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Found 385 results
  1. Content Article
    This report from the Tony Blair Institute looks at progress made in they released a report in October 2020 which set out a series of recommendations on how the government should respond to Long COVID. These recommendations covered: addressing the need for further research on Long COVID launching an awareness campaign improving diagnosis of Long COVID putting in place specialist support for sufferers using the COVID Symptom Study data to screen for those likely to develop Long COVID. This latest report, A long-term plan for Long Covid, includes: more detail on the recommendations made an update on what has happened in each area where appropriate, what more could be done.
  2. News Article
    Joanna Herman, a consultant in infectious diseases, had high hopes when Boris Johnson announced £10m for long Covid clinics. Five months on, she is yet to be referred to one. "Despite the government recently giving £18.5m research funding for the disease, it feels as though all focus is now on the vaccine and the lifting of lockdown, while those living with long Covid have been largely forgotten," says Joanna. Her initial illness was, by definition, a mild case of Covid: no hospital admission and no risk factors for severe disease. Months later she found herself experiencing crashing post-exertional fatigue, sporadic chest pains and a brain that felt it was only half functioning. And she is not alone. According to a study published last September from researchers at King’s College London, 60,000 people in the UK were likely to have been suffering from long Covid. The actual number is now probably far higher. There are now 69 long Covid clinics up and running across the country, according to the NHS England website. Yet Joanna has not been able to access one – and neither have others she knows with long Covid. Joanna asked doctors in her field what was happening with long Covid clinics in their local areas. She contacted 18 infectious disease colleagues based in teaching hospitals around the country. Of the 16 who responded, 6 had formal long Covid clinics. Some said that provision for the disease was woefully inadequate, while others reported they only saw only patients who had been admitted to hospital with acute COVID-19. In her own local teaching hospital, funding for long Covid patients is scattered across various departments and there is no dedicated team for these patients. "...it feels as though many long-haulers remain in a post-viral sea, looking for a mooring in the hope that something can be offered. We’ve known about this disease since last summer, and it has been officially recognised since October, but we’re only just starting to understand how to support those living with it" Read full story Source: The Guardian, 10 March 2021
  3. News Article
    Sufferers say they have had little specialist help despite NHS England setting up dedicated clinics. “It’s not that I feel I have been abandoned, I think that is perfectly obvious,” says Rachel Pope. “If you speak to any long Covid patient, they have been abandoned.” Until exactly a year ago – 5 March 2020 – Pope was “an incredibly fit woman”. A senior lecturer in European prehistory at the University of Liverpool, her work and lifestyle were very active. But after falling ill to Covid, she spent four months unable to walk, then three more when she could manage little more than “a sort of shuffle”. She still has a host of symptoms, “but the most debilitating is the fact that I still can’t do more than 2,000 steps in a day. Until a few weeks ago, I was still choking every day. There’s a lot of nasty stuff that [long Covid sufferers] are living with, without treatment. “It’s not a great situation to be in. I mean, we didn’t die. But this isn’t exactly living either.” A year into the pandemic, accounts such as Pope’s have become dispiritingly familiar, as the experiences of the many thousands who have struggled for months with long Covid, often alone and unsupported, are emerging. Read full story Source: The Guardian, 5 March 2021
  4. Content Article
    This is a video recording of a oral evidence session of the All-Party Parliamentary Group (APPG) on Coronavirus into the effects of Long COVID in children. This session took place during Long COVID week (11-15 January 2021), which aimed to highlight the experiences of the hundreds of thousands of people living with Long COVID in the UK.
