Content ArticlePatient Safety Learning has been raising awareness of the safety concerns surrounding the care and treatment of people with persisting symptoms of COVID-19 long after initial infection, sometimes referred to as "long haulers" or having "Long COVID". We recently published a joint blog with patient group Long Covid Support, outlining our concerns and calling for a more coordinated response, led by a dedicated Long COVID Minister. Yahoo News senior editor Ed Hornick has been fighting the lingering symptoms of COVID-19 for over 10 months. "I have abnormal heart, gastrointestinal, and kidney functioning. I sleep with oxygen. Daily debilitating migraine headaches seem to be at a pain level 12; a noticeable tremor in my left hand comes and goes, and my leg muscles twitch uncontrollably. I get so dizzy from standing up that I nearly pass out. I’m often hit with a sense of jamais vu, the big sister of deja vu. I forget friends’ names and often repeat the same story in a conversation." Follow the link below to read his full story on Yahoo Life.
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Content ArticleAccording to the Office for National Statistics (ONS), around one in five people who tested positive for COVID-19 had symptoms that lasted for five weeks or longer, and one in 10 people had symptoms that lasted for 12 weeks or more. This article, published in Which, looks at some of the challenges facing people living with persisting symptoms months after their initial infection and provides tips for accessing support. Content includes: What is Long COVID? Talking to your GP and specialist referrals Long COVID clinics Managing Long COVID at home Support groups and research projects Financial support Living with Long COVID – Francesca’s story How to support someone with Long COVID.
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Content ArticleThis blog, published in the Journal of Orthopaedic and Sports Physiotherapy, is written by a group of rehabilitation professionals with personal experience of Long COVID. Professionally, they would often advocate for exercise as a first-line intervention. However, in their personal lives they have found themselves contradicting their professional recommendations. In this blog blog post, they share their: battle adapting to an altered lifereluctant acceptance of reduced function (even temporary) to balance rest and usual activities fear of permanent reductions in physical and cognitive abilities.
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Content ArticleThe scale of the emergency response to the COVID-19 pandemic has been extraordinary, but what comes next? The King's Fund spoke with people involved in response efforts for disasters from around the world, from the Christchurch earthquakes in New Zealand to the Grenfell Tower fire in London, to understand what the health and care system can learn from the experience of recovery from other disasters as it responds to the pandemic.
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Content ArticleIn The Lancet correspondence, Norton and colleagues on behalf of the ISARIC and GloPID-R Long COVID Forum Working Group, write following an international, multistakeholder forum, in which peoples’ voices were central, to expand the call to action and to identify how we can prevent long COVID from becoming the long-lasting legacy of COVID-19.
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Content Article“Long Covid” was first used by Elisa Perego as a Twitter hashtag in May to describe her own experience of a multiphasic, cyclical condition that differed in time course and symptomatology from the bi-phasic pathway discussed in early scientific papers, which focused on hospitalised patients. Just three months later, following intense advocacy by patients across the world, this patient made term has been taken up by powerful actors, including the World Health Organization. Politicians have used it too: Matt Hancock, UK health secretary, explained to a parliamentary committee that “the impact of long covid can be really debilitating for a long period of time.” “Long Covid” has clearly struck a chord. However, it’s not the only term being used to describe persistent symptoms: we’ve also seen post-acute COVID-19, postcovid syndrome, and chronic COVID-19. In this BMJ Opinion article, Elizabeth Perego and colleagues explains why, as patients and professionals, they see “Long Covid” as better able to navigate the socio-political, as well as clinical and public health challenges, posed by the pandemic in the coming month.
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Content ArticleA study from Chamberlain et al. examined post-traumatic stress disorder (PTSD) symptoms in 13 049 survivors of suspected or confirmed COVID-19, from the UK general population, as a function of severity and hospital admission status. Compared with mild COVID-19, significantly elevated rates of PTSD symptoms were identified in those requiring medical support at home, those requiring hospital admission without ventilation and those requiring hospital admission with ventilator support. Intrusive images were the most prominent elevated symptom. Adequate psychiatric provision for such individuals will be of paramount importance.
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Content ArticleOfficial statistics indicate there are currently hundreds of thousands of people living with Long Covid in the UK. Many of those who contracted Covid-19 at the start of the pandemic are still experiencing significant symptoms almost a year on from their initial infection; some have already passed that grim milestone. Meanwhile, we can expect case numbers of Long Covid to rise significantly as people continue to become infected; recent data shows that at least 1 in 10 people still experience symptoms 12 weeks after initial infection.[1] The implications of Long Covid for individual patients, our health service and wider society are multifaceted, complex and likely to be long-term. There has been some progress to put in place support for people with Long Covid, but many are yet to receive help. Call to action Patient Safety Learning and patient group Long Covid Support are calling for an urgent and significant increase in the scale and pace of the response, and a coordinated, multi-stakeholder approach. We are calling for this to be set up and led by a dedicated Minister for Long Covid, responsible for: Assessment of the issues affecting people with Long Covid, whether or not they were hospitalised (physical and mental health, employment, welfare, education). Delivery plans for meeting the needs of people living with Long Covid. Cross-government coordination and communication. Public information and awareness raising around Long Covid. Data collection, measurement and reporting on the number of adults and children with Long Covid to inform service planning and funding. Identifying research needs, commissioning research and ensuring this informs service delivery. Delivery of a communication and engagement strategy to all key stakeholders.
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Content ArticleThe Health Foundation policy tracker provides a description and timeline of national policy and health system responses to COVID-19 in England in 2020. The full tracker includes data on what changes have been introduced, when, why, and by whom – as well as how these changes have been communicated by policymakers. We track policy changes in five areas – from health and care system changes to wider social and economic policy.
