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Found 266 results
  1. Content Article
    Dr Harsha Master, Dr Ashish Chaudhry, Dr Nicholas Gall, Dr Louise Newson, Dr Sarah Glynne, and Dr Paul Glynne present their experiences of diagnosing, managing, and referring patients with long COVID and associated conditions. Read this article to learn more about: the definition, prevalence, and symptoms of long COVID exclusion of alternative diagnoses, and identification of red-flag symptoms the authors’ experiences of managing long COVID and its complications.
  2. News Article
    Last year, Diana Berrent—the founder of Survivor Corps, a US Long COVID support group—asked the group’s members if they’d ever had thoughts of suicide since developing Long Covid. About 18% of people who responded said they had, a number much higher than the 4% of the general US adult population that has experienced recent suicidal thoughts. A few weeks ago, Berrent posed the same question to current members of her group. This time, of the nearly 200 people who responded, 45% said they’d contemplated suicide. While her poll was small and informal, the results point to a serious problem. “People are suffering in a way that I don’t think the general public understands,” Berrent says. “Not only are people mourning the life that they thought they were going to have, they are in excruciating pain with no answers.” Long Covid, a chronic condition that affects millions of Americans who’ve had COVID-19, often looks nothing like acute COVID-19. Sufferers report more than 200 symptoms affecting nearly every part of the body, including the neurologic, cardiovascular, respiratory, and gastrointestinal systems. The condition ranges in severity, but many so-called “long-haulers” are unable to work, go to school, or leave their homes with any sort of consistency. Long COVID can also be incredibly painful, and research has linked chronic physical pain to an increased risk of suicide. Nick Güthe has been trying to spread that message since his wife, Heidi Ferrer, died by suicide in 2021 after living with Long Covid symptoms for about a year. Among her most disruptive symptoms, Güthe says, were foot pain that prevented her from walking comfortably, tremors, and vibrating sensations in her chest that kept her from sleeping. “My wife didn’t kill herself because she was depressed,” Güthe says. “She killed herself because she was in excruciating physical pain.” Read full story Source: Time. 13 June 2022
  3. Content Article
    A spike in infections every three months seems to be the pattern, but the UK has the power to beat this if we act wisely writes Professor Devi Sridhar, chair of global public health at the University of Edinburgh, in the article for the Guardian. She suggests the UK should be planning to roll out boosters to the entire population this autumn, using an age and risk factor priority scheme (instead of just to people over 75, those in care homes and those with weakened immune systems: these are the people covered by the current spring booster scheme). Antiviral supply should be put in place in pharmacies and GPs, working towards a “test to treat” scheme where soon after testing positive, those who are in vulnerable and elderly groups, for whom vaccines might be less effective, can get access to effective treatment early on.
  4. Content Article
    The Pharmaceutical Journal speaks to formerly fit and well pharmacists and technicians whose lives have been devastated by Long Covid.
  5. Content Article
    The National Institute for Health and Care Research (NIHR) is funding a portfolio of research to improve our understanding of, and find treatments for, Long Covid. The NIHR’s 19 studies are trying to answer some of the most urgent questions.
