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News ArticleNearly 2,000 children and teenagers have been left waiting for specialist mental health care for at least a year in Scotland, according to official figures branded “damning” by psychiatrists. New NHS Scotland data has revealed that, at the end of September, there were 1,978 patients who had been waiting 52 weeks or more for a Child and Adolescent Mental Health Services (CAMHS) appointment. That is more than double the 959 young people who were waiting that long the previous September – despite efforts by Nicola Sturgeon’s government to meet its own 2023 target for 90% of young people to receive help within 18 weeks. Ahead of the Holyrood Budget on Thursday, the figures prompted calls from service providers for a “radical transformation of our mental health services” enacted with the same zeal as the response to the coronavirus pandemic and with a focus on earlier interventions to prevent young people “giving up on their futures”. According to the latest figures, there were a total of 11,816 young people waiting for an appointment by the end of September – just 78% of them who had been seen within 18 weeks. Dr Helen Smith, chair of the CAMHS faculty of the Royal College of Psychiatrists in Scotland, said the long waits for help highlighted the “many problems” with these services “across the length and breadth of the country”. “The fact that our vulnerable children and young people are still waiting to be seen is, frankly, not good enough,” Dr Smith said. “We need them to be able to access the right support at the right time, from the correct services.” Read full story Source: The Independent, 8 December 2021
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News Article
Poorly controlled asthma 'increases Covid risk for children'
Patient Safety Learning posted a news article in News
Children with poorly controlled asthma are up to six times more likely to be admitted to hospital with Covid than those without the condition, research has suggested. Scientists involved in the study said 5 to 17-year-olds in this category should be considered a priority for Covid vaccination. About 9,000 children in Scotland would benefit from the jab, researchers said. Vaccines are offered to the over-12s in Scotland, but not to younger children. In the study, poorly controlled asthma was defined as a prior hospital admission for the condition, or being prescribed at least two courses of oral steroids in the last two years. Prof Aziz Sheikh, director of the University of Edinburgh's Usher Institute and Eave II study lead, said: "Our national analysis has found that children with poorly controlled asthma are at much higher risk of Covid-19 hospitalisation. "Children with poorly controlled asthma should therefore be considered a priority for COVID-19 vaccination alongside other high-risk children." Prof Sheikh said it was important to consider both the "risks and benefits" from vaccinations. He added: "Emerging evidence from children aged five and older suggests that COVID-19 vaccines are overall well-tolerated by the vast majority of children." Read full story Source: BBC News, 1 December 2021 -
News ArticleNHS England is set to launch 15 new specialist clinics for children living with severe obesity after the Covid pandemic shone a ‘harsh light’ on the crisis among vulnerable young people. Obesity currently affects one in five children in the UK. Each year, around one thousand children between the age of two to 18-years-old, and their family members, will benefit from the pilot scheme. The scheme will also offer access to dietitians, psychologists, specialist nurses, social workers, youth workers and a children’s doctor. Amanda Pritchard, chief executive of the NHS in England, described the coronavirus pandemic said: “The pandemic has shone a harsh light on obesity - with many vulnerable young people struggling with weight gain during the pandemic. “Left unchecked, obesity can have other very serious consequences, ranging from diabetes to cancer. “This early intervention scheme aims to prevent children and young people enduring a lifetime of ill-health. “The NHS Long Term Plan committed to take more action to help children and young people with their physical and mental health and these new services are a landmark moment in efforts to help them lead longer, healthier and happier lives.” Read full story Source: The Independent, 15 November 2021
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News ArticleLondon’s fragmented children’s cancer services will finally be reformed following a decade of delays and allegations of cover-up by senior officials. NHS England has said it will adopt recommendations that will see the capital’s services brought up to standards already common across the rest of the country, with children’s cancer centres needing to be based in hospitals with full paediatric intensive care units. The changes will be imposed “with no exceptions or special arrangements permitted,” it said in a letter yesterday. This means the Royal Marsden’s children’s service at its base in Sutton, south London, will have to move to a new hospital. Currently sick children who deteriorate at the Marsden’s site have to be rushed by ambulance to St George’s Hospital 40 minutes away. More than 330 children were transferred from the Marsden to other hospitals between 2000 and 2015 and in one year 22 children were transferred for intensive care a total of 31 times, with some experiencing at least three transfers individually. The changes will also affect cancer care at University College London Hospital which links with Great Ormond Street Children’s Hospital. The world-renowned Royal Marsden trust, whose chief executive Dame Cally Palmer is also NHS England’s national cancer director, was at the centre of a cover-up scandal before the COVID-19 pandemic. In 2019, the Health Service Journal revealed a major report, commissioned by NHS bosses in London following the deaths of several children, had been “buried” by NHS England. Read full story Source: The Independent, 12 November 2021
