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Found 266 results
  1. Content Article
    When recovering from COVID-19 people may still be coming to terms with the impact the virus has had on both their body and mind. Your COVID Recovery is a digital resource that has been developed by the NHS to help people understand what has happened and what they might expect as part of their recovery. Content includes: Managing the effects Wellbeing Exercises When to seek help Information for family, friends and carers.
  2. Content Article
    Patient Safety Learning have been hearing from patients suffering persistent symptoms of COVID-19, that they are feeling abandoned and unsupported. But in this 2-minute Tuesday session, Stephanie O'Donohue, Hub Content and Engagement Manager, asks Long COVID patients about any positive experiences they’ve had with the healthcare system, and ways in which they’ve been made to feel safe.
  3. Content Article
    Lea Lane is a US travel writer who hasn’t left her home in over four months, except for medical reasons. Lea gives her own personal account of having coronavirus and the longer term effects it is having on her "Trump has claimed that 99% of cases of COVID-19 are 'totally harmless.' His take is 'live with it.' Many thousands of COVID-19 survivors are unfortunately doing just that, suffering strange, debilitating symptoms that come and go for months after first coming down with the novel virus. Unfortunately we are discovering that the disease can not only be deadly, but chronic — or as sufferers call it, 'long-haul.'
  4. Content Article
    A group of doctors who have chronic COVID-19 symptoms have been digesting information on social media platforms from thousands of individuals in the UK and worldwide affected by covid symptoms for 16 weeks or more. Some of these symptoms and patients’ experiences have been summarised in a video “Message in a bottle—long covid SOS.” The announcement of an NHS portal for patients who have been admitted to hospital or dealt with the illness at home is a welcome signal that the problems of long standing covid symptoms are starting to be recognised. In this BMJ article, the authors explore these patients' experiences and urge that the new NHS portal should be co-created with by patients with COVID-19 and carers. There needs to be some bidirectionality in the creation of this service and subsequent research to avoid institutional “top down” blind spots about the condition.
  5. Content Article
    Early clinical experiences have demonstrated the wide spectrum of COVID-19 presentations, including various reports of atypical presentations of COVID-19 and possible mimic conditions. This article, published in the BMJ, summarises the current evidence surrounding atypical presentations of COVID-19 including neurological, cardiovascular, gastrointestinal, otorhinolaryngology and geriatric features. 
  6. Content Article
    This short film was created by patients who are experiencing long-lasting and debilitating symptoms of COVID-19, to raise awareness of their ongoing issues, also known as 'Long COVID'.
  7. Content Article
    The coronavirus (Covid-19) pandemic will leave a deep and lasting scar on the mental health of millions in this country. The devastating loss of life, the impact of lockdown and loneliness, and the inevitable recession that lies ahead will affect all of us. Prioritising mental health has never been more critical than it is now. New mental health problems have developed as a result of the pandemic, and existing mental health problems have gotten worse. To understand how we can best support people during this uncertain time, Mind carried out research to understand the experiences of people with pre-existing mental health problems, the challenges that they are facing, the coping strategies that they are using, and the support they would like to receive.
  8. Content Article
    In this interview, Dr Jake Suett talks about his experience of persisting and debilitating symptoms after he was suspected to have contracted COVID-19. Additional reading: Patient safety concerns for Long COVID patients (6 July 2020) Press release: Patient Safety Learning calls for urgent action to ensure Long COVID patients are heard and supported (6 July 2020) My experience of suspected 'Long COVID' (6 July 2020) Dismissed, unsupported and misdiagnosed: Interview with a COVID-19 ‘long-hauler’
  9. Content Article
    Weeks and months after having a confirmed or suspected Covid-19 infection, many people are finding they still haven’t fully recovered. Emerging reports describe lingering symptoms ranging from fatigue and brain-fog to breathlessness and tingling toes. So why does Covid-19 cause lasting health problems? In this podcast, Ian Sample discusses some of the possible explanations with Prof Danny Altmann, and finds out how patients might be helped in the future.