  6. News Article
    Health boards are avoiding publicising their Long Covid services to avoid a rush of patients, an expert has claimed. Edward Duncan, a professor of applied health research, has been evaluating rehabilitation services in Scotland for the past eight months. The latest ONS figures showed 155,000 Scots had long lasting Covid symptoms. Prof Duncan said the current situation was contributing to a "trickle" of patients accessing treatment in some regions. He is working with Robert Gordon University, the University of Dundee and Long Covid sufferers to work out the best way to maximise recovery and quality of life for patients. It comes after patient groups accused the health service and government ministers of pretending the illness has disappeared. Prof Duncan said: "Staff in some health boards have said to us that they are purposely not publicising the pathway, because they fear that if they do, they will have so many referrals that they will not be able to meet demand." "There is a lack of proactive publicity, despite the fact that in late 2020 every health board said that these services were there for patients who need them." "We know from other research that patients are going to primary care and being told by their GP that they don't know where to send them." Read full story Source: BBC News, 14 June 2022
  7. News Article
    Doctors who worked on the frontline during the pandemic and have been left with long Covid say they have been denied financial support by the UK government, with some left with little option but to sell their house. Months or even years after an initial Covid infection some people continue to have symptoms, from fatigue to brain fog. According to the Office for National Statistics, as of 1 May an estimated 2 million people in the UK reported having long Covid, as the condition is known. Now healthcare staff in the UK have told the Guardian that despite being left with serious impairments as a result of long Covid, they have been turned down for personal independence payment (Pip), a non means-tested benefit helping people with the extra living costs of their chronic illness or disability. One respiratory consultant revealed they had been refused Pip despite reporting to the Department for Work and Pensions (DWP) that they had urinary incontinence, were unable to be on their feet for more than five to 10 minutes without a rest, and had difficulties preparing food, eating, washing, dressing or engaging with people face to face, among other problems. Speaking anonymously, as their application is under mandatory reconsideration, the consultant said they contracted Covid while working on a coronavirus ward in November 2020 and first applied for Pip in June 2021 after developing long Covid, which has left them unable to work. “I thought that I had illustrated quite clearly what my disability was,” they said. “When I got the report back, I thought ‘is this about me?’” Read full story Source: The Guardian, 13 June 2022
  8. News Article
    Patients with long Covid are facing a postcode lottery across the UK when it comes to getting care, nurses say. The Royal College of Nursing (RCN) said treatment varied hugely with some services treating it as a physical condition, but others as psychological. The union also highlighted long waits in parts of England, which has a network of specialist clinics. It warned that patients in Scotland and Wales may be missing out because of a lack of dedicated clinics. Speaking at the RCN's conference in Glasgow, nurses said they had seen first-hand how debilitating the symptoms could be. Nearly half of patients referred to specialist services are aged 35 to 54. Jo Strucke, a mental health nurse who works in a specialist service in Yorkshire, said: "Some of our patients have really complex physical health problems and their lives have been transformed. "They may be unable to work, socialise and do things they previously enjoyed." Helen Donovan, the RCN's public health lead, added: "As nursing staff we see first-hand how life-limiting long Covid can be." But she said: "There aren't enough specialist services to meet growing demand and the help patients get varies hugely across the country." Read full story Source: BBC News, 7 June 2022
  9. News Article
    Few of the 23 million Americans with lingering symptoms are getting answers – in this dangerous void, alternative providers and wellness companies have created a cottage industry of Long Covid miracle cures. Some doctors ply controversial blood tests that claim to identify evidence of the elusive disease. Other practitioners speak assuredly about the benefits of skipping breakfast and undergoing ozone therapy, or how zinc can bring back loss of taste or smell. Some desperate patients have gone overseas for controversial stem cell therapy. Over the next seven years, the global complementary and alternative medicine industry is expected to quadruple in value; analysts cite alternative Covid therapies as a reason for growth. Robert McCann, a 44-year-old political strategist from Lansing, Michigan, sleeps for 15 hours – and when he wakes up, he still finds it impossible to get out of bed. Sometimes he wakes up so confused that he’s unsure what day it is. McCann tested positive for Covid in July 2020. He had mild symptoms that resolved within about a week. But a few months later, pain, general confusion and debilitating exhaustion returned and never fully left. He says he’s skeptical of “miracle cures”. But, after about 17 months of illness and no relief from doctor’s visits, he’s desperate. “I’ll just be frank,” he told me, “if someone has mentioned on the Subreddit that it’s helped them, I’ve probably bought it and tried it.” Read full story Source: The Guardian, 2 June 2022
  10. Content Article
    Returning to work as a nurse with Long Covid is thwart with difficulties in part due to its relapsing-remitting nature. Many nurses with Long Covid experience post-exertional malaise and symptom exacerbation if they push themselves and this may trigger a major relapse. This means that a return to work needs to be planned carefully. Dr Alison Twycross, Editor in Chief of Evidence-Based Nursing, speaks to two freelance consultants from Long Covid Work: Dr Clare Rayner, a consultant occupational physician, and Kirsty Stanley, Director, Occupational Therapist & Writer at Occupation4Life Ltd, about best practice in this context. They provide guidance for both employers and employees. Alison, Clare and Kirsty are also members of the Long Covid Support Employment Group. 