  5. News Article
    A leading doctor has said the NHS should expect to treat up to a million people for long Covid in the aftermath of the pandemic. Long Covid affects about 1 in 10 people of any age infected with coronavirus, and sufferers can experience symptoms including breathlessness, chronic fatigue, brain fog, anxiety and stress for several months after contracting COVID-19. The likelihood of experiencing long-term symptoms does not appear to be linked to the severity of the initial virus and people with mild symptoms at first can still have debilitating long Covid. The absence of long Covid registers makes it difficult to measure the scale of the problem, and major studies into the condition are ongoing in an attempt to identify causes and potential treatments. But one of Britain’s leading doctors, who spoke on condition of anonymity, estimates that about a million people will need care for long Covid as the NHS recovers from the effects of the pandemic. “Although officially about 4 million people have had Covid, in reality, it’s about 8 million or 9 million,” the anonymous doctor told The Guardian. “If 10% of those people have got something, then it could be almost a million people, and that’s enormous.” Read full story Source: The Independent, 7 March 2021
  6. News Article
    Some 1 in 10 people still experience persistent ill health 12 weeks after having COVID-19, termed “long COVID” or post-COVID conditions. A new policy brief from the European Observatory on Health Systems and Policies documents responses to post-COVID conditions in different countries of the WHO European Region and looks at how sufferers, including medical professionals, are driving some of those responses. Written for decision-makers, this brief summarises what is known about the conditions, who and how many people suffer from them, diagnosis and treatment, and how countries are addressing the issue. Commenting on long COVID, WHO Regional Director for Europe Dr Hans Henri P. Kluge said, “COVID-19 has caused a great deal of suffering among people across the Region, with reports of long COVID an extra cause for concern. It’s important that patients reporting with symptoms of long COVID are included as part of the COVID-19 response to mitigate some of the longer-term health impacts of the pandemic. This policy brief makes clear the need for policy-makers to take the lead on this issue.” Read full story Source: WHO, 25 February 2021
  7. Content Article
    This World Health Organization (WHO) policy brief highlights areas where policy-makers can take action to meet the challenge of post-Covid conditions based on what is currently known. It addresses the need for multidisciplinary, multispecialty approaches to assessment and management; development of new care pathways and contextually appropriate guidelines for health professionals; and the creation of appropriate services, including rehabilitation and online support tools.
  8. News Article
    One in five people hospitalised with COVID-19 experienced hair loss within six months of first being infected with the virus, a cohort study of patients found. A team of Chinese experts looking into the long-term health consequences of the disease surveyed patients who had been discharged from Jin Yin-tan Hospital in Wuhan last year. Of the 1,655 people who took part 359 (22%) reported losing hair. Fatigue or muscle weakness, difficulty sleeping, smell disorder, anxiety and depression were some of the other most commonly reported symptoms, with a higher percentage of these reported among women. The long-term consequences of Covid-19 after six months remained "largely unclear", the study concluded. Read full story Source: The Independent, 23 February 2021
  9. Content Article
    Anti-stay-at-home protesters aren’t the only ones with an argument based on individual rights on their side, writes Graham Mooney, associate professor at the Johns Hopkins University School of Medicine.
  10. Content Article
    Patient Safety Learning has been raising awareness of the safety concerns surrounding the care and treatment of people with persisting symptoms of COVID-19 long after initial infection, sometimes referred to as "long haulers" or having "Long COVID". We recently published a joint blog with patient group Long Covid Support, outlining our concerns and calling for a more coordinated response, led by a dedicated Long COVID Minister. Yahoo News senior editor Ed Hornick has been fighting the lingering symptoms of COVID-19 for over 10 months. "I have abnormal heart, gastrointestinal, and kidney functioning. I sleep with oxygen. Daily debilitating migraine headaches seem to be at a pain level 12; a noticeable tremor in my left hand comes and goes, and my leg muscles twitch uncontrollably. I get so dizzy from standing up that I nearly pass out. I’m often hit with a sense of jamais vu, the big sister of deja vu. I forget friends’ names and often repeat the same story in a conversation." Follow the link below to read his full story on Yahoo Life.
