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Painful hysteroscopy

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I'm very pleased to hear you had a smooth pain-free procedure, Birdy2020!  Excellent!  You clearly had an excellent team looking after you!  What you are saying about your experience is how it should be for all women! 

However, this is far from the case.  We are all different and women don't need to have an underlying health condition to experience severe pain with this procedure.  Research figures show that approximately 30% of women undergoing hysteroscopy in outpatients will experience considerable pain and it is barbaric to carry these out when women are shouting out with pain and fainting, as happens on a daily basis in the UK,  Women are also being lied to by the hospital staff when told that the procedure definitely won't be painful, or will be the same as a smear test or maybe  period "cramps".  I see you took cocodamol and naproxen before your appointment.  Most women are advised to take normal doses of paracetamol and ibuprofen which doesn't seem to touch the pain experienced by some. 

Another factor relating to pain is the type of equipment used in the clinic and the skills of the people carrying out the procedure.  The British Society for Gynaecological Endoscopy (BSGE) acknowledge that training, skills and equipment are all factors relating patients' acceptability of the procedure.

I was post-menopausal when I had this procedure, (not an underlying health condition), which the hospital were aware of.  The pain I experienced was worse than childbirth, leaving me feeling traumatised and violated.  Because of the pain I experienced, the procedure wasn't completed and I had to return for a further hysteroscopy and polyp removal under GA (thankfully I didn't have cancer).  If anaesthetics (eg entonox (gas and air), or sedation as used for dentistry, spinal block) had been available in outpatients this probably wouldn't have been necessary.  I also find I now have no trust in people carrying out further procedures on my body.  I'm not alone with this and there is a risk that women will avoid future visits to hospitals and drs in detriment to their future health.

I now campaign to try and bring about change, so other women won't have the same experience, but will be treated with the dignity and respect afforded to patients undergoing other endoscopy procedures, i.e. being able to give fully informed consent and receive appropriate anaesthetic, if that is what the person would like, not necessarily GA as there are other options as mentioned above.

This is the current RCOG information for women undergoing hysteroscopy:https://www.rcog.org.uk/en/patients/patient-leaflets/outpatient-hysteroscopy/

and the BSGE issued the following statement to its members: https://www.bsge.org.uk/news/bsge-statement-regarding-outpatient-hysteroscopy/

Best wishes

 

 

 

 

2 reactions so far

Hi

Thank you for replying  to my message on here,  I was merely putting my experience to help others like me yesterday not to cause a debate, nor do I want to get into one, i am well aware of why and what the procedure was for and wanted to describe my experience on the hysteroscopy procedure,  it was 100% fine for me and listened to professionals and a consultant skilled in that area to give me exactly that and trusted there guidance and information and trust me I asked many questions before hand and consenting

I am well aware of hospital protocols, luckily having a daughter as a highly skilled nurse who gave me the information needed for me to proceed with the hysteroscopy procedure, im all for woman having choice however until you have this procedure only you can talk  about a good or bad experience ssdly some have experienced bad or suffered for ressons i do not know and and sympathise as I raised in my comment earlier I suffer with anxiety therefore i read all information given and was satisfied. And happy it was dealt with yesterday i wouldn't have wanted to wait wait 2 weeks nor wait for results that would have heightened my anxiety.

I wanted to share a positive experience on here regardless it is only fair we all have a voice and hope my experience encourages others to do the same 🤗

4 reactions so far

Hi Birdy - it's great to hear that you had a skilled compassionate team looking after you.  I'm a researcher for the Campaign Against Painful Hysteroscopy.  It's very useful and reassuring for patients to know where in the country there are excellent outpatient hysteroscopy teams.  Please, at some stage, might you consider posting your story anonymously on the independent www.careopinion.org.uk website?   Totally agree with you that all women should be able to make a fully informed choice as to how hysteroscopy - and other gynae procedures - are performed.   

1 reactions so far

Hi Kathryn 

Yes of corse absolutely i will gladly share my experience.

Nothing saddens me more for any woman to suffer and have a traumatic experience in this day and age I know how this can affect anyone long term with any  trauma.

I put many objectives on the table to the consultant yesterday i am no push over and whilst the hysteroscopy is not pleasant around dignity etc if there is another way of getting round this procedure I am all for that but for me yesterday it left me feeling a lot of admiration for the team i had with me yesterday practiced skills with reassurance caring respect patience,  and I felt very looked after  and  honestly could not have thanked them enough Kathryn. X

3 reactions so far

@Birdy2020 thank you so much for taking the time to share your experience on the hub. Many women, like you, do not experience high levels of pain during hysteroscopy and it is wonderful to hear positive stories. The levels of pain differ so greatly and it can be difficult highlighting the trauma that has been felt by many, without causing anxiety for others, who may not have any difficulty with the procedure. It sounds like, importantly, you felt informed, able to speak up and in safe hands.  

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43 minutes ago, PatientSafetyLearning Team said:

@Birdy2020 thank you so much for taking the time to share your experience on the hub. Many women, like you, do not experience high levels of pain during hysteroscopy and it is wonderful to hear positive stories. The levels of pain differ so greatly and it can be difficult highlighting the trauma that has been felt by many, without causing anxiety for others, who may not have any difficulty with the procedure. It sounds like, importantly, you felt informed, able to speak up and in safe hands.  

Surely all women are entitled to pain free hysteroscopy? 

The problem many of us face is that we don't have the information before the procedure so we can't make an informed choice. Most women don't have relatives working in the NHS who can give them the heads up as to what to ask. And we can't have any anaesthesia or even basic pain relief - and women don't know that this is wrong. Many women are told to take paracetamol or ibuprofen - I wouldn't know how to access cocodamol or naproxen, how do women get hold of this if it helps? 

1 reactions so far

Yes access to stronger pain relief is a big problem. Most women don't get honest info about the possibility of experiencing sever to intolerable pain so couldn't know to ask for it. One other big problem is the lack of screening.  I was never a suitable candidate for OPH in the 1st place. No relevant history was taken all the women at my clinic got pushed through trial out patient hysteroscopy whether they were suitable or not, unless they additional information from elsewhere. When it failed like mine predictable did . I was informed that it could be done with a GA. It was too late, the damage was done I find it very difficult to go to any Dr or hospital I need sedation. I have lost trust in all medics with the exception of anaesthetist. Women should not need to be in the know to get pain free treatment.

1 reactions so far
Edited by Clarke Typo

I have had a hysteroscopy and freaked myself out beforehand by reading things online and really wish I hadn’t. My first hysteroscopy where my doctor took a biopsy was less painful than some period pains I’ve experienced. Today I had my polyp removed no local anaesthetic used and it was more painful than the first procedure but bearable. I know everyone’s tolerance is different but I really over thought and worried about this procedure based on what I read online. I took paracetamol and ibroprufen beforehand which would have definitely helped so would advise anyone else having this to not freak out as I did, take pain relief beforehand and it’s over fairly quickly. For me I’m glad I didn’t have a general anaesthetic as at the moment with Covid you need to isolate etc and the pain was bearable as an outpatient. Hopefully this helps someone else who’s unsure.

1 reactions so far

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