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Found 454 results
  1. Content Article
    Globally, children have been profoundly affected by the COVID-19 pandemic in many ways. While the majority of children with acute COVID-19 infection experience mild illness and fully recover, many go on to experience Long Covid. Long Covid is clinically identified by experience of persistent (and sometimes different) symptoms for several months after the acute infection (even in children who were asymptomatic). There is currently no agreed consensus on the case definition of Long Covid, but real-world data from American health insurance firms and the UK Office for National Statistics report that children may experience intestinal symptoms, pain, breathlessness, cognitive dysfunction and post-exercise malaise. The current understanding of the natural history, diagnostics and treatments of Long Covid is limited, meaning the medical model in isolation is not helpful. Michael Fanner and  Elaine Maxwell in this paper explores how health visitors and school nurses are ideally placed to case-find children with Long Covid and co-produce child and family-centred care.
  2. Content Article
    In this blog for The BMJ, several doctors who are experiencing long term impacts of Covid-19 share their report of a meeting with the World Health Organization's Covid-19 response team in August 2020. They highlighted the importance of patient-led research and and engaging with patients with Long Covid.
  3. Content Article
    A Community of Practice for nurses in the community to improve care and increase understanding about the physical, mental and emotional effects of Long Covid.
  4. Event
    until
    The Queen's Nursing Institute (QNI) is delighted to invite you to a free online event for the Long Covid Nurse Expert Group Re-launch. The Long Covid nurse expert group was set up by the QNI to examine issues and practice related to the management of Long Covid in community, primary care and social care settings. Find out more about the Long Covid Nurse Expert Group Sign up for the event If you have any queries about the group or event, contact Eve Thrupp
  5. Content Article
    Long-COVID refers to a variety of symptoms affecting different organs reported by people following Coronavirus Disease 2019 (COVID-19) infection. To date, there have been no robust estimates of the incidence and co-occurrence of long-COVID features, their relationship to age, sex, or severity of infection, and the extent to which they are specific to COVID-19. The aim of this study from Taquet et al. is to address these issues.
  6. Event
    until
    We’re no longer in a national lockdown and life feels as though it is slowly getting back to normal, but for those who contracted COVID-19 and are still living with the debilitating consequences of the virus, the battle is far from won. With almost 400,000 UK adults experiencing the prevailing symptoms of COVID-19 over a year after first contracting the virus, Long Covid continues to remain on the agenda as a pressing and pertinent issue. This webinar from National Voices explores a person-centred response to Long Covid. This webinar event emerges as a sub-section of National Voices’ larger programme of work commissioned by NHSE/I, working alongside six VCSE organisations who support members of the community at risk of exclusion. During this event we will be joined by Michael MacLennan of covid:aid, Claire Hastie of Long Covid Support, Sammie Mcfarland of Long Covid Kids, and Davine Forde, a Lived Experience Associate from Manchester Health & Care Commissioning. They will engage in a panel discussion, sharing the lived experiences of those with Long Covid and shining a light on the crucial work that community-based organisations are doing to alleviate the burden on health services in response to Long Covid. Rachel Matthews, our Head of Experience, and Keymn Whervin, our Lived Experience Associate, will also examine the impact of implementing strategic co-production in working with lived experience leaders, uncovered through their Voices for Improvement project at National Voices. Discussions will be followed by a Q&A session with questions invited from attendees. Register
  7. Content Article
    The World Health Organization IWHO) has developed a clinical case definition of post COVID-19 condition by Delphi methodology that includes 12 domains, available for use in all settings. This first version was developed by patients, researchers and others, representing all WHO regions, with the understanding that the definition may change as new evidence emerges and our understanding of the consequences of COVID-19 continues to evolve.