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News Article
Alarm over ‘serious’ delays in diagnosing childhood cancer in England
Patient Safety Learning posted a news article in News
Health experts have raised the alarm over “serious” delays in diagnosing children and young people with cancer, as a study reveals the number found to have the disease during the pandemic fell by almost a fifth. The University of Oxford found a “substantial reduction in childhood, teenage and young adult cancer detection” in England last year. The research, being presented on Friday at the National Cancer Research Institute (NCRI) festival, showed a 17% drop in cases diagnosed in the under-25s last year compared with previous years. The impact of Covid on adults with cancer is well known. However, previously little has been known about the toll on younger patients. As well as the fall in the overall numbers of children diagnosed with cancer, researchers found that even those whose cancer was spotted last year were more likely to have been diagnosed only after being admitted to intensive care. That suggests long delays in accessing care may have made them much sicker, experts say. Read full story Source: The Guardian, 12 November 2021 -
News ArticleA global threat in the form of a measles outbreak is mounting as more than 22 million infants missed their first vaccine dose for the disease in 2020, warned the world’s top health agencies. The World Health Organization (WHO) and the US Centres for Disease Control (CDC), in a joint statement on Wednesday, said the number represents the largest increase in missed vaccinations in two decades. The 22-million figure is three million more than in 2019, “creating dangerous conditions for outbreaks to occur,” according to the agencies. The surveillance of measles cases deteriorated because of the coronavirus pandemic, which resulted in a reported dip in cases by more than 80%t in 2020, the statement said. Measles is one of the most contagious viruses to date. It kills more than 60,000 people a year, mostly young children. But at the same time, the disease is entirely preventable through vaccinations, which have averted more than 30 million deaths from the disease globally. “Large numbers of unvaccinated children, outbreaks of measles, and disease detection and diagnostics diverted to support Covid-19 responses are factors that increase the likelihood of measles-related deaths and serious complications in children,” said Kevin Cain, the CDC’s global immunisation director. Read full story Source: The Independent, 11 November 2021
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News Article
24 children wait year for first cancer appointment in Northern Ireland
Patient Safety Learning posted a news article in News
Twenty-four children in Northern Ireland with confirmed or suspected cancers had to wait over a year for a first appointment, a review has found. The figure, for April, is in a review of child health waiting lists by the Northern Ireland Commissioner for Children and Young People. More than 17,000 children were waiting more than a year to see a hospital consultant for the first time. The commissioner said the waiting times were "terrifying". The review examined official waiting list data for children's health services not published as part of the Department of Health's statistical bulletins. Koulla Yiasouma said that waiting for any health service treatment can and does have a "profound impact on a child's health outcomes, emotional and mental well-being". She said it was "shocking not only for the child but their families too". "Each and every single one of them is a child and each and every single one of them is a child whose life has almost been put on hold, and a family whose life has been put on hold, because they are not getting the most fundamental right of healthcare that they deserve," she said. Read full story Source: BBC News, 19 October 2021 -
News Article
Coronavirus: No increase in severe child cases, paediatricians say
Patient Safety Learning posted a news article in News
Doctors have sought to reassure parents that there has been no increase in the severity of COVID-19 cases among children because of the new variant. The Royal College of Paediatrics and Child Health (RCPCH) said children's wards are not seeing any "significant pressure" from COVID-19. It comes after a London hospital matron told BBC Radio 5 Live of having a ward full of children with coronavirus. Laura Duffel said the surge in cases was "much scarier" than the first wave. Ms Duffel, who has been working on Covid wards since the beginning of the UK's epidemic and specialises in children's intensive care, told 5 Live's Chiles on Friday show that people were "wrong" to say busy hospitals were merely a reflection of normal winter pressures on the NHS. "This wave has just hit us so fast. It's literally in the space of a week that this has gotten so bad," she said. However, doctors denied that the virus is putting significant additional pressure on children's wards across the country. Prof Russell Viner, president of the RCPCH, said: "Children's wards are usually busy in winter. As of now we are not seeing significant pressure from COVID-19 in paediatrics across the UK. "As cases in the community rise there will be a small increase in the number of children we see with Covid-19, but the overwhelming majority of children and young people have no symptoms or very mild illness only. "The new variant appears to affect all ages and, as yet, we are not seeing any greater severity amongst children and young people." Dr Ronny Cheung, a consultant paediatrician at Evelina Children's Hospital, in London, added: "I've been the on-call consultant in a London children's hospital this week. Covid is rife in hospitals, but not among children - and that is corroborated by my colleagues across London." Read full story Source: BBC News, 3 January 2021 -
