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Found 266 results
  1. Content Article
    The Long Covid Plan 2021/22 builds on the previous five-point plan announced in October 2020 and outlines 10 key next steps to be taken by the NHS to support people living with Long Covid. The plan highlights the need for equity of access, outcomes and experience in Long Covid support, as well as committing to extending the Your COVID Recovery website, collecting and publishing data.
  2. Content Article
    More than a million people in the UK are now living with prolonged symptoms of Covid-19,[1] also referred to as Long Covid, including at least 122,000 NHS staff.[2] With many struggling to come to terms with life-changing health challenges, Long Covid is considered by some to be the next pandemic. Good health information has the power to educate, influence and clarify; all of which are critical to effectively responding to public health crises and keeping patients safe. But the absence of good information can leave patients, staff and the wider public feeling confused and unsupported, and can widen health inequalities.  In this blog, Patient Safety Learning has identified four key areas where better information could help improve care for those living with Long Covid: Symptoms of Long Covid Long Covid assessment centres Education and awareness Performance and effectiveness.
  3. News Article
    People who remain chronically ill after Covid infections in England have had to wait months for appointments and treatment at specialist clinics set up to handle the surge in patients with long Covid. MPs called on Matt Hancock, the health secretary, to explain the lengthy waiting times and what they described as a “shameful postcode lottery” which left some patients facing delays of more than four months before being assessed at a specialist centre while others were seen within days. NHS England announced in December that people with long Covid, or post-Covid syndrome, could seek help at more than 60 specialist clinics. But despite government assertions in January that the network of 69 centres was already operating, the all-party parliamentary group on coronavirus found that some clinics were still not up and running three months later. Freedom of information requests submitted to NHS trusts revealed that while some clinics had opened and were seeing patients, others had been delayed by the second wave of infections in January. Read full story Source: The Guardian, 30 May 2021
  4. Content Article
    Latest figures show more than a million people in Britain are suffering from Long Covid. For many the condition is completely debilitating. The extreme fatigue, breathing difficulties, brain-fog is forcing hundreds of thousands of previously fit, working people on to long term sick. File on 4 hears from frontline workers who kept Britain going through the pandemic but now feel abandoned. Others reveal how they’ve felt pressurised to return to work even though they’re very ill. Listen hereFurther reading that may be of interest:Long Covid Minister needed to respond to growing crisis Promises of Long Covid support have not materialised (a blog by Clare Rayner)My experience of suspected 'Long COVID' (by Dr Jake Suett)
  5. News Article
    On Christmas Day, Gail Jackson’s 16-year-old daughter said she was in so much pain she thought she would die. Liliana had been briefly admitted to hospital with Covid in September. Her symptoms never went away and, as time went on, new ones had emerged. “For months she had a relentless, agonising headache, nausea, tinnitus, fatigue and insomnia, but the worst thing was the agonising nerve pain,” said Jackson. “I couldn’t even touch her without her screaming in pain.” On Christmas morning, Jackson drove to hospital with her daughter vomiting from pain in the passenger seat. When they got to the hospital, however, the A&E doctor said there was no such thing as long Covid in children. “He said she just needed to go home and get on with her life,” Jackson said. “It was jaw-dropping.” It is extremely rare for children and young people to contract severe Covid, but recent research has shown that even mild or asymptomatic infection can lead to long Covid in children. A study at UCL is investigating long Covid in 11- to 17-year-olds who were not hospitalised with the disease. The National Institute for Health and Care Excellence (NICE) has recommended more research to produce guidance on how children and young people are affected and how they can be treated. However, there is no case definition of long Covid in children and young people in the way there is in adults. Read full story Source: The Independent, 3 May 2021
  6. Content Article
    A recording of a recent BMJ webinar for clinicians. researchers and policy makers on post-covid conditions.
  7. Content Article
    Clare Rayner is a retired occupational health doctor who caught Covid-19 in March 2020. Clare has since worked with medical colleagues to raise awareness of their concerns associated with prolonged symptoms, also referred to as Long Covid. They have also contributed to the NHS England (NHSE) Long Covid Taskforce as patient/patient group representatives. One year on from her initial infection, Clare draws on personal and professional insight to explain why people living with Long Covid continue to feel let down, abandoned and frightened. 