  11. News Article
    Today is an anniversary that George Hencken never imagined. It is exactly one year since she caught COVID-19. But unlike most people who have suffered from the disease, she remains ill. “It’s a year since I’ve felt like myself,” she said. “It’s a year since my life as I knew it came to an end. And I don’t know if I’m going to get it back again.” Long Covid doesn’t quite describe the depths of her fatigue. “It’s not tiredness. It’s like having jet lag and a hangover. It feels like I’ve been poisoned,” she said. The problem for Hencken and the thousands still suffering from the virus months later is that long Covid doesn’t describe much at all. The umbrella term covers people who are breathless and fatigued, or who have brain fog, headaches and tingling arms, or who have chest pains and heart palpitations, or all of those and dozens more symptoms besides. Support groups such as LongCovidSOS have been fighting hard for the condition to be recognised and taken seriously – sufferers say they feel disbelieved, and doctors initially had little information, support or even funding. Last week the government announced £18.5m through the National Institute for Health Research to fund four major studies attempting to understand exactly what long Covid means, why it affects so many apparently healthy people, and how they can be helped. Research by University College London will track the health of 60,000 people, including people with long Covid and a control group who will wear a Fitbit-style wristband to measure heart rate, breathing and exercise levels. The aim is to chart and identify clusters of symptoms, Professor Nishi Chaturvedi said. “My sense is that the multiplicity of symptoms that people are reporting suggests to me and many others that it’s not one thing, but several syndromes. We’re not even at the starting point yet of knowing what it is,” she said. Read full story Source: The Guardian, 20 February 2021
  12. Content Article
    According to the Office for National Statistics (ONS), around one in five people who tested positive for COVID-19 had symptoms that lasted for five weeks or longer, and one in 10 people had symptoms that lasted for 12 weeks or more. This article, published in Which, looks at some of the challenges facing people living with persisting symptoms months after their initial infection and provides tips for accessing support. Content includes: What is Long COVID? Talking to your GP and specialist referrals Long COVID clinics Managing Long COVID at home Support groups and research projects Financial support Living with Long COVID – Francesca’s story How to support someone with Long COVID.
  13. News Article
    Boris Johnson is being urged to launch a compensation scheme for frontline workers who are suffering from the long-term effects of coronavirus. The all-party parliamentary group on coronavirus said the prime minister should recognise long Covid as an occupational disease, saying some sufferers have found it hard to return to work. A letter, signed by more than 60 MPs and peers, has been sent to Johnson. Layla Moran, the APPG’s chair, said: “Long Covid is the hidden health crisis of the pandemic, and it is likely to have an enormous impact on society for many years to come. “When it comes to frontline NHS, care and key workers, they were specifically asked to go to work and save lives while everyone else was asked to stay at home." “They were exposed to an increased level of risk of catching the virus, often without adequate levels of PPE.” The group wants the government to follow France, Germany, Belgium and Denmark, which have formally recognised Covid as an “occupational disease”. Read full story Source: The Guardian, 18 February 2021
  14. News Article
    The World Health Organization (WHO) has urged countries to prioritise rehabilitation for the medium and long term consequences of covid-19 and to gather information on “long covid” more systematically. WHO has produced a standardised form to report clinical data from individual patients after hospital discharge or after their acute illness to examine the medium and long term consequences of COVID-19.1 It has also set up technical working groups to build a consensus on the clinical description of what WHO now calls “the post-covid-19 condition” and to define research priorities. Speaking at the first of a series of seminars, WHO’s director general, Tedros Ghebreyesus, highlighted the “three Rs”—recognition, research, and rehabilitation. Recognition of the post-covid-19 condition was now increasing, he said, but still not enough research was carried out. He added that countries needed to show commitment to including rehabilitation as part of their healthcare service. “Long covid has an impact on the individual, on society, and on the economy,” he warned. Read full story Source: BMJ, 10 February 2021
  15. Content Article
    This blog, published in the Journal of Orthopaedic and Sports Physiotherapy, is written by a group of rehabilitation professionals with personal experience of Long COVID. Professionally, they would often advocate for exercise as a first-line intervention. However, in their personal lives they have found themselves contradicting their professional recommendations. In this blog blog post, they share their: battle adapting to an altered lifereluctant acceptance of reduced function (even temporary) to balance rest and usual activities fear of permanent reductions in physical and cognitive abilities.