News Article
Child abuse carried out under guise of medical treatment, report finds
Patient Safety Learning posted a news article in News
Healthcare practitioners who committed child sexual abuse commonly did so under the guise of medical treatment, which went unchallenged by other staff even when unnecessary or inappropriate because of their position of trust, research has found. An independent inquiry into child sexual abuse report into abuse in healthcare settings between the 1960s and 2000s found that perpetrators were most commonly male GPs or healthcare practitioners with routine clinical access to children. As a result their behaviour was not questioned by colleagues, the children or their parents. In many cases patients’ healthcare needs related to physical, psychological and sexual abuse they suffered at home. They spoke of attending health institutions seeking treatment, care and recovery, but were instead subjected to sexual abuse. This included fondling, exposing children to adult sexuality, and violations of privacy. More than half who shared their experiences described suffering sexual abuse by penetration. Read full story Source: The Guardian, 4 December 2020 -
News Article
Great Ormond Street Hospital admits errors led to boy’s death
Patient Safety Learning posted a news article in News
Mistakes by Great Ormond Street contributed to the death of a five-year-old boy, the children’s hospital has admitted – just months after it concluded a legal case with his family in which it denied responsibility. The world-renowned children’s hospital failed to flag results of a crucial blood test, showing that Walif Yafi had a dangerous infection, to doctors at King’s College Hospital where he had been receiving treatment. He died a few weeks later, in September 2017. In September this year, Walif’s parents agreed an out-of-court settlement with Great Ormond Street, which admitted negligence but denied liability for the boy’s death. However, this week the hospital admitted an expert had reviewed the case ahead of the settlement and concluded its actions did contribute to Walif’s death. The hospital said it had been under no duty to share these results with Walif’s parents at the time. Walif had a liver transplant in 2012 after suffering cancer shortly after his birth, and was being overseen by Great Ormond Street as an outpatient, as well as by the transplant team at King’s College Hospital, in south London. On 24 August 2017, he had a routine blood test at Great Ormond Street, which showed he had an adenovirus infection – something that is common in children whose immune system is being suppressed by drugs, as Walif’s was because of his transplant. If untreated, the infection can be deadly. But the blood test result was not communicated to the team at King’s College Hospital. Shortly afterwards, Walif’s health deteriorated and he was admitted to hospital. He was transferred to King’s College Hospital a week later, and it was not until 7 September that the infection was confirmed. By this stage, he was severely unwell and, though he began anti-viral therapy, Walif suffered multiple organ failure from the spread of the infection. On 30 September, he suffered cardiac arrest and died. It was only when approached by The Independent this week that the trust revealed its expert had, in the course of negotiating the settlement with Walif’s parents, determined the hospital did materially contribute to the child’s death. Read full story Source: The Independent, 29 November 2020 -
News ArticleA transgender boy is taking NHS England to court over delays in accessing gender identity treatment. The 14-year-old, who was referred to the UK’s only youth gender identity clinic in October 2019, has been told he may have to wait at least another year to be seen. He said he was experiencing “fear and terror” while he waits for treatment. Young people are currently facing “extensive waits” to see a therapist, with the average delay being 18 months or more, according to the Good Law Project, which is representing the boy. The not-for-profit organisation said the health service was legally required to ensure patients referred to gender identity development services (GIDS) are seen within 18 weeks. Gender clinics for adults across the country have reported similar delays, with the Devon Partnership NHS Trust reporting “lengthy waiting times” while the Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust said patients were facing delays “in excess of 32 months” for an initial appointment and 62 months from referral to treatment. Trusts have blamed a surge in demand as well as reduced capacity, including staffing problems. The teenager involved in the case said in a statement: “The length of the NHS waiting list means the treatments which are essential for my well being are not available to me." “By the time I get to the top of the list it will be too late, and in the meantime I suffer the fear and terror that gender dysphoria causes, every day.” Read full story Source: The Independent, 23 November 2020