  8. Content Article
    This work from Nurek et al. aims to provide a rapid expert guide for post Covid-19 condition ('long covid') clinical services. In the absence of research into mechanisms, therapies and care pathways, yet faced with an urgent need, guidance based on “emerging experience” is required.
  9. News Article
    More than 80 new clinics to assess patients suffering with symptoms of Long Covid are to be opened by the NHS by the end of this month with an extra investment of £24m. NHS England chief executive Sir Simon Stevens said the health service must “continue to expand its offer for Long Covid” adding there will be even more funding earmarked for the problem in the future. Speaking at the Health Service Journal’s leadership congress on Wednesday, Sir Simon said: “We have 69 clinics identified last year and we will have 83 long Covid clinics in place by the end of this month, so a significant expansion there. “We will be backing that with at least £24 million revenue funding going into this New Year, up from the £10 million announced last year, and there will be more to come on the back of that as well.” Recent estimates by the Office for National Statistics found more than a million people could be experiencing long Covid beyond four weeks with 674,000 people saying it was affecting their day to day lives. Almost 200,000 people have said their ability to carry out normal activities has been severely limited by the condition. Read full story Source: The Independent, 14 April 2021
  10. Content Article
    This pack has been created by the Long Covid Kids advocacy group. It provides Headteachers with evidence and information to aid the understanding of COVID-19 in children, transmission and the importance of mitigating risk to reduce long-term health implications for children and staff.
  11. News Article
    Lyth Hishmeh kept feeling ill months after contracting coronavirus a year ago in March. He had chest pain and couldn't concentrate. At 26 years old, the former regular runner was fatigued and breathless, struggling to function properly. Yet medical professionals kept telling him he simply could not still be ill. "They were telling me it's all in my head," he said. For Hishmeh who lives in London and many sufferers of long Covid, proving they are sick has become a big part of trying to get better. Another Londoner, Monique Jackson, has lost count of the number of times her pain was described as 'just anxiety.' The 32-year old illustrator was repeatedly told by medical professionals to go to the accidents and emergency, only to be discharged soon after. "I felt like I was wasting people's time, that people either didn't believe me ... or the ones who were sympathetic and supportive said 'we don't know, it's a new disease and we just don't know,'" she said. Clinics are springing up around the country for what some call a potential second pandemic: Long Covid. Learning that they were not alone, that other people were experiencing the same issues, was a huge revelation for both Hishmeh and Jackson. This was not just in their heads. They were not imagining the pain. They really were sick. Read full story Source: CNN Health, 11 April 2021
  12. Content Article
    Space From Covid programme is made up of six modules, each addressing issues you may be experiencing due to the COVID-19 Pandemic. Each module provides clinically-backed support for trouble sleeping, coping with stress, developing mindfulness, financial worries and experiencing grief and loss. SilverCloud is offering this service completely free of charge and for anyone to use. The average module takes 30 minutes to complete and is accessible 24/7 from a smartphone, tablet or computer.