  11. Content Article
    Following the the COVID-19 virus, a new condition known as Long Covid has emerged. Find out what people told Healthwatch about their experiences of getting treatment for this new condition. Healthwatch looked at a sample of 122 people’s experiences, shared with them between September 2020 and March 2022, to explore what it is like for people seeking help with symptoms of Long Covid.
  12. Content Article
    The Covid-19 pandemic has had a profound impact on patient safety, revealing a range of challenges across all healthcare systems, at all levels and in all settings. At the Health Plus Care conference on the 18 May 2022, Patient Safety Learning's CEO Helen Hughes, in a keynote speech, reflected on the impact of the pandemic on patient safety and work being undertaken by the World Health Organization to assess this. See attached her presentation slides.
  13. News Article
    Health officials are calling for urgent intervention from the government to meet the steep surge in demand for occupational therapy in the wake of the Covid-19 pandemic. According to healthcare professionals from both the NHS and the private care system, demand for occupational-therapy-led rehabilitation services in Britain has increased by a staggering 82 per cent over the past six months alone. Swelling pressure on already “overloaded” rehabilitation services has stirred up stark warnings from members of the Royal College of Occupational Therapists (RCOT), who say the level of demand for the service they provide “isn’t sustainable” as there isn’t a large enough workforce to meet the need. A revealing survey carried out by the college has raised grave questions about the prospect of providing timely rehabilitation for people recovering from short and long-term illnesses who need urgent support to enable them to carry out their daily activities. The survey of of 550 occupational therapists working in the UK found that 84 per cent are now supporting people whose needs have become more complex because of delays in treatment brought about by the pandemic. As a result of this, coupled with a wider increase in the number of people requiring help, 71 per cent of the RCOT’s respondents felt there were not enough occupational therapists to meet the demand. Read full story (paywalled) Source: The Independent, 22 May 2022
  14. Content Article
    On 23 March 2021, Long COVID Physio Chair and co-founder Darren Brown presented to the Royal Pharmaceutical Society at the “Long COVID - what it is and how to manage it” webinar. In this interactive session, you can hear first-hand from those who have experienced Long Covid as well as experts on this topic. The multi-disciplinary panel explains how you can recognise and support those who may be living with Long Covid.
  15. News Article
    More than half of people hospitalised with Covid-19 still have at least one symptom two years after they were first infected, according to the longest follow-up study of its kind. While physical and mental health generally improve over time, the analysis suggests that coronavirus patients discharged from hospital still tend to experience poorer health and quality of life than the general population. The research was published in the Lancet Respiratory Medicine. “Our findings indicate that for a certain proportion of hospitalised Covid-19 survivors, while they may have cleared the initial infection, more than two years is needed to recover fully,” said the lead author, Prof Bin Cao, of the China-Japan Friendship hospital in China. Until now, the long-term health effects of Covid-19 have remained largely unknown, as the longest follow-up studies to date have spanned about a year. The absence of pre-Covid-19 health status data and comparisons with the general population in most studies also made it difficult to determine how well patients with Covid-19 have recovered. “Ongoing follow-up of Covid-19 survivors, particularly those with symptoms of long Covid, is essential to understand the longer course of the illness, as is further exploration of the benefits of rehabilitation programmes for recovery,” said Cao. “There is a clear need to provide continued support to a significant proportion of people who’ve had Covid-19, and to understand how vaccines, emerging treatments and variants affect long-term health outcomes.” Read full story Source: The Guardian, 11 May 2022
  16. Content Article
    With the ongoing COVID-19 pandemic, growing evidence shows that a considerable proportion of people who have recovered from COVID-19 have long-term effects on multiple organs and systems. A few longitudinal studies have reported on the persistent health effects of COVID-19, but the follow-up was limited to 1 year after acute infection. The aim of this study from Huang et al., published in Lancet Respiratory Medicine, was to characterise the longitudinal evolution of health outcomes in hospital survivors with different initial disease severity throughout 2 years after acute COVID-19 infection and to determine their recovery status. The study found thategardless of initial disease severity, COVID-19 survivors had longitudinal improvements in physical and mental health, with most returning to their original work within 2 years; however, the burden of symptomatic sequelae remained fairly high. COVID-19 survivors had a remarkably lower health status than the general population at 2 years. The study findings indicate that there is an urgent need to explore the pathogenesis of long COVID and develop effective interventions to reduce the risk of long COVID.
