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Showing results for tags 'Medicine - Rheumatology'.
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Content ArticleThis report of a roundtable held by the Arthritis and Musculoskeletal Alliance (ARMA) highlights inequalities in relation to the prevalence of, and access to treatment for musculoskeletal conditions (MSKs). MSKs include a broad range of health conditions affecting the bones, joints, muscles and spine, as well as rarer autoimmune conditions such as lupus. Their incidence is correlated with deprivation, age, sex and ethnicity.
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- Arthritis
- Medicine - Rheumatology
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Content ArticleDalila, who lives in Cardiff, was diagnosed with systemic lupus erythematosus during childhood. In this blog for Lupus Awareness Month she talks about her experiences with the condition and the differences in the care she’s received between England and Wales. The experience of people like Dalila is why the Rare Autoimmune Rheumatic Disease Alliance are calling for change in how people with rare autoimmune rheumatic diseases are cared for in Wales. They are calling for: A properly commissioned specialised centre for rare autoimmune rheumatic diseases in Wales. A network, where this specialised centre can support local hospitals to deliver better care. Urgent action to resolve workforce issues in rheumatology in Wales.
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- Medicine - Immunology
- Rare diseases
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Content ArticleThe recently published Getting it Right First Time (GIRFT) report on rheumatology found wide variations in rheumatology services and highlights the challenges faced by many units, including rising demand for services, limited resources and an overstretched workforce. The report makes a series of recommendations for changes which would improve patient experience and patient outcomes. However, the Arthritis and Musculoskeletal Alliance (ARMA), a membership organisation for musculoskeletal charities, believes that patient organisations could play a much greater role in supporting these changes than the report indicates In this webinar, Clare Jacklin, CEO of the National Rheumatoid Arthritis Society and Dale Webb, CEO of the National Axial Spondyloarthritis Society outline their vision of the place of patient organisations, and describe how putting patient organisations at the heart of the system can help deliver improved services and relieve the pressure on staff.
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Content ArticleThis study in the journal Rheumatology looked at the experience and views of rheumatology patients and clinicians regarding telemedicine. The Covid-19 pandemic has forced a rapid transition towards telephone consultations, but there are still many research gaps in understanding the safety and acceptability of telemedicine.
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- Medicine - Rheumatology
- Consultation
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Content ArticleGetting It Right First Time (GIRFT) is designed to improve the quality of care within the NHS by reducing unwarranted variations. By tackling variations in the way services are delivered across the NHS, and by sharing best practice between trusts, GIRFT identifies changes that will help improve care and patient outcomes, as well as delivering efficiencies such as the reduction of unnecessary procedures and cost savings.
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News Article
Rheumatoid arthritis drug appears to help Covid patients in ICU
Patient Safety Learning posted a news article in News
A drug used to treat rheumatoid arthritis appears to help patients who are admitted to intensive care with the most severe coronavirus infections, researchers say. Tocilizumab, a medicine that dampens down inflammation, improved outcomes for critically ill patients, according to early results from an international trial investigating whether the drug and others like it boost survival rates and reduce the amount of time patients spend in intensive care. The findings have not been peer-reviewed or published in a journal, but if confirmed by more trial data, the drug will be on track to become only the second effective therapy for the sickest Covid patients, following positive results for the steroid dexamethasone earlier this year. “We think these are very exciting results, we are encouraged by them,” said Prof Anthony Gordon, of Imperial College London, the UK’s chief investigator on the REMAP-CAP trial. “It could become the standard of care once we have all the data reviewed by guidelines groups, and also drug regulators.” Read full story Source: The Guardian, 20 November 2020- Posted
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- Virus
- Medicine - Rheumatology
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Content ArticleThe global COVID-19 pandemic has the potential to severely affect those with rheumatic diseases or who are taking immunosuppressive therapies. Information is lacking as to how these groups will fare if they become infected. A global alliance has rapidly formed to try to address this information deficit.
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- High risk groups
- Medicine - Rheumatology
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Content ArticleAnnette McKinnon is a patient with chronic disease. Her experience has led her to be involved in trying to change healthcare so that the voice of the patient is included in decisions. She is a volunteer member of many groups and committees and is a patient partner on several Canadian research teams. In her blog, published by the BMJ, Annette discusses the importance of patient-centred care, information sharing and the barriers to achieving this.
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- User-centred design
- Medicine - Rheumatology
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