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Found 385 results
  1. Content Article
    The COGER study is collecting data to gain insight into the course of functional and medical recovery in older people affected by COVID-19 participating in rehabilitation across Europe.
  2. Content Article
    The coronavirus that causes COVID-19 attacks the lungs and respiratory system, sometimes resulting in significant damage. COVID-19 often leads to pneumonia and even acute respiratory distress syndrome (ARDS), a severe lung injury. Recovering lung function is possible but can require therapy and exercises for months after the infection is treated.
  3. Content Article
    Patient Safety Learning looks at some of the concerns facing people living with Long COVID in this blog for the Patient Information Forum.
  4. News Article
    There are serious concerns over the funding and staffing numbers available for new ‘long-covid’ clinics, while patient groups ‘remain in the dark’ over their locations. Last month, NHS England announced there would be 40 clinics around the country, to start opening at the end of November, with £10m of funding to cover set-up and operational costs until March 2021. But several speakers at HSJ’s inaugural virtual respiratory forum last week said there were still uncertainties and concerns about the capacity to provide the clinics. Dr Jon Bennet, a respiratory consultant and chair of the British Thoracic Society, said staffing the respiratory rehabilitation services within the clinics would be challenging, as “there isn’t at the moment sufficient capacity”. Read full story (paywalled) Source: HSJ, 29 November 2020
  5. Event
    The Chronic Long Covid19 support group presents this international conference for patients. Presenters: Dr David Tuller, Global Public Health Expert, University of Berkeley, California: graded exercise therapy/cognitive behavior therapy treatment approach to ME and why it should not be used for long-covid patients. Nikita Alexandrov biochemist/biohacker, University of Alabama, USA: COVID-19 and the elephants in the room – big misconceptions and important out of the box observations made so far. Secondary infections: why there is no real cytokine storm concern and the issue of mast cell activation. Book your place
  6. Content Article
    As research into the long-term impact of COVID-19 continues, this guide from the Royal College of Nursing explores the symptoms and how clinicians can support their patients’ recovery. Topics covered: Post-viral fatigue Fluctuating multi-system symptoms Lasting organ damage Post-intensive care syndrome Mental health Learning and training
  7. Community Post
    Just over a week ago NHS England and NHS Improvement announced the launch of a network of 40 Long COVID clinics over the coming weeks. While there still needs to be more details providing, particularly a clear timeframe for the roll-out of these and information on their locations, I was wondering if anyone has heard about whether there are similar plans for Northern Ireland, Scotland and Wales? From a little online research at the moment I've only found the following: Northern Ireland No formal announcements from the Department of Health along these lines. The charity Northern Ireland Chest Heart & Stroke have set up their own Covid Recovery Service. Scotland No immediately obvious proposals from this recent BBC News article covering the issue. Wales Quotes from a BBC News article from the Welsh Government that 'it expected health boards to develop and improve access to rehabilitation services'. This also mentions that the 'Cardiff and Vale Health Board is the first in Wales planning to open a multi-disciplinary rehabilitation service.' Have you heard or seen anything to suggest plans are in place in Northern Ireland, Scotland or Wales to move forward with a similar plan to the NHS in England? Or perhaps an alternative approach?
  8. Content Article
    With delays to promised support and trusts accused of penalising staff during their recovery, HSJ dig into why the NHS must provide support sooner rather than later for those experiencing Long-COVID. Patient Safety Learning has recently published a blog calling for better information and engagement with patients who have Long COVID: Clear NHS plan needed to reassure Long COVID patients. We have also co-produced a patient information leaflet with the Royal College of General Practitioners, to help patients understand what they can expect from their GP. To listen to the HSJ podcast, click on the link below. 
  9. News Article
    A drug used to treat rheumatoid arthritis appears to help patients who are admitted to intensive care with the most severe coronavirus infections, researchers say. Tocilizumab, a medicine that dampens down inflammation, improved outcomes for critically ill patients, according to early results from an international trial investigating whether the drug and others like it boost survival rates and reduce the amount of time patients spend in intensive care. The findings have not been peer-reviewed or published in a journal, but if confirmed by more trial data, the drug will be on track to become only the second effective therapy for the sickest Covid patients, following positive results for the steroid dexamethasone earlier this year. “We think these are very exciting results, we are encouraged by them,” said Prof Anthony Gordon, of Imperial College London, the UK’s chief investigator on the REMAP-CAP trial. “It could become the standard of care once we have all the data reviewed by guidelines groups, and also drug regulators.” Read full story Source: The Guardian, 20 November 2020
  10. Content Article
    In this blog, Patient Safety Learning reflects on the recent steps taken by the healthcare system in the UK to increase provision and support for people living with Long COVID. It then goes on to consider the importance of engagement and information sharing with patients, outlining suggestions where Patient Safety Learning feel the current NHS approach could be improved. 