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Content ArticleThe Faculty of Occupational Medicine (FOM) has published guidance for healthcare professionals to assist them in facilitating the return to work of people who are unable to work due to Long-COVID. Follow the link below or download the guidance as a pdf.
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Content ArticleThis letter to the UK Prime Minister and published in the BMJ, was written on behalf of the Long COVID SOS Group. In it, the group call for Boris Johnson to make Long COVID a primary consideration in policy decision making for lifting restrictions.
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Hidden wounds
Stephanie O'Donohue posted an article in Staff safety
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Long Covid week: Parliamentary content
Patient Safety Learning posted an article in Patient recovery
As part of March for Change's efforts to improve the government’s response to COVID-19, Long Covid week (11-15 January 2021) highlighted the experiences of the hundreds of thousands of people living with Long Covid with a briefing for politicians; the first ever Parliamentary debate on Long Covid in the House of Commons; and a live Q&A event on Long covid with a panel of MPs and experts.- Posted
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Times Radio: Long COVID (8 January 2021)
PatientSafetyLearning Team posted an article in Patient recovery
In this section of Kate Borsay's Time Radio programme (listen from 1:08), we hear from three patients who are suffering debilitating and long term symptoms of COVID-19, in some cases more than a year after first feeling unwell. They are joined by former Minister of State (Department of Health), Norman Lamb and Dr David Arnold as they discuss the widespread impact on people's lives, the growing number of people suffering and the need for greater support and resource for this growing crisis. -
Content ArticleA significant number of patients with COVID-19 experience prolonged symptoms, known as Long COVID. Few systematic studies have investigated this population, particularly in outpatient settings. Hence, relatively little is known about symptom makeup and severity, expected clinical course, impact on daily functioning, and return to baseline health. Davis et al. conducted an online survey of people with suspected and confirmed COVID-19, distributed via COVID-19 support groups and social media. Patients with Long COVID reported prolonged, multisystem involvement and significant disability. By seven months, many patients have not yet recovered (mainly from systemic and neurological/cognitive symptoms), have not returned to previous levels of work, and continue to experience significant symptom burden.
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Content ArticleThe Queen’s Nursing Institute has published a resource for community nurses caring for people living with COVID-19. Commissioned by NHS England and NHS Improvement, ‘Living with COVID-19 (Long Covid) and Beyond’ provides information to support nurses working in community, care homes and primary care and also to the wider multi-disciplinary team including clinical knowledge, care responses and skills when caring for people during their recovery and rehabilitation. It is predicted that there will be a ‘new wave’ of physical, mental and emotional health challenges as individuals enter recovery from COVID-19 infection – and for some this is combined with issues resulting from the social and economic impact of lockdown, such as isolation and unemployment. The resource also aims to help nurses assist people, families, carers and employers to work towards managing post COVID-19 symptoms, regaining everyday life activities and returning to independent living wherever possible. It includes information on physical care, psychological and neuro-psychological care, social impact and features several case studies.
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Channel 4: Surviving Covid (26 November 2020)
Patient Safety Learning posted an article in Coronavirus (COVID-19)
Four patients lie in comas in the Intensive Care Unit (ICU) at King's College Hospital in south London in March 2020. Each one has been struck down by COVID-19 during Britain's first surge. This intimate, feature-length observational documentary follows their stories - and their families' stories - over six months. -
Content ArticleThis guideline covers identifying, assessing and managing the long-term effects of COVID-19, often described as ‘Long COVID’. It makes recommendations about care in all healthcare settings for adults, children and young people who have new or ongoing symptoms 4 weeks or more after the start of acute COVID-19. It also includes advice on organising services for Long COVID.
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The Long Covid Forum 2020 video (12 December 2020)
Patient Safety Learning posted an article in Patient recovery
Coverage from the Long Covid Forum 2020, in association with ISARIC and GLOPID-R LongCovid.org. -
Content ArticleIn this opinion piece, authors highlight the growing cohort of patients who are suffering symptoms many months after their initial COVID-19 infection and the increasing demand on GP services. They also highlight a need for studies that can illuminate the underlying mechanism and for insights into the nature of this condition, how long it’s likely to go on for, what can be done about it, and through which clinical specialties. "Many estimates of long covid suggest that greater than 10% of acute cases have features that do not resolve over the subsequent months. Extrapolated to the current global burden of covid-19, this suggests potentially over five million current "long haulers"."
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COVID-19: COGER Study (30 November 2020)
Patient Safety Learning posted an article in Data, research and statistics
The COGER study is collecting data to gain insight into the course of functional and medical recovery in older people affected by COVID-19 participating in rehabilitation across Europe. -
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Coronavirus Recovery: Breathing Exercises
Claire Cox posted an article in Patient recovery
The coronavirus that causes COVID-19 attacks the lungs and respiratory system, sometimes resulting in significant damage. COVID-19 often leads to pneumonia and even acute respiratory distress syndrome (ARDS), a severe lung injury. Recovering lung function is possible but can require therapy and exercises for months after the infection is treated.- Posted
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Engaging Long COVID patients (30 November 2020)
Patient Safety Learning posted an article in Blogs
Patient Safety Learning looks at some of the concerns facing people living with Long COVID in this blog for the Patient Information Forum.- Posted
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Content ArticleAs research into the long-term impact of COVID-19 continues, this guide from the Royal College of Nursing explores the symptoms and how clinicians can support their patients’ recovery. Topics covered: Post-viral fatigue Fluctuating multi-system symptoms Lasting organ damage Post-intensive care syndrome Mental health Learning and training
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