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News Article
Long covid: Damage to multiple organs presents in young, low risk patients
Patient Safety Learning posted a news article in News
Young, low risk patients with ongoing symptoms of COVID-19 had signs of damage to multiple organs four months after initially being infected, a preprint study has suggested. Initial data from 201 patients suggest that almost 70% had impairments in one or more organs four months after their initial symptoms of SARS-CoV-2 infection. The results emerged as the NHS announced plans to establish a network of more than 40 long covid specialist clinics across England this month to help patients with long term symptoms of infection. The prospective Coverscan study examined the impact of long covid (persistent symptoms three months post infection) across multiple organs in low risk people who are relatively young and had no major underlying health problems. The research has not yet been peer reviewed and could not establish a causal link between organ impairment and infection. But the authors said the results had “implications not only for [the] burden of long covid but also public health approaches which have assumed low risk in young people with no comorbidities.” Read full story Source: BMJ, 17 November 2020 -
News Article
Thousands fewer children immunised against common diseases because of lockdown
Patient Safety Learning posted a news article in News
Lockdown measures in England led to thousands fewer children receiving vital immunisations for a range of diseases include measles, diphtheria and whooping cough, Public Health England (PHE) has warned. PHE has warned parents they should continue to get their children immunised regardless of lockdown and restrictions brought on by coronavirus. During the first wave of coronavirus the government advised that children should continue to receive vaccinations as scheduled but despite these some appointments were delayed and the numbers of children vaccinated against common diseases fell compared to 2019. PHE looked at data from almost 40% of GP surgeries for use of the common 6-in-1 vaccination for diseases including diphtheria, tetanus, whooping cough, and polio as well as uptake of the measles, mumps and rubella (MMR) vaccine to 19 October. In total 167,322 children had the 6-in-1 vaccine, a drop of 6,600 on the same period in 2019, a fall of almost 4%. A total of 167,670 children had the MMR jab, 4,700 fewer than in 2019, a drop of 2.8%. Although the vaccinations recovered after lockdown the rates are still lower overall than 2019. Dr Mary Ramsay, head of immunisations at Public Health England, said: “Vaccines remain the best defence against infection. It’s essential we maintain the highest possible uptake to prevent a resurgence of serious and sometimes life-threatening diseases. “Routine vaccinations are still available throughout the pandemic – it’s vital that we continue to make it as easy and safe as possible for parents to take their children to appointments.” Read full story Source: The Independent, 11 November 2020 -
News Article
Royal College review warned trust of ‘very significant risk for patient care’
Patient Safety Learning posted a news article in News
A community trust was told to urgently review prescribing of stimulant medications for children after concern that some were posted to families but never arrived. Bridgewater Community Healthcare Foundation Trust was told that sending prescriptions through the post may be a potentially unsafe practice by the Royal College of Paediatrics and Child Health. The warning came in a report from the college after it was invited by the trust to review its community paediatrics service The trust was urged to work with primary care and clinical commissioning groups to establish shared care for children who needed these medications. Stimulant medicines are often used for children with attention deficit hyperactivity disorder. The review also found there was a “a very significant risk for patient care” with letters, reports and prescriptions being delayed or going missing due to “recurrent issues” with the post in the building used by the team covering St Helen’s. It highlighted issues with the safeguarding procedures at the trust, with each locality team having its own processes and handling a small number of cases, and called for urgent work to streamline services. Read full story (paywalled) Source: HSJ, 11 November 2020 -
News ArticleA privately run child and adolescent mental health unit has been closed permanently, with its residents moved elsewhere, after concerns were raised about their safety. The Care Quality Commission (CQC) said it had taken “urgent action to ensure the provider makes immediate and significant improvements” at the Cygnet Hospital in Godden Green, outside Sevenoaks in Kent, after a series of unannounced inspections last month and this month. The hospital had a CAMHs unit with up to 23 beds – details of which have been removed from the company’s website. However, only a small number of beds were occupied and these patients were either discharged or transferred to other hospitals before the unit closed on Monday. Last year Cygnet Health Care also launched a 12 bed female psychiatric intensive care unit on the site. Some of these beds have been commissioned by Kent and Medway NHS and Social Care Partnership Trust since early this year, as there are no NHS female PICU sites in the county. This unit remains open, although the CQC said the concerns raised with it related to the safety of both PICU and CAMHs patients. Karen Bennett-Wilson, the CQC’s head of hospital inspection and lead for mental health in the south, said: “CQC has also worked closely with NHSE/I, Cygnet Healthcare and other local partners who have taken the decision to close the CAMHS unit and move the young people in the service to other care appropriate to their needs." Read full story (paywalled) Source: HSJ, 20 October 2020