  11. News Article
    A key expansion of services for patients recovering from coronavirus has been delayed by several months, HSJ has learned. In July, NHS England hailed a “ground breaking” new service with the launch of a website with information for patients on how to recover from covid following hospital discharge. It promised a second phase of the service would allow patients to be connected with health professionals for more tailored support, to be launched “later this summer”. But in a memo sent to professional bodies on 30 October, NHSE said the national roll-out was delayed until at least January 2021, with no date confirmed for the launch beyond that. Documents on the website itself said a “first cohort of patients from Leicester will begin to work through the programme” in November, with a further rollout scheduled for early December, followed by a “refresh” in January 2021 and a “full national rollout accessible across the country” at an unspecified date beyond that. The second phase is seen as vital for ensuring that people with covid receive personalised support to help them recover from its debilitating effects, especially as a separate face-to-face rehabilitation programme was scrapped due to costs. Read full story (paywalled) Source: HSJ, 16 November 2020
  12. News Article
    The NHS will launch a network of more than 40 ‘long COVID’ specialist clinics within weeks to help thousands of patients suffering debilitating effects of the virus months after being infected. The clinics, due to start opening at the end of November, will bring together doctors, nurses, therapist and other NHS staff to physical and psychological assessments of those experiencing enduring symptoms. NHS England has provided £10 million to fund the pioneering clinics, which will see patients who have been hospitalised, officially diagnosed after a test or reasonably believe they had COVID-19. Ten sites have been earmarked for the Midlands, seven in the North East, six in the East of England, South West and South East respectively, five in London and three in the North West. Patients will be able to access services through a GP referral or referral from other healthcare professional, allowing doctors an opportunity to rule out any other possible underlying causes for symptoms, such as suspected stroke, lung cancers or respiratory conditions. The NHS has also launched a new taskforce, with patients, charities, researchers and clinicians, to help manage the NHS approach to ‘long COVID’ and produce information and support materials for patients and healthcare professionals to develop a wider understanding of the condition. NHS Chief Executive Sir Simon Stevens said: “Long COVID is already having a very serious impact on many people’s lives and could well go on to affect hundreds of thousands. “That is why, while treating rising numbers of patients who are sick with the virus and many more who do not have it, the NHS is taking action to address those suffering ongoing health issues." “These pioneering ‘long COVID’ clinics will help address the very real problems being faced by patients today while the taskforce will help the NHS develop a greater understanding of the lasting effects of coronavirus.” Read full press release Source: NHS England, 15 November 2020
  13. News Article
    Young and previously healthy people with ongoing symptoms of COVID-19 are showing signs of damage to multiple organs four months after the initial infection, a study suggests. The findings are a step towards unpicking the physical underpinnings and developing treatments for some of the strange and extensive symptoms experienced by people with “long Covid”, which is thought to affect more than 60,000 people in the UK. Fatigue, brain fog, breathlessness and pain are among the most frequently reported effects. On Sunday, the NHS announced it would launch a network of more than 40 long Covid specialist clinics where doctors, nurses and therapists will assess patients’ physical and psychological symptoms. The Coverscan study aims to assess the long-term impact of COVID-19 on organ health in around 500 “low-risk” individuals – those who are relatively young and without any major underlying health complaints – with ongoing Covid symptoms, through a combination of MRI scans, blood tests, physical measurements and online questionnaires. Preliminary data from the first 200 patients to undergo screening suggests that almost 70% have impairments in one or more organs, including the heart, lungs, liver and pancreas, four months after their initial illness. “The good news is that the impairment is mild, but even with a conservative lens, there is some impairment, and in 25% of people it affects two or more organs,” said Amitava Banerjee, a cardiologist and associate professor of clinical data science at University College London. Read full story Source: The Guardian, 15 November 2020
  14. Content Article
