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Found 805 results
  1. Content Article
    This cross-sectional survey in the BMJ Open aimed to examine the sociodemographic characteristics, activities, motivations, experiences, skills and challenges of patient partners working across multiple health system settings in Canada. This survey was the first of its kind to examine the characteristics, experiences and dynamics of a large sample of self-identified patient partners at a population level. Although patient partners who took part were from similar sociodemographic background, the scope, intensity and longevity of their roles varied. Respondents predominantly identified as female (76.6%), white (84%) and university educated (70.2%). Primary motivations for becoming a patient partner were the desire to improve the health system based on either a negative (36.2%) or positive (23.3%) experience. Respondents reported feeling enthusiastic (83.6%), valued (76.9%) and needed (63.3%) always or most of the time. Just under half felt they had always or often been adequately compensated in their role.
  2. Content Article
    Black and Asian bereaved parents whose baby died during pregnancy or shortly after birth have shared their experiences as part of the Sands Listening Project. The 56 parents who took part shone a light on care that works well, while also highlighting barriers, biases, and poor care. In the report, published by Sands, you can read more about: the findings pregnancy loss and baby deaths among Black and Asian babies in the UK real-life experiences and case studies what needs to change. Follow the link below to access the Listening Project report on the Sands website. 
  3. Content Article
    The review, which has now concluded, advised the government on the health impact of potential ethnic and other biases in medical devices and made recommendations for more equitable solutions. The final report was published on 11 March 2024.
  4. Content Article
    Since the Covid-19 pandemic began, a disproportionate number of BAME patients have reported not having their Long-Covid symptoms taking seriously. In this blog, Sheeva Azma looks at the impact of racial profiling on patient safety in the US, highlighting how health inequalities have worsened during the pandemic. She interviews Chimére Smith, who developed Long Covid after catching the virus in March 2020 and was left unable to work. Smith talks about the importance of representation in medicine, sharing how black doctors listened to her and took her seriously, when every white doctor she had seen dismissed her symptoms.
  5. Content Article
    At present there is a single specialist service providing gender identity services for children and young people – the Gender Identity Development Service (GIDS) at the Tavistock and Portman NHS Foundation Trust. In recent years GIDS has experienced a significant increase in referrals which has contributed to long waiting lists and growing concern about how the NHS should most appropriately assess, diagnose and care for this population of children and young people. The Cass Review has submitted an interim report to NHS England, which sets out their work to date, what has been learnt so far and the approach going forward. The report does not set out final recommendations at this stage.
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