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News ArticleParents and professionals have been devastated by the impact of the pandemic on some of the UK’s most vulnerable patients Kelly Stoor gave birth to her daughter, Kaia, 14 weeks early. On 12 March, the midwife held her up for Kelly to see before whisking Kaia off to the neonatal unit for critical care. Kaia became seriously ill and was transferred to a hospital in Southampton, 50 miles away from home, for specialist treatment just before lockdown was imposed on 23 March. While there, she teetered on the edge of life and death for weeks and underwent life-saving surgery twice. The impact on Kelly, her husband, Max, and their other three children has been enormous. Hospital restrictions in April dictated that only one parent was allowed to visit. Both parents were not able not hold their daughter for the first time until 88 days after she was born. “It was extremely difficult,” says Kelly. “I wasn’t allowed to hold her because of Covid. I had to wear gloves if I was going to touch her. We didn’t know if she was going to make it, and Max and I weren’t allowed in together to be with her. There was one time I was with her for three hours and I couldn’t cope any more. I wanted to break.” Kelly is not alone. In the UK, at least 25,000 children are living with conditions that require palliative care support and their lives, along with those of their families, have been upended by the coronavirus pandemic and accompanying restrictions. A report by Rainbow Trust found that lockdown was a distressing experience for many; 80% of those surveyed by the charity in April said their situation was worse or much worse than before lockdown. Nearly 60% of parents, meanwhile, say that their mental health is worse than before the pandemic. Families have had to take on the strain of caring full-time for a child with a life-limiting illness, such as cancer or neurological conditions, with little to no support. There has been no respite, explains Dr Jon Rabbs, a consultant paediatrician and trustee for Rainbow Trust. When lockdown was announced, many community healthcare services had to stop face to face contact and special schools which supported children were also closed. “One of my families is at breaking point, they are so exhausted and worried,” he says. In child healthcare there have been delays, he says. Urgent treatment is always available but follow-up care has been cancelled or delayed in some places. “In my practice we have not missed any significant relapses,” he adds. “But imagine the worry not knowing whether things were going to be OK or not.” Read full story Source: The Guardian, 22 October 2020
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News ArticleYoung people's risk of becoming ill with COVID-19 is tiny - but could the long-term mental health impact of virus restrictions be far more damaging? A growing number of psychologists, psychiatrists and child health experts believe the needs of the young are being ignored in this pandemic. Prof Ellen Townsend, an expert in child and adolescent self-harm and suicide from Nottingham University, says the way students are being treated "is massively damaging for their mental health". "It doesn't make sense to lock up young people," she says. "We have to move past this one disease - a more nuanced approach is needed." She is not alone - a group of UK academics who work with children and adolescents have set up an online noticeboard collecting scientific evidence that these age groups are being forgotten by policy-makers. Problems such as self-harm and anxiety were already on the rise before lockdown, particularly among teenagers, with one in eight children and young people estimated to have a mental health condition. There is a lack of hard evidence, but research suggests growing feelings of loneliness and social isolation during the pandemic have had a negative impact. A study in The Lancet Psychiatry found children's mental health deteriorated most during that period compared with other age groups. More worrying was the "massive drop-off" in troubled children and teenagers being sent to specialist psychiatrists over several months - from 40 a day to four a day, according to the Royal College of Psychiatrists. Although services stayed open during lockdown, either the message didn't get through or people were too frightened to make contact. The fear is that these young people could now become more seriously ill without the help they need. Eating disorders, which have a high death rate, are a particular concern. Read full story Source: BBC News, 10 October 2020