    Nearly a year into the global coronavirus pandemic, scientists, doctors and patients are beginning to unlock a puzzling phenomenon: For many patients, including young ones who never required hospitalisation, COVID-19 has a devastating second act. Many are dealing with symptoms weeks or months after they were expected to recover, often with puzzling new complications that can affect the entire body—severe fatigue, cognitive issues and memory lapses, digestive problems, erratic heart rates, headaches, dizziness, fluctuating blood pressure, even hair loss. What is surprising to doctors is that many such cases involve people whose original cases weren’t the most serious, undermining the assumption that patients with mild COVID-19 recover within two weeks. Doctors call the condition “post-acute Covid” or “chronic Covid,” and sufferers often refer to themselves as “long haulers” or “long-Covid” patients. “Usually, the patients with bad disease are most likely to have persistent symptoms, but Covid doesn’t work like that,” said Trisha Greenhalgh, professor of primary care at the University of Oxford and the lead author of an August BMJ study that was among the first to define chronic Covid patients as those with symptoms lasting more than 12 weeks and spanning multiple organ systems. Other viral outbreaks, including the original SARS, MERS, Ebola, H1N1 and the Spanish flu, have been associated with long-term symptoms. Scientists reported that some patients experienced fatigue, sleep problems and joint and muscle pain long after their bodies cleared a virus, according to a recent review chronicling the long-term effects of viral infections. What differentiates COVID-19 is the far-reaching nature of its effects. While it starts in the lungs, it often affects many other parts of the body, including the heart, kidneys and the digestive and nervous systems, doctors said. “I haven’t really seen any other illness that affects so many different organ systems in as many different ways as Covid does,” said Zijian Chen, medical director for Mount Sinai Health System’s Center for Post-Covid Care. Read the full article in the Wall Street Journal.
  15. Content Article
    Large numbers of people are being discharged from hospital following COVID-19 without assessment of recovery. Mandal et al. followed 384 patients who had tested positive and had been treated at Barnet Hospital, the Royal Free Hospital or UCLH. Collectively the average length of stay in hospital was 6.5 days. The team found that 54 days after discharge, 69% of patients were still experiencing fatigue, and 53% were suffering from persistent breathlessness. They also found that 34% still had a cough and 15% reported depression. In addition 38% of chest radiographs (X-rays) remained abnormal and 9% were getting worse. The study has identified persisting symptoms and radiological abnormalities in a significant proportion of subjects. These data may assist with the identification of people outside expected recovery trajectories who could benefit from additional rehabilitation and/or further investigation to detect post-COVID complications.
  16. Content Article
    This report from the Skills for Health reveals the extensive mental and physical health impact on the NHS, and health and care professionals across the UK, as a result of working and living through COVID-19. It also identifies organisational priorities for recovery, both as the country enters the next phase of the pandemic and for the longer term.
  17. News Article
    One in five COVId-19 patients were diagnosed with a mental illness for the first time within three months of their infection, a study has shown. Mental health experts said the findings, which were based on an analysis of the electronic medical records of 69 million people in the US, suggest that coronavirus survivors could have an increased risk of developing psychiatric disorders. Of the almost 70 million people whose records were examined in the study, 62,354 individuals had confirmed COVID-19 cases. Researchers at the University of Oxford and the NIHR Oxford Health Biomedical Research Centre found that one in five of these patients went on to receive a first time diagnosis of anxiety, depression or insomnia within 90 days of testing positive for the virus. This was roughly twice as high as the figure for other individuals over the same time frame, according to the researchers. People with a history of mental health disorders who contracted the virus were also discovered to be more likely to have new psychiatric diagnoses. Paul Harrison, a psychiatry professor at the University of Oxford who led the research, said: "People have been worried that COVID-19 survivors will be at greater risk of mental health problems, and our findings in a large and detailed study show this to be likely. Read full story Source: The Independent, 10 November 2020
  18. Content Article
    This is an online platform and information portal for post covid syndrome (also known as Long Haul Covid, Long Tail Covid and Long Covid). It has been designed to be a central point for patients, practitioners and researchers globally.
  19. Content Article
    NHS Commissioning guidance to assist local healthcare systems to establish post-COVID assessment clinics for patients experiencing long-term health effects following COVID-19 infection.
  20. Content Article
    This NHS document outlines new guidance on accessing and referring into the digital COVID-19 rehabilitation programme, Your COVID Recovery.