  17. News Article
    People suffering from long Covid have reacted with alarm to comments by government’s equalities watchdog that the condition should not be treated as a disability. Under the Equalities Act, anyone with a physical or mental impairment that has lasted for longer than 12 months and substantially impacted their ability to carry out normal day-to-day activities qualifies as disabled and is entitled to protection to ensure that they aren’t discriminated against in the workplace. This includes requesting that their employer makes “reasonable adjustments”, such as flexible working hours or home working, to ensure that they can continue working. In a tweet posted on Sunday night, the Equalities and Human Rights Commission (EHRC), which was set up to promote and enforce equality and non-discrimination laws said: “Discussions continue on whether ‘long Covid’ symptoms constitute a disability. Without case law or scientific consensus, EHRC does not recommend that ‘long Covid’ be treated as a disability.” The statement prompted immediate concern and confusion from long Covid support groups and unions. Dr Jenny Ceolta-Smith, an employment advocate for Long Covid Support and co-founder of Occupational Therapy for Long Covid, said: “There is already disbelief of workers’ long Covid symptoms within the workplace, and this harmful announcement by the EHRC may make it much harder for workers to gain the support that they need from colleagues and line managers. It may even mean more jobs are lost.” Read full story Source: The Guardian, 9 May 2022
  18. Content Article
    Endurance athletes have been left using wheelchairs or barely able to walk. But the government acts like Covid is beaten, writes Rose George in this Guardian article.
  19. Event
    until
    Long COVID Physio will host the Long COVID Physio International Forum in partnership with Rocky Mountain University of Health Professions and Fisiocamera, sponsored by Kaiser Permanente and Realize Canada. The two day online forum will bring the lived experience to Long COVID, disability and rehabilitation. The Long COVID Physio International Forum is suitable for any audience, including health and social care professionals, people living with or affected by Long COVID or other conditions, academics, service providers, policymakers, students of allied health and rehabilitation professions, and people wanting to learn more. The Long COVID Physio International Forum programme will be released soon. Programme content will be delivered live and available on demand, covering three different streams: Science - learn the most up to date research from leaders in the field. Discussion - the hot discussions and debates on the topics we all want. Workshop - share knowledge and skills that make a difference. Registration will open June 15th 2022. Further details can be found here.
  20. Content Article
    Britain’s next public health crisis is already looming: Long Covid. The numbers are stark. According to the Office for National Statistics, 1.5 million people in the UK have long Covid, 281,000 of whom are so ill that their ability to undertake day-to-day activities has been limited “a lot”. Ravi Veriah Jacques knows first hand how debilitating Long Covid can be. He is only 23. Before Covid struck, Ravi had just graduated from Stanford University and was halfway through a master’s degree at Tsinghua University, Beijing, as a Schwarzman scholar. However, he has been seriously ill for a full year. Hisy main symptom has been an intense fatigue that has forced me to spend up to 16 hours a day in bed and, when I do get up, I can’t do any strenuous activity without my symptoms worsening. Long Covid has put my life almost completely on hold. Yet Ravi has received no effective medical treatment. He is being seen in London at University College hospital’s Long Covid clinic, where he has been prescribed antihistamines and given advice on how to manage his symptoms. Neither measure has made a dent on his fatigue. Ravi's experience is far from unique. None of the more than 80 specialist NHS Long Covid clinics can offer longhaulers effective treatments. But the clinics aren’t the primary issue. The fundamental problem is that we lack treatments because research isn’t progressing fast enough.