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News ArticleA Dublin teenager has told of his harrowing battle with COVID-19 and is urging other young people to take the disease seriously. Jack Edge, 17, from Rathfarnham, had no underlying health conditions when he contracted the virus in April. Five months on and three hospital admissions later, the Leaving Cert student is still suffering from the "destruction" the virus wreaked on his body. Jack first displayed symptoms of COVID-19 on 15 April and five days later was admitted to Tallaght University Hospital. Within hours of being hospitalised, he was fighting for his life. Jack had to be put on a ventilator to help him breathe for 12 days. As his condition stabilised, he was transferred to a high dependency unit. Jack said: "I couldn't sleep for three days. Every time I closed my eyes, there was just dizziness and loads of colours. "I literally stayed in the bed for 72 hours, just staring at the wall. I had a lot of dark times in the hospital, since I do struggle with anxiety too." "But the care I received was absolutely amazing. They came in and talked to me if I needed to talk, as I would often get lonely, as it was mainly just me in an isolation room." However, surviving COVID-19 was just the first step for Jack. On 28 May, he was readmitted to hospital in excruciating pain. Doctors told him he may have suffered nerve damage associated with the virus. "I’m currently taking 18-20 tablets a day. Tablets for the nerve damage, for pain and for my anxiety. " "I basically have to learn to walk again. I do two to two-and-a-half hours of physio every day, depending on how much energy I have. I wake up some days and I get really upset. I still don’t know why this happened to me or how I got it." Jack hopes that by sharing his story he can raise awareness of the dangers and debilitating long-term effects of COVID-19 for young people. Read full story Source: RTE News, 2 October 2020
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News ArticleDelays at the Great Ormond Street Hospital led to a boy dying an agonising death, a health watchdog has found. Arvind Jain, 13, who had Duchenne Muscular Dystrophy, died in August 2009 after waiting months for an operation. The ombudsman's report found he had "suffered considerable distress" and criticised referral procedures as "chaotic and substandard". The Great Ormond Street Hospital said there were "failings in clinical care". Arvind's sister Shushma said: "To read that he was suffering all the time, that was disgusting. He had been asking us repeatedly if he would get the operation and we would be constantly reassuring him that he would not die." The degenerative disease Arvind, who lived in Cricklewood, north London, suffered from was not immediately life threatening but in January 2009 his condition had become acute enough for him to struggle with swallowing and feeding. He had a temporary medical solution where a tube was inserted through his nose to help him get the required nutrition. He also experienced a number of other medical complications although none of these was considered life-threatening. The permanent solution recommended by his consultant paediatric neurologist was a gastrostomy insertion which would allow Arvind to feed through his stomach. The Great Ormond Street Hospital Trust (GOSH) excels in such procedures, however, a series of communication errors meant despite repeated and urgent requests from his neurological consultant, proper investigations were not carried out into Arvind's suitability for the operation. After five months of delays he and his family were reassured that as soon as he got the operation he would be much more comfortable. Another hospital also offered to carry out the operation in the event that the delays continued. But the surgical team that was due to carry out the operation never managed to assess Arvind. His condition deteriorated to the point where he was not well enough to be operated on and Arvind died on 9 August 2009. The Parliamentary and Health Service Ombudsman's report said he "suffered considerable distress and discomfort". It also describes a series of basic shortcomings in Arvind's care. The report said: "The standard of care provided for Arvind fell so far below the applicable standards as to amount to service failure." Read full story Source: BBC News, 23 September 2020
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News Article
NHS trust investigates cluster of ‘unusual infections’ in children’s hospital
Patient Safety Learning posted a news article in News
A number of “unusual infections” have been discovered among patients at the Royal Aberdeen Children’s Hospital (RACH), prompting investigation by an NHS trust. NHS Grampian said they were taking a “very precautionary approach” and looking for any potential links that these infections could have to the hospital environment. These precautions include relocating some procedures, with the trust also warning that there may be delays in treatment for a small number of patients. They were keen to point out that the hospital will continue to admit and treat patients as normal whilst the investigation is ongoing. An NHS Grampian spokesman explained: “While we investigate the causes of this – and whether or not there is a link to the hospital environment – we are taking a very precautionary approach. Read full story Source: The Independent, 16 May 2021 -
News Article
Millions of pounds to treat young people with eating disorders diverted elsewhere
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Just 10% of money allocated to help treat young people with eating disorders reached the NHS frontline, a new analysis has revealed. The latest data on NHS mental health spending comes amid concern the pandemic has exacerbated eating disorders in young people, sparking a rise in demand. A report commissioned by MPs compiled by the eating disorder charity Beat, using NHS data, shows local clinical commissioning groups (CCGs), who purchase NHS services on behalf of NHS England, spent just £1.1m of the £11m they were given for community eating disorder services in 2019-20. The money was set aside by NHS England to try and tackle increasing referrals and to ensure young people could get treatment. Wera Hobhouse MP, chair of the All-Party Parliamentary Group on Eating Disorders, and which commissioned the work said: “Eating disorders are serious mental illnesses, and we know that early intervention and access to specialist treatment saves lives." “NHS England has continued to allocate extra funding to clinical commissioning groups for children and young people’s community eating disorder services, but this report shows that much more needs to be done to ensure this money reaches the frontline services, particularly now as they face unprecedented numbers of referrals.” Read full story Source: The Independent, 11 May 2021 -