  21. News Article
    Trusts in more than half English local authorities still do not have an agreed safe place to discharge recovering covid patients to, despite the government asking councils to identify at least one such ‘designated setting’ by the end of October. The situation is leading to an increase in delayed discharges from hospital just as the service comes under increased pressure from the second covid wave and returning elective and emergency demand. In a letter last month, the government told local authorities to identify at least one “designated setting” – typically a care home – which hospitals could discharge covid positive patients to when they no longer need secondary care. The designated setting would also take discharged patients who had not received a negative covid test. The plan is designed to protect residents in other homes, after thousands of care home residents died due to outbreaks of the virus in the spring. But a well-placed source in the care sector told HSJ less than half of the 151 upper tier councils met the 31 October deadline, due to a range of reasons including insurance costs, fear of high mortality rates and reputational damage to the designated homes. It means that in many parts of the country, there are a lack of options when it comes to discharging patients, which is causing a rise in delayed discharges. Read full story (paywalled) Source: HSJ, 5 November 2020
  22. Content Article
    COVID-19 survivors Fiona Lowenstein and Nikki Brueggeman share their experiences with the disease and how they navigated the healthcare system during the pandemic, and how they were inspired to become advocates for others.
  23. Event
    until
    Connect Health “Change” has developed a series of webinars to make and embed transformation in healthcare. Aimed at system leaders and clinicians across the NHS, the webinars provide practical solutions to the challenging issues we are all grappling with. As the lasting effects of COVID-19 emerge from the near overwhelming demands on the acute services, the need for long term support and rehabilitation for survivors is becoming increasingly clear. But the how is still very much a matter up for debate. This webinar is a must for anyone involved in the design, delivery and commissioning of post COVID rehabilitation/ community services as well as those involved in public and population-health . The webinar will explore: Are traditional community services set up to provide COVID rehab? Or, is there a need for specialist services to focus on supporting COVID recovery? Who are the best clinicians to provide rehab to COVID patients? How we approach COVID rehab from a commissioning perspective? Registration
  24. Content Article
    The National Institute for Health and Care Excellence (NICE), is developing the COVID-19 guideline: management of the long-term effects of COVID-19. The final scoping document and associated project papers are now available.
  25. News Article
    It has a plethora of symptoms, strikes the young and old, and lasts for months – maybe much longer. It’s also so new that scientists aren’t sure what they’re dealing with. For those whose lives have been deeply affected by long-term repercussions of Covid, the battle to be recognised is just the start. There are thousands of people in the UK dealing with the long-term effects of COVID-19, experiencing debilitating symptoms that last for weeks and months beyond the initial infection. One of the most commonly reported is fatigue, along with breathlessness, joint pain and muscle aches. Neurological issues are common, particularly brain ‘fog’ and a loss of memory and concentration. Some have chest pain or heart palpitations, skin rashes, diarrhoea, headaches, hearing or eyesight problems, or hair loss. Others have lost their senses of taste and smell. In online support groups, people are sharing stories of bone-crippling exhaustion, constant pain in their chest or heart, or the inability to remember a name or follow a conversation. These people don’t fit the binary model of the virus we thought we knew – that if you’re in the small minority who are seriously affected you might be hospitalised, end up in ICU or worse; otherwise you’ll likely be better after two weeks. Many only had mild cases originally and were not deemed to be in vulnerable categories. Widely varying symptoms have added to the confusion and fear surrounding the condition, which currently has no formal definition. For months, people with Long Covid had no one to turn to but each other. It’s only recently – through increasing research emerging, and sufferers publicly sharing their stories – that it has started to be taken more seriously. Earlier this month, NHS England announced a £10 million investment to set up one-stop services for physical and mental health issues caused by Covid alongside a Long Covid task force and, crucially, research on 10,000 patients. Not much is known about what causes Long Covid and there is little firm consensus. There are theories it occurs when a patient’s immune system overreacts to the infection, which can lead to widespread inflammation that theoretically affects any organ. Last week, a study by the National Institute for Health Research (NIHR) suggested Long Covid symptoms could actually be caused by four separate syndromes: post-intensive-care syndrome, post-viral fatigue syndrome, permanent organ damage to the lungs and heart, or lingering COVID-19 symptoms. Read full story Source: The Telegraph, 24 October 2020
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