  16. News Article
    Tens of thousands of coronavirus survivors needing long-term care are heaping pressure on Britain’s stretched community services, threatening a crisis that experts warn could dwarf that seen in hospitals over the past 12 months. As many as 100,000 intensive care patients, including up to 15,000 Covid-19 survivors, will need long-term community nursing care after being discharged from hospitals during the past 12 months, The Independent has been told. This will be on top of an as yet unknown number of Covid patients from the 350,000 treated on general wards since the pandemic began, as well as tens of thousands of people who were sick without going to hospital but have been left with debilitating symptoms of long Covid. Labour’s shadow health minister Liz Kendall warned: “There will be huge pressures on community services as people who need long-term support are discharged back into their own homes. “Ministers have got to put in place a proper workforce strategy for the NHS and community care otherwise we will see people struggling to recover and the burden of care could also fall on their families." “This is one of the long-term consequences of Covid that we haven’t begun to even think through yet.” Read full story Source: The Independent, 14 February 2021
  17. Content Article
    The scale of the emergency response to the COVID-19 pandemic has been extraordinary, but what comes next? The King's Fund spoke with people involved in response efforts for disasters from around the world, from the Christchurch earthquakes in New Zealand to the Grenfell Tower fire in London, to understand what the health and care system can learn from the experience of recovery from other disasters as it responds to the pandemic.
  18. Content Article
    In The Lancet correspondence, Norton and colleagues on behalf of the ISARIC and GloPID-R Long COVID Forum Working Group, write following an international, multistakeholder forum, in which peoples’ voices were central, to expand the call to action and to identify how we can prevent long COVID from becoming the long-lasting legacy of COVID-19.
  19. News Article
    The MP leading an investigation into coronavirus fears long Covid could cost the UK around £2.5 billion a year. Layla Moran believes the emerging crisis is comparable to the impact rheumatoid arthritis has on the health service, with hundreds of thousands of people expected to be dealing with the condition for months. The ONS says around one in ten people who test positive will go on to develop long Covid, a catch all term to describe a host of ongoing symptoms in coronavirus patients. More than 1.7 million COVID-19 infections have been reported since Christmas Day in the UK. Speaking exclusively to Metro.co.uk, Ms Moran – who chairs the All Party Parliamentary Group (APPG) on coronavirus, said: "The amount of money that we are expecting to spend long term on long Covid could be similar to rheumatoid arthritis. How many people know someone with rheumatoid arthritis? It is going to be higher for long Covid." Read full story Source: The Metro, 10 February 2021
  20. Event
    until
    This Westminster Health Forum event will examine the key policy priorities for tackling health inequalities in the national recovery from COVID-19. Includes a keynote contribution from Professor Sir Michael Marmot, Professor of Epidemiology and Director, Institute of Health Equity, University College London. Key areas for discussion will also include: research and evidence - understanding the impact of the pandemic on inequalities and key challenges it has highlighted, and the use of data and population health approaches policy priorities - including investment and cross-government coordination tackling variation - supporting vulnerable communities, addressing regional imbalances, and tackling digital exclusion initiatives at a local level - place-based working, healthy communities, and the role of health service networks, local authorities, the third sector, and community groups. Register
  21. Content Article
    A study from Chamberlain et al. examined post-traumatic stress disorder (PTSD) symptoms in 13 049 survivors of suspected or confirmed COVID-19, from the UK general population, as a function of severity and hospital admission status. Compared with mild COVID-19, significantly elevated rates of PTSD symptoms were identified in those requiring medical support at home, those requiring hospital admission without ventilation and those requiring hospital admission with ventilator support. Intrusive images were the most prominent elevated symptom. Adequate psychiatric provision for such individuals will be of paramount importance.