  13. News Article
    Health coach Jasmine Hayer had to give up her life in London and move back in with her parents after catching Covid. Now she is focused on a twin goal - battling back to health while helping others get the right treatment for Long Covid. Dr William Man, the head of the Royal Brompton Hospital's chest clinic, started treating her in December, as part of a clinic seeing 100 severe long Covid cases in the UK. Jasmine describes it as a "complete game changer". However, she worries that other so-called "long haulers" are not getting the help they need because they face "such a battle" to be taken seriously. She decided to start a blog to document her symptoms and wants to share her story as widely as possible in the hope of helping others. "I've had messages from around the world and I was so happy to hear that one girl has shown her doctor my blog and he is giving her more tests as a result," she says. "I know how lonely and scary it is when you are fighting to be believed. You are literally on your own." Read full story Source: BBC News, 7 April 2021
  14. News Article
    Long Covid patients have voiced growing frustration at a “postcode lottery” in clinical support for debilitating symptoms, with some areas of the UK offering no specialist clinics more than a year after coronavirus took hold. Other sufferers said they were disappointed by long Covid clinics investigating certain symptoms only, with no comprehensive treatment plan. Official figures suggest there are almost 700,000 Britons with Covid symptoms lasting over three months. In October, NHS England announced more than £10m for a network of clinics bringing together doctors, nurses, therapists and other NHS staff to conduct physical and psychological assessments and recommend treatments for long Covid patients. Additional local funding would also be available to help establish a clinic in every area, the NHS England chief executive, Simon Stevens, said. By December, 69 clinics had been set up in England with a further 12 sites earmarked to launch in January. But Louise Barnes, founder of the Post Acute Covid Syndrome 19 (Pacs19) patient advocacy group, said a survey of 200 British members revealed about 90% had not been able to access a clinic because there wasn’t one available, their GP could not refer them or they were declined without explanation. Others were disappointed by the type of services on offer. Barnes said: “Patients in the UK have waited going on a year to get support for the multitude of symptoms they’ve been experiencing. To finally think you are going to get referred to a clinic but your GP tells you they don’t have any information, or you get there to find it’s a ‘respiratory-only clinic’ or only staffed by physiotherapists leaves them feeling despondent. For the most part, sadly, patients are coming away massively feeling let down and with no viable treatment plan offered – even a rudimentary one, whilst a treatment is found." Read full story Source: The Guardian, 6 April 2021
  15. Content Article
    In this episode of Covid in the News, hosts Monique and Tom spoke to Ondine Sherwood, co-founder of patient advocacy and support group LongCovidSOS. They talk about the patient agenda, how community-driven research has changed since the start of the pandemic, Long Covid and policy, and the key questions to be answered in the coming months for longhaulers.
  16. Content Article
    In this video from The Guardian, we hear from University College London hospital's Long COVID clinic where patients are treated for a multitude of different chronic symptoms ranging from ongoing fatigue to issues with taste and smell. Some patients have been suffering for months, and the toll on their mental and physical health has been significant.
  17. Content Article
    A recent NIHR report sets out the state of knowledge on Long Covid, focussing on recent published research framed around questions of the nature and causes of Long Covid and approaches to treatment. Symptoms might include, but not be limited to brain fog, anxiety, breathlessness, fatigue, muscle pain, palpitations and chest heaviness. We still know very little about the clusters and patterns of these symptoms and what this might mean for ongoing treatment and monitoring. In this article, Tara Lamont emphasises the importance of people with Long Covid being involved in these studies pushing these issues to the forefront.
  18. Content Article
    This leaflet offers guidance for workers from Occupational Health Professionals on how to manage getting back to work after COVID-19 infection and Long COVID. 
  19. Content Article
    This report from Long Covid Support summarises patient's experiences of Long Covid.
  20. News Article
    Lasting effects of infection from coronavirus are more common in women and children than expected, with at least 10% of people infected suffering persistent symptoms for months, a new review has found. Experts at the National Institute for Health Research (NIHR) examined more than 300 separate scientific studies for the analysis. It found many patients reported struggling to access testing and help from the NHS to treat their symptoms, which varied between patients, suggesting long Covid is a group of four possible syndromes affecting patients differently. The report said: “Long Covid appears to be more frequent in women and in young people (including children) than might have been expected,” adding other sufferers could be experiencing an active disease, impacting on their organs and causing debilitating symptoms that would need ongoing treatment. In some patients, the effects included neurological changes in their brains while others showed signs of blood clotting and inflammation. Other patients reported anxiety, fatigue and damage to their lungs and heart. It also warned there was evidence some long Covid patients could actually be getting worse, underlining the need to invest in services that will be needed to cope with what could be a long term problem. Read full story Source: The Independent, 16 March 2021
  21. Content Article
    On Wednesday 10 March the Health, Social Care and Sport Committee of the Senedd Cymru - Welsh Parliament held an evidence session on Long COVID. They heard from the patient group Long COVID Wales, academics and professional bodies.