  8. News Article
    More than one in ten secondary school pupils and over a third of school staff who had COVID-19 have suffered ongoing symptoms, figures suggest. The most common symptom reported by staff and pupils was weakness/tiredness, while staff were more likely to experience shortness of breath than pupils, according to a small study of schools in England. The survey from the Office for National Statistics (ONS) estimates that about 35.7% of staff and 12.3% of secondary school pupils with a previously confirmed Covid-19 infection reported experiencing ongoing symptoms more than four weeks from the start of the infection. Among those experiencing ongoing symptoms, 15.5% of staff and 9.4% of secondary school pupils said their ability to carry out day-to-day activities had been significantly reduced. Geoff Barton, general secretary of the Association of School and College Leaders, said: “This survey data reveals the largely hidden long-term effects of Covid on both students and school and college staff. Read full story Source: Wales Online, 28 September 2021
  9. Content Article
    This systematic review published in BMJ Global Health looks to identify the nature, frequency and causes of long-COVID symptoms by reviewing data from existing research studies into long-COVID. It aims to regularly synthesise evidence on long-COVID characteristics to help improve long-term outcomes. From the data provided by 39 studies, the review found that: long-COVID affects both patients who were hospitalised and those managed in the community patients with long-COVID display a wide range of symptoms including weakness, general malaise, fatigue, concentration impairment and breathlessness research currently available on long-COVID is vulnerable to bias, so caution should be used when interpreting data. The authors also identify areas where further research is needed to help define long-COVID symptoms, identify risk factors for different populations and assess the impact of variants of concern and vaccination on long-term outcomes.
  10. Content Article
    This study in Jama Network Open examines the health outcomes of patients who were hospitalised with COVID-19 in two Wuhan hospitals between February and April 2020. The authors found that: 45 percent of patients reported at least one symptom one year after hospitalisation the most common symptoms that patients reported were fatigue, sweating, chest tightness, anxiety and muscle pain patients who experienced severe disease during hospitalisation were more likely to experience more symptoms of long-COVID one year on patients who experienced severe disease were likely to have higher chronic obstructive pulmonary disease (COPD) assessment test scores that patients with less severe disease.
  11. Content Article
    In this blog, PC Barry Calder, Lead of the Metropolitan Police Service Disability Staff Association COVID Peer Support Group, raises concerns about the potential impact of long COVID on staff and organisations. He highlights that organisations can take proactive steps to mitigate the consequences of staff being affected by long COVID, such as staff absences and changes to job roles. He recommends that organisations: introduce regular contingency planning activities (such as COVID Resilience meetings) ensure managers are trained to support staff living with long COVID ensure occupational health and staff wellbeing services include support relevant to long COVID consider establishing peer support groups for affected staff.
  12. Content Article
    This leaflet produced by Clare Rayner for The PACS (Post-Acute Covid Syndrome) International Working Group provides information for patients on diagnosing Covid-19 without a positive swab test.
  13. Content Article
    The Children and young people with Long COVID (CLoCk) study is the largest study to date of children and young people in the world. It aims to describe how children and young people are affected by post-COVID physical symptoms and mental health problems and to identify those most at risk. The CLoCk study is led by UCL and Public Health England and involves collaboration with researchers at the universities of Edinburgh, Bristol, Oxford, Cambridge, Liverpool, Leicester, Manchester as well as King’s College London, Imperial College London, Public Health England, Great Ormond Street Hospital and University College London Hospitals (UCLH).
  14. Content Article
    Many people with long COVID feel that science is failing them. Neglecting them could make the pandemic even worse, writes Ed Yong in this article for The Atlantic.