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Children’s lives at risk from failures in asthma care, warns safety watchdog
Patient Safety Learning posted a news article in News
Children with asthma are at risk of avoidable deaths in England because of poor NHS systems and a failure to appreciate the dangers posed by the condition. A new investigation by NHS safety watchdog the Healthcare Safety Investigation Branch (HSIB) has revealed a series of risks to children with asthma, as concerns emerge of the impact of the pandemic on asthma patients more generally. The latest inquiry was sparked by the deaths of three children between 2014 and 2017. All were caused by asthma attacks which were later the subject of warnings by coroners. In each case HSIB said there were missed opportunities to recognise asthma as a life-threatening condition as well as problems with how the children were managed by doctors working in different parts of the NHS. Read full story Source: The Independent, 5 May 2021 -
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‘It’s terrifying’: parents’ struggle to get help for children with long Covid
Patient Safety Learning posted a news article in News
On Christmas Day, Gail Jackson’s 16-year-old daughter said she was in so much pain she thought she would die. Liliana had been briefly admitted to hospital with Covid in September. Her symptoms never went away and, as time went on, new ones had emerged. “For months she had a relentless, agonising headache, nausea, tinnitus, fatigue and insomnia, but the worst thing was the agonising nerve pain,” said Jackson. “I couldn’t even touch her without her screaming in pain.” On Christmas morning, Jackson drove to hospital with her daughter vomiting from pain in the passenger seat. When they got to the hospital, however, the A&E doctor said there was no such thing as long Covid in children. “He said she just needed to go home and get on with her life,” Jackson said. “It was jaw-dropping.” It is extremely rare for children and young people to contract severe Covid, but recent research has shown that even mild or asymptomatic infection can lead to long Covid in children. A study at UCL is investigating long Covid in 11- to 17-year-olds who were not hospitalised with the disease. The National Institute for Health and Care Excellence (NICE) has recommended more research to produce guidance on how children and young people are affected and how they can be treated. However, there is no case definition of long Covid in children and young people in the way there is in adults. Read full story Source: The Independent, 3 May 2021 -
News ArticleA cutting-edge child and adolescent mental health centre hopes to help prevent young people from experiencing mental health problems. As we look hopefully towards a June bonfire of pandemic regulations and restrictions, many recognise that soaring rates of mental health problems and distress amongst our children and young people must be near the top of a 21st century list of challenges in “building back better”. School closures, uncertainty and being cut off from friends and social and sporting events have seen more children and young people referred to CAMHS — a service that was facing growing demand even before the pandemic. The long-term impact is obviously still unknown. However, a cutting-edge child and adolescent mental health centre opening in south London two years from now will play a big role in responding to the likely increased demand for ongoing support — and in developing innovative treatment responses. Read full story (paywalled) Source: HSJ, 27 April 2021
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News Article
Eating disorders: families tube-feeding patients at home amid NHS bed shortage
Patient Safety Learning posted a news article in News
Extremely unwell eating disorder patients are having to be tube fed at home by their families owing to a lack of hospital beds, as the Royal College of Psychiatrists reports a rise in people being treated in units without specialist support. Leading psychiatrists are urging the government for an emergency cash investment as the pandemic has prompted a rise in demand for treatment for conditions such as anorexia, amid “desperate pressure in the system”. In interviews with the Guardian, a number of parents told of the struggles of helping a severely unwell person from home. A number of families said they had no choice but to tube feed their children at home daily. Other parents said their children had been admitted to general children’s wards, where they were being treated by staff who had no experience of eating disorders. It is unclear how many patients are being treated at home, but Agnes Ayton, the chair of the Eating Disorder Faculty at the Royal College of Psychiatrists, said she had heard of people being unable to find beds and being creative in the community: “There is desperate pressure in the system.” Read full story Source: The Guardian, 22 April 2021