  22. News Article
    Joanna Herman, a consultant in infectious diseases, had high hopes when Boris Johnson announced £10m for long Covid clinics. Five months on, she is yet to be referred to one. "Despite the government recently giving £18.5m research funding for the disease, it feels as though all focus is now on the vaccine and the lifting of lockdown, while those living with long Covid have been largely forgotten," says Joanna. Her initial illness was, by definition, a mild case of Covid: no hospital admission and no risk factors for severe disease. Months later she found herself experiencing crashing post-exertional fatigue, sporadic chest pains and a brain that felt it was only half functioning. And she is not alone. According to a study published last September from researchers at King’s College London, 60,000 people in the UK were likely to have been suffering from long Covid. The actual number is now probably far higher. There are now 69 long Covid clinics up and running across the country, according to the NHS England website. Yet Joanna has not been able to access one – and neither have others she knows with long Covid. Joanna asked doctors in her field what was happening with long Covid clinics in their local areas. She contacted 18 infectious disease colleagues based in teaching hospitals around the country. Of the 16 who responded, 6 had formal long Covid clinics. Some said that provision for the disease was woefully inadequate, while others reported they only saw only patients who had been admitted to hospital with acute COVID-19. In her own local teaching hospital, funding for long Covid patients is scattered across various departments and there is no dedicated team for these patients. "...it feels as though many long-haulers remain in a post-viral sea, looking for a mooring in the hope that something can be offered. We’ve known about this disease since last summer, and it has been officially recognised since October, but we’re only just starting to understand how to support those living with it" Read full story Source: The Guardian, 10 March 2021
  23. News Article
    Sufferers say they have had little specialist help despite NHS England setting up dedicated clinics. “It’s not that I feel I have been abandoned, I think that is perfectly obvious,” says Rachel Pope. “If you speak to any long Covid patient, they have been abandoned.” Until exactly a year ago – 5 March 2020 – Pope was “an incredibly fit woman”. A senior lecturer in European prehistory at the University of Liverpool, her work and lifestyle were very active. But after falling ill to Covid, she spent four months unable to walk, then three more when she could manage little more than “a sort of shuffle”. She still has a host of symptoms, “but the most debilitating is the fact that I still can’t do more than 2,000 steps in a day. Until a few weeks ago, I was still choking every day. There’s a lot of nasty stuff that [long Covid sufferers] are living with, without treatment. “It’s not a great situation to be in. I mean, we didn’t die. But this isn’t exactly living either.” A year into the pandemic, accounts such as Pope’s have become dispiritingly familiar, as the experiences of the many thousands who have struggled for months with long Covid, often alone and unsupported, are emerging. Read full story Source: The Guardian, 5 March 2021
  24. Content Article
    This is a video recording of a oral evidence session of the All-Party Parliamentary Group (APPG) on Coronavirus into the effects of Long COVID in children. This session took place during Long COVID week (11-15 January 2021), which aimed to highlight the experiences of the hundreds of thousands of people living with Long COVID in the UK.
  25. News Article
    Some 1 in 10 people still experience persistent ill health 12 weeks after having COVID-19, termed “long COVID” or post-COVID conditions. A new policy brief from the European Observatory on Health Systems and Policies documents responses to post-COVID conditions in different countries of the WHO European Region and looks at how sufferers, including medical professionals, are driving some of those responses. Written for decision-makers, this brief summarises what is known about the conditions, who and how many people suffer from them, diagnosis and treatment, and how countries are addressing the issue. Commenting on long COVID, WHO Regional Director for Europe Dr Hans Henri P. Kluge said, “COVID-19 has caused a great deal of suffering among people across the Region, with reports of long COVID an extra cause for concern. It’s important that patients reporting with symptoms of long COVID are included as part of the COVID-19 response to mitigate some of the longer-term health impacts of the pandemic. This policy brief makes clear the need for policy-makers to take the lead on this issue.” Read full story Source: WHO, 25 February 2021
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