  22. News Article
    One in three Covid patients put on a ventilator experience extensive symptoms of post-traumatic stress disorder (PTSD), according to research, which adds to mounting evidence of the virus’s impact on mental health. The study of 13,049 patients with confirmed or suspected coronavirus, by Imperial College London and the University of Southampton, found that one in five who were admitted to hospital but did not require a ventilator also experienced extensive symptoms of PTSD. The most common PTSD symptom experienced by COVID-19 patients was intrusive images, sometimes known as flashbacks. Examples of these could be images of the intensive care unit (ICU) environment, ICU doctors wearing full personal protective equipment or other patients in the ICU. The study, published in the Royal College of Psychiatrists’ BJPsych Open, on Tuesday, found lower levels of extensive symptoms of PTSD for patients given medical help at home (approximately one in six) and patients who required no help at home but experienced breathing problems (one in ten). Dr Adam Hampshire, from Imperial College London, said: “We can see that the pandemic is likely to be having an acute and lasting impact, including for a significant proportion of patients who remained at home with respiratory problems and received no medical help. This evidence could be important for informing future therapy and reducing the long-term health burden of this disease.” Read full story Source: The Guardian, 9 February 2021
  23. News Article
    The MP leading an investigation into coronavirus fears Long Covid will be one of the biggest issues facing the UK for the next decade, after emerging research revealed most sufferers are still unable to work six months in. Layla Moran branded the scale of the problem ‘enormous’, as various experts warned that even healthy young adults have been left struggling to function for months on end. With hundreds of thousands of Brits now believed to have Long Covid, medics fear its impact on the world of work could herald another ‘massive economic crisis’. Workers in their 20s and 30s have told of a host of debilitating symptoms keeping them out of the office for much of last year and making simple tasks like walking to the toilet seem ‘like climbing a mountain’. Speaking exclusively to Metro.co.uk, Ms Moran – who chairs the All Party Parliamentary Group (APPG) on coronavirus – said: "The scale of this, in terms of the future prosperity of our country, is enormous. It is going to be, I think, one of the main issues that we are going to deal with not just in ten years but beyond." Read full story Source: Metro, 4 February 2021
  24. Content Article
    Official statistics indicate there are currently hundreds of thousands of people living with Long Covid in the UK. Many of those who contracted Covid-19 at the start of the pandemic are still experiencing significant symptoms almost a year on from their initial infection; some have already passed that grim milestone. Meanwhile, we can expect case numbers of Long Covid to rise significantly as people continue to become infected; recent data shows that at least 1 in 10 people still experience symptoms 12 weeks after initial infection.[1] The implications of Long Covid for individual patients, our health service and wider society are multifaceted, complex and likely to be long-term. There has been some progress to put in place support for people with Long Covid, but many are yet to receive help. Call to action Patient Safety Learning and patient group Long Covid Support are calling for an urgent and significant increase in the scale and pace of the response, and a coordinated, multi-stakeholder approach. We are calling for this to be set up and led by a dedicated Minister for Long Covid, responsible for: Assessment of the issues affecting people with Long Covid, whether or not they were hospitalised (physical and mental health, employment, welfare, education). Delivery plans for meeting the needs of people living with Long Covid. Cross-government coordination and communication. Public information and awareness raising around Long Covid. Data collection, measurement and reporting on the number of adults and children with Long Covid to inform service planning and funding. Identifying research needs, commissioning research and ensuring this informs service delivery. Delivery of a communication and engagement strategy to all key stakeholders.
  25. News Article
    New advice on how to treat coronavirus has been issued by the World Health Organisation (WHO) as it also begins a wide-reaching study into the effects of so-called "long COVID". For COVID-19 patients at home, WHO is now suggesting the use of a pulse oximetry machine to measure oxygen levels in the blood - but warns that this should only be done after full patient education and with medical follow-up support if necessary. For hospitalised patients, WHO is recommending the use of low-dose anticoagulants to prevent clots forming in blood vessels, known as thrombosis. And for sufferers who are already using supplemental oxygen, the organisation is officially endorsing the positioning of patients on their stomachs to increase oxygen flow. This is known as "awake prone positioning". The new guidelines also include a recommendation that healthcare professionals favour "clinical judgement over models" in making decisions for individual patients. Read full story Source: Sky News, 26 January 2021
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