  10. Content Article
    An increasing number of people with confirmed or suspected COVID-19 are continuing to struggle with prolonged, debilitating and sometimes severe symptoms months later.[1] Many were never admitted to hospital and have instead been trying to manage their symptoms and recovery at home. These patients are sometimes referred to as the ‘long-haulers’ or described as having ‘post-acute’, ‘chronic’ or ‘long-term’ COVID-19. Here, we will use the term ‘Long COVID’. With social distancing restrictions still in place, patients in the UK and across the world have been turning to social media support networks[2] to connect with others who are experiencing similar challenges. These patients have raised very credible concerns about the care they are receiving[3] and the uncertainties they face. Their concerns are revealing many implications for patient safety. We have recently shared on the hub the story of Dr Jake Suett[4], one of the many people experiencing symptoms of Long COVID. When we conclude this article, we will return to his story and highlight the changes that he is calling for. However, first, we will focus on the patient safety aspects of Long COVID, highlighting key areas of concern and action needed (a full list of actions can be found summarised here).
  11. Content Article
    In this blog, intensive care doctor Jake Suett draws on his personal journey and that of others to highlight the prolonged and frightening symptoms many patients with confirmed or suspected COVID-19 are experiencing. Jake outlines his concerns and sets out recommendations for future action to address the needs of these 'Long COVID' patients. Included is an example letter that can be adapted by others to call on MPs to raise awareness of those suffering persisting symptoms of COVID-19. 
  12. Content Article
    The COVID Trauma Response Working Group has been formed to help coordinate trauma-informed responses to the COVID outbreak. It is made up of psychological trauma specialists, coordinators of the psychosocial response to trauma, wellbeing leads at NHS Trusts and people with lived experience of psychological trauma. The working group is being coordinated by staff at University College London and the Traumatic Stress Clinic at Camden and Islington NHS Trust. On their website you will find many resources and information on the work they are doing.
  13. Content Article
    This guideline developed by the World Health Organization (WHO) is intended for healthcare professionals involved in the care of patients with suspected or confirmed Covid-19. It is not meant to replace clinical judgment or specialist consultation, but rather to strengthen frontline clinical management and the public health response. Considerations for special and vulnerable populations, such as paediatric patients, older people and pregnant women, are highlighted throughout the text. This guideline is a product of the contributions of several WHO team members and independent experts from all over the world.
  14. Content Article
    A recent NIHR report sets out the state of knowledge on Long Covid, focussing on recent published research framed around questions of the nature and causes of Long Covid and approaches to treatment. Symptoms might include, but not be limited to brain fog, anxiety, breathlessness, fatigue, muscle pain, palpitations and chest heaviness. We still know very little about the clusters and patterns of these symptoms and what this might mean for ongoing treatment and monitoring. In this article, Tara Lamont emphasises the importance of people with Long Covid being involved in these studies pushing these issues to the forefront.
  15. Community Post
    Why do we need GP referrals to this service for assessment? Early patients untested cannot get access to GPs, not being believed, dismissed, told they are delusional. se have been sat for months unable to get referrals ...today someone got a referral and the NHS denied them that too. So we are getting no support. We are having a host of around 200 effects (Ive documented them), most of us are weeks 12 to 33 and having lung cognitive and heart problems. We needs mri and ct scans now and we cant be joining the back of already lengthy outpatient appointments. theresa huge backlog. When is someone going to help us? #longtailgoing viral @postcovidsynd Post Covid 19 Syndrome Support Group International (facebook). Sir Simon Stevens from NHS England doesn't have time to answer our letter, he said the Seacole Centre has been set up...but it only takes tested positive patietns and the phone numbers don't work. He told us to watch himself on the Andrew Marr show..which was about this app. As you can see we still cant get referrals here either as we need GP referrals adn we cant get them/..did no one raise this? I think they did...as I did with Senior Government Advisors. Nothing has been offered to untested patients. The medical community are very much aware that we were sent home so to deny we are sick and label it as anxiety is a scandal. Likewise, graded therapy (I note exercise is on here) is not recommended as we have heart problems and some of us have done it and had heart attacks...dangerous information to share with people suffering 200 symptoms thatt the medical community have not followed us on .... health-problems (1).pdf
  16. Community Post
    A video has been produced featuring @Ron Daniels that gives some useful information based on the joined up working between these two organisations. Watch the video on Youtube (1:34 mins) here
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