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Content ArticleThe National Centre for Social Research’s (NatCen’s) British Social Attitudes (BSA) survey has been conducted annually since 1983. Each year the survey asks people what it's like to live in Britain and what they think about how Britain is run, including measuring levels of public satisfaction with the health and care services. The most recent survey was carried out between 7 September and 30 October 2022 and asked a nationally representative sample (across England, Scotland and Wales) of 3,362 people about their satisfaction with the National Health Service (NHS) and social care services overall, and 1,187 people about their satisfaction with specific NHS services, as well as their views on NHS funding. This report highlights the key findings of the survey, which was jointly sponsored this year by The King's Fund and the Nuffield Trust.
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Content ArticleHow does the public view the state of the health and care service? After political turmoil in Westminster, do people think the Government has the policies to set the NHS on the right course? With the health service under so much strain, do people remain committed to its founding principles? This long read by The Health Foundation presents its analysis of public perceptions research conducted with Ipsos that tracks the public’s views on health and social care in the UK every six months. The survey was conducted via Ipsos’ UK KnowledgePanel between 24 and 30 November 2022, with 2,063 people aged 16 and older across the UK.
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NRAS - SMILE-RA e-learning for patients
Patient-Safety-Learning posted an article in Patient engagement
SMILE (Self-Management Individualised Learning Environment) is an e-learning experience for people with rheumatoid arthritis (RA) who want to learn more about RA, its treatments and how to become good at self-managing. Each module is on a particular theme or subject and takes between 20 mins and half an hour to complete.- Posted
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Content ArticleThis article in BMJ Quality & Safety looks at letters of compliment from patients to NHS staff, recognising their role in identifying and encouraging high quality healthcare. The authors examined compliment letters from patients and identified: why patients wrote them which activities they complimented which members of staff the feedback was aimed at. The study found that 77% of letters complimented staff on their relationship with the patient, 50% on clinical work and 30% on management. Many letters commented on staff going above and beyond their role to help patients and most letters had the joint aims of acknowledging and promoting good practice. The authors conclude that by acknowledging, rewarding and promoting positive practice, compliment letters can contribute to healthcare services by promoting positive behaviours and giving staff social recognition.
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Content ArticleA Learning Health System (LHS) is a model of how routinely collected health data can be used to improve care, creating ‘virtuous cycles’ between data and improvement. This requires the active involvement of health service stakeholders, including patients themselves. However, to date, research has explored patients being ‘data donors’ rather than considering patients as active contributors. This study in the journal Health Expectations aimed to understand how patients should be actively involved in a LHS.
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Content ArticleYou're still entitled to free NHS care if you choose to pay for additional private care. This guidance from the NHS outlines how receiving both private care might affect treatment on the NHS. It looks at the following points: What does 'as clear a separation as possible' mean? Receiving private and NHS care at the same time What treatments can my doctor tell me about? What if I have complications?
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Content ArticlePatient (or lived experience) leadership involves people affected by life-changing illness, injury or disability becoming equal partners in NHS decision-making. This expert briefing by patient leadership champion David Gilbert highlights the most significant developments in the field of patient leadership.
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Content ArticleIn this blog, peer researchers Saffron, Bianca and Alysha describe their involvement in a study about violence and mental health funded by the UKRI Violence, Abuse and Mental Health Network. The study looked at how adolescents’ experiences of violence and neighbourhood disorder—such as vandalism and muggings—affects their mental health as they move into adulthood. As peer researchers, they helped analyse data and used their lived experience to interpret the findings and co-author an academic research paper. They highlight the value of involving people with relevant lived experience in research studies.
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Content ArticleSafety communication refers to the sharing of safety information within organisations in order to mitigate hazards and improve risk management. External stakeholders, such as patients and carers, also communicate safety information to healthcare organisations. This article in the Journal of Risk Research examines the nature of safety communication behaviours seen in patients and their families by identifying and examining 410 narrative accounts. The author found that the success of patient and family safety communication in reducing risk was variable. Problems in hospital safety culture such as high workloads and downplaying safety problems, meant that information provided was often not acted upon.
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Content ArticleThere is a paradox of representation in public involvement in research; public contributors are seen as either too naïve to meaningfully contribute or too knowledgeable to represent ‘the average patient’. More expert contributors who have experience in research can therefore be a target for criticism. This study in the journal Health Expectations aimed to examine how representation was discussed in two different scenarios—expert involvement and lived experience. The authors analysed the case of a Lived Experience Advisory Panel (LEAP) chosen for direct personal experience of a topic and the case of an expert Patient and Public Involvement (PPI) panel. They concluded that researchers tend to enact a confirmation logic that seeks a simple, unified patient voice to legitimise decisions. Contributors are therefore limited in their ability to realise a synthesis logic that would actively blend different types of knowledge.
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