  21. News Article
    Fewer than one in three people who have been hospitalised with Covid-19 have fully recovered a year after they succumbed to infection. That is the shock finding of a survey into the impact of long Covid in the UK. The team of scientists and doctors at Leicester University also found that women had poorer recovery rates than men after hospitalisation, while obesity was also likely to hinder a person’s prospects of health improvements. Among the symptoms reported by patients a year after their initial infection were fatigue, muscle pain, poor sleep and breathlessness. “Given that more than 750,000 people have been hospitalised in the UK with Covid-19 over the past two years, it is clear from our research that the legacy of this disease is going to be huge,” said Rachael Evans, one of the study’s authors. The team stressed their results show there is now an urgent need to develop ways to tackle Long Covid. “Without effective treatments, Long Covid could become a highly prevalent long-term condition,” said Professor Chris Brightling, another author. A critical factor in these poor rates of recovery was the lack of treatments that exist for Long Covid, added Professor Louise Wain, who was also involved in the study. “No specific therapeutics exist for long Covid and our data highlights that effective interventions are urgently required.” The researchers also found that many of those reporting impairment in the wake of their hospitalisation were suffering from persistent inflammation. “That suggests these groups might respond to anti-inflammatory strategies,” added Wain. Read full story Source: The Guardian, 24 April 2022
  22. Content Article
    Dr Roberta Heale, Associate Editor of Evidence-Based Nursing, speaks to Dr Elaine Maxwell, Nurse and author of two National Institute for Health Research reviews on evidence on Long COVID in this BMJ Talk Medicine podcast. They discuss the variance in reported Long COVID statistics, the impact of vaccinations, symptoms, and research efforts.
  23. Content Article
    Chen et al. examined the worldwide prevalence of post COVID-19 condition, through a systematic review and meta-analysis. The research, published in the Journal of Infectious Disease, assessed 23 symptoms reported across 36 of the studies and found that shortness of breath, sleep problems, and joint pain was widely reported by those who had recovered from the novel coronavirus infection. They analysed the prevalence of this condition globally and regionally, estimating the proportion of individuals facing long Covid in Asia, Europe and North America. They found that the global prevalence for post-Covid conditions at 30, 60, 90 and 120 days after infection was about 37, 25, 32, and 49%, respectively. The authors concluded that post COVID-19 condition prevalence is substantial; the health effects of COVID-19 appear to be prolonged and can exert stress on the healthcare system.
  24. News Article
    An analysis of data from 50 studies looking at 1.6 million people suggests that as much as 43% of those infected with the coronavirus experienced post-Covid conditions, pointing to the need for better diagnosis and care for “long Covid” patients. Post-Covid conditions are clinically defined by the World Health Organization (WHO) as mid- and long-term symptoms – also known as Long Covid – occurring in individuals after infection with the SARS-CoV-2 virus. The research, published this week in the Journal of Infectious Disease, assessed 23 symptoms reported across 36 of the studies and found that shortness of breath, sleep problems, and joint pain was widely reported by those who had recovered from the novel coronavirus infection. Researchers say fatigue (23%) and memory problems (14%) were the most common symptoms of individuals experiencing post-Covid conditions. While about 34% of non-hospitalised coronavirus patients report lingering post-Covid symptoms, scientists say this rate jumps to over 50% for hospitalised Covid patients. “Long Covid is quite common overall and across geographic regions, sex and acute COVID-19 severity. Knowing this, providers should take proactive approaches such that their patients are well-supported when experiencing long-term health effects of Covid-19,” scientists wrote in the study. Read full story Source: The Independent, 21 April 2022
  25. Content Article
    Whatever your standpoint on whether the pandemic is over, or what “living with the virus” should mean, it is clear some manifestation of Covid-19 will be with us for some time to come. Not least for the estimated 1.7 million people in the UK living with Long Covid. This is a now a large, well-documented, convergent cluster of clear physiological symptoms, and it is common to every part of the globe affected by Covid-19. Many sufferers are now disabled and deprived of their former passions, while some are unable to resume their former professions. Doctors and scientists the world over now consider this a recognised part of the Sars-CoV-2 symptom profile. We thought that the number of Long Covid cases developing might be lower when most cases were breakthrough cases in the vaccinated, or infections in vaccinated or partially vaccinated children. Sadly, far from any subsidence in new Long Covid cases, the big, ongoing caseloads of the Delta, Omicron and BA.2 waves have brought a large cohort of new sufferers. These waves have disproportionately affected primary and secondary schools, and many of the new sufferers are children. In this Guardian article, Danny Altmann discusses why a failure to recognise the need for a response to Long Covid could be a blunder we rue for decades to come
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