  15. News Article
    One in 40 people with coronavirus has symptoms lasting at least three months, Office for National Statistics figures suggest. In April, an ONS report put the proportion at about one in every 10. The latest, large and comprehensive analysis suggests long Covid may be less common than previously thought. But the condition is not fully understood and still has no universally agreed definition, leading to different studies producing different figures. However, like many other reports, the analysis suggests women, 50- to 69-year-olds and people with other long-term health conditions are the most likely to have symptoms of long Covid 12 weeks after a Covid infection. People with high levels of virus in their body when testing positive are also more likely to have long Covid, the analysis suggests. Read full story Source: BBC News, 17 September 2021
  16. News Article
    In recent months, long Covid has received a great deal of media and public attention. Research has found that as many as one in four of those infected with Covid suffer from chronic long-term symptoms, including headaches, dizziness, abdominal pain, heart problems, fatigue, anxiety, depression, cognitive impairment and other conditions. It is a difficult and complex illness, and we must do much more to help those who are struggling with it. At the same time, it is important to realise that rather than being a strange special case, long Covid is probably part of a broader phenomenon that affects many more people. In recent years, doctors and researchers have increasingly realised that many of those who survive an illness of any kind, or who go through serious physical trauma, are at high risk for a range of debilitating and chronic physical, cognitive and mental health symptoms – problems that closely resemble long Covid. As medicine has advanced, clinicians have learned how to save hundreds of thousands of severely ill or injured patients who would have previously died. Although this is a remarkable accomplishment, however, in many cases, survival does not mean complete recovery: some patients find that their bodies, brains and psyches continue to bear the scars of what they have gone through. One non-Covid study found that a year after hospitalisation, a third of patients with severe respiratory failure or shock had significant cognitive impairment. Another found that between a quarter and a third of patients who were treated in the ICU had significant and long-lasting symptoms of anxiety, depression or PTSD. Researchers have found similar results for survivors of other medical conditions, including cancer, multiple sclerosis and ALS. Unfortunately, people with long Covid, as well as other chronic post-illness symptoms, often find that the medical establishment doesn’t understand their experience, and so minimises or questions it. This is not surprising: clinicians tend to pay less attention to how patients with severe illness do once they are out of mortal danger, or once symptoms extend beyond an arbitrary time frame. Read full story Source: The Guardian, 12 September 2021
  17. Content Article
    At Cromwell Hospital’s Long Covid Clinic, a multidisciplinary team of consultants are learning lessons from the virus. Dr Brian O’Connor, a consultant in respiratory medicine, and consultant psychiatrist Dr Rajeev Dhar are part of the multidisciplinary Long Covid team at Cromwell Hospital. “We established the clinic because, between the various consultants, we recognised we had an increasing number of mutual patients who had symptoms that didn’t add up,” he explains. “You’d have patients with psychological symptoms, such as low-grade levels of anxiety and depression, but they would also display odd physical symptoms such as palpitations or breathlessness when they lay down.” The collaboration between consultants across the fields of respiratory medicine, cardiology, neurology and psychiatry has allowed them to pool information and recognise symptom patterns quickly. Both Dr O’Connor and Dr Dhar believe the holistic, multidisciplinary treatment being delivered at the clinic could have a longer-term effect — one that involves a fundamental change in attitudes and perspective. “Medicine often focuses on treating symptoms,” Dr Dhar explains, “but long Covid has made us think about how we help people to function better. Our approach is now focused on how people are functioning, because that tells us how well we’re managing the symptoms.”
  18. Content Article
    This paper from Trish Greenhalgh and colleagues explores the lived experience of ‘brain fog’—the wide variety of neurocognitive symptoms that can follow Covid-19.
  19. News Article
    Dr Kelly Fearnley caught COVID-19 in November 2020, after being redeployed to work on a coronavirus ward. Ten months on, she’s still living with debilitating symptoms of the condition known as long Covid. The latest estimates, published in June, suggest more than two million people in the UK have had long Covid since the pandemic began, while figures released by the Office for National Statistics in April show that more than 120,000 of those are NHS staff. Dr Fearnley discusses with iNews her experience of being taken to hospital after becoming seriously unwell. Dr Fearnley had a high resting heart rate and wasn’t able to get out of bed. She had pins and needles and was experiencing attacks of breathlessness, as well as violent shaking of her entire body. Yet, after running tests, she says the senior doctor she saw made it clear they believed Dr Fearnley was suffering from anxiety. “I was [treated as] an anxious little girl. My concerns weren’t taken seriously. Despite being a doctor myself, I felt let down by my colleagues at a time when I needed help but help wasn’t there,” Dr Fearnley said. “Sadly, I know my experience isn’t uncommon. I know a lot of long haulers have had their symptoms dismissed as anxiety.” But Dr Fearnley’s experience is also not unique to long Covid patients. “There’s a long history in medicine of dismissing hard-to-diagnose and hard-to-treat patients as having psychological or behavioural problems,” says Brian Hughes, Professor of Psychology at the National University of Ireland, Galway. “Historically, these problems have also been far more likely to emerge where illnesses primarily affect women,” he added. There are countless examples of this, but the condition that’s been most closely linked to long Covid is myalgic encephalomyelitis (ME) – also known as chronic fatigue syndrome or ME/CFS. 2020 research into GPs’ knowledge and understanding of the condition found that between a third and half of GPs did not accept ME as a “genuine clinical entity“. As a result, patients have continued to have their symptoms disbelieved or dismissed as psychological for decades. Read full story Source: iNews, 9 September 2021
  20. Content Article
    In this blog Barbara Melville-Jóhannesson, Long Covid campaigner, highlights the importance of including lived-experience in research and service-design. She lays out six actions for organisations to help ensure that involvement is not just a tick-box exercise.
  21. Content Article
    2020/2021 has been challenging for healthcare worker. We went from hearing the rumours of an outbreak of some kind of disease halfway across the world to upwards of 2 million infected and 125,000 dead with little known about the virus. Approximately 12%–19% of those infected will require hospitalisation and 3–6% will become critically ill. These patients are at high risk of cardiac arrest. Even during a pandemic, the care of patients in our healthcare facilities must continue. Resuscitation is especially challenging in the presence of or the assumption of COVID-19. This article from the ACLS Training Center pulls together the recommendations of some of the top experts in resuscitation and infection control in the world. 
  22. Content Article
    This article by Ed Yong discusses the impact of Long Covid on patients and how for both unvaccinated and vaccinated people, is one of the pandemic’s biggest and least-addressed unknowns.
  23. News Article
    Experts have said the risk of "long Covid" in children is much lower than many had feared, with research suggesting somewhere between 2% and 14% still had symptoms caused by Covid 15 weeks later. However, while the research team found little evidence to showing huge number seeking help for symptoms that had left them bedridden or unable to attend school, it was still important that they received support if they had any persistent symptoms such as headaches, tiredness and breathing difficulties. Prof Sir Terence Stephenson, from UCL's Great Ormond Street Institute of Child Health, said of the development of Long Covid in children, "It is nowhere near what people thought in the worst-case scenario". Read full story. Source: BBC News, 01 September 2021
  24. News Article
    Young people experiencing long Covid have urged people to get their vaccine in a new NHS video, featuring three previously healthy people in their early 20s and 30s. Quincy Dwamena, a 31 year-old a support worker, described himself in the video as a “healthy young guy”, warned “I ended up being hospitalised and thought I was going to die. My advice is to get the vaccine: don’t put yourself and others at risk, I wish I’d got mine as soon as it was offered.” Data from Public Health England has shown young people aged 16 to 29 at more likely to develop long Covid, however, vaccine uptake among this age group is lower than average, particularly within the London area. Speaking in the NHS video, Dr Emeka Okorocha, an emergency medicine physician said, “As an A&E doctor, I’ve seen a lot during the pandemic. But nothing has shaken me like the sight of young, otherwise healthy adults being rushed into our hospitals with Covid-19. As well as their age, many of them have one other thing in common: they are unvaccinated.” Read full story. Source: The Guardian, 23 August 2021
  25. News Article
    A new report has found tens of thousands of children are suffering from Long Covid, with experts worried children will be left vulnerable if the vaccine roll-out does not expand to include the 12-15 year old age group. Experts have also warned herd immunity cannot be achieved without the young people taking the jab. "There is no time to waste in getting on with this. We could have had all of this age group [16- and 17-year-olds] vaccinated before September." Said Dr Deepti Gurdasani, an epidemiologist at Queen Mary University London. Read full story. Source: The Independent, 6 August 2021
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