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Found 454 results
  1. News Article
    As the UK looks to mark the first anniversary of the first COVID-19 lockdown on 23 March, Sky News has spoken to one family who say they have lived constantly with the after effects of the virus for a year. Charlie, 37, her husband Zed, 41, and their five children – Nico, 15, Beck, 12, Indiana, 10, Emmett, 8, and Mimi, 5 – fell ill with the virus in March last year. All of them – particularly the children – have been suffering ever since. Charlie said the list of symptoms is "extensive", including headaches, eye issues, nose bleeds, body rashes, horrific tummy pains, gastric issues, severe lethargy, allergic reactions, peeling hands, and feet and mouth ulcers. "It's such a long list that at times you can't believe that they've all been related to this illness," Charlie said. The family have been getting help from a support group, Long COVID Kids, which wants specialist clinics to be set up for children with the condition. Charlie said the ordeal the family has been through "really made me question my sanity at times". She added: "Long COVID centres are being set up, but they're not for children, so there is nowhere for them to be referred to. I'm really worried about the long-term health issues." Read full story Source: Sky News, 13 March 2021
  2. News Article
    Joanna Herman, a consultant in infectious diseases, had high hopes when Boris Johnson announced £10m for long Covid clinics. Five months on, she is yet to be referred to one. "Despite the government recently giving £18.5m research funding for the disease, it feels as though all focus is now on the vaccine and the lifting of lockdown, while those living with long Covid have been largely forgotten," says Joanna. Her initial illness was, by definition, a mild case of Covid: no hospital admission and no risk factors for severe disease. Months later she found herself experiencing crashing post-exertional fatigue, sporadic chest pains and a brain that felt it was only half functioning. And she is not alone. According to a study published last September from researchers at King’s College London, 60,000 people in the UK were likely to have been suffering from long Covid. The actual number is now probably far higher. There are now 69 long Covid clinics up and running across the country, according to the NHS England website. Yet Joanna has not been able to access one – and neither have others she knows with long Covid. Joanna asked doctors in her field what was happening with long Covid clinics in their local areas. She contacted 18 infectious disease colleagues based in teaching hospitals around the country. Of the 16 who responded, 6 had formal long Covid clinics. Some said that provision for the disease was woefully inadequate, while others reported they only saw only patients who had been admitted to hospital with acute COVID-19. In her own local teaching hospital, funding for long Covid patients is scattered across various departments and there is no dedicated team for these patients. "...it feels as though many long-haulers remain in a post-viral sea, looking for a mooring in the hope that something can be offered. We’ve known about this disease since last summer, and it has been officially recognised since October, but we’re only just starting to understand how to support those living with it" Read full story Source: The Guardian, 10 March 2021
  3. News Article
    Sufferers say they have had little specialist help despite NHS England setting up dedicated clinics. “It’s not that I feel I have been abandoned, I think that is perfectly obvious,” says Rachel Pope. “If you speak to any long Covid patient, they have been abandoned.” Until exactly a year ago – 5 March 2020 – Pope was “an incredibly fit woman”. A senior lecturer in European prehistory at the University of Liverpool, her work and lifestyle were very active. But after falling ill to Covid, she spent four months unable to walk, then three more when she could manage little more than “a sort of shuffle”. She still has a host of symptoms, “but the most debilitating is the fact that I still can’t do more than 2,000 steps in a day. Until a few weeks ago, I was still choking every day. There’s a lot of nasty stuff that [long Covid sufferers] are living with, without treatment. “It’s not a great situation to be in. I mean, we didn’t die. But this isn’t exactly living either.” A year into the pandemic, accounts such as Pope’s have become dispiritingly familiar, as the experiences of the many thousands who have struggled for months with long Covid, often alone and unsupported, are emerging. Read full story Source: The Guardian, 5 March 2021
  4. News Article
    A leading doctor has said the NHS should expect to treat up to a million people for long Covid in the aftermath of the pandemic. Long Covid affects about 1 in 10 people of any age infected with coronavirus, and sufferers can experience symptoms including breathlessness, chronic fatigue, brain fog, anxiety and stress for several months after contracting COVID-19. The likelihood of experiencing long-term symptoms does not appear to be linked to the severity of the initial virus and people with mild symptoms at first can still have debilitating long Covid. The absence of long Covid registers makes it difficult to measure the scale of the problem, and major studies into the condition are ongoing in an attempt to identify causes and potential treatments. But one of Britain’s leading doctors, who spoke on condition of anonymity, estimates that about a million people will need care for long Covid as the NHS recovers from the effects of the pandemic. “Although officially about 4 million people have had Covid, in reality, it’s about 8 million or 9 million,” the anonymous doctor told The Guardian. “If 10% of those people have got something, then it could be almost a million people, and that’s enormous.” Read full story Source: The Independent, 7 March 2021
  5. News Article
    Some 1 in 10 people still experience persistent ill health 12 weeks after having COVID-19, termed “long COVID” or post-COVID conditions. A new policy brief from the European Observatory on Health Systems and Policies documents responses to post-COVID conditions in different countries of the WHO European Region and looks at how sufferers, including medical professionals, are driving some of those responses. Written for decision-makers, this brief summarises what is known about the conditions, who and how many people suffer from them, diagnosis and treatment, and how countries are addressing the issue. Commenting on long COVID, WHO Regional Director for Europe Dr Hans Henri P. Kluge said, “COVID-19 has caused a great deal of suffering among people across the Region, with reports of long COVID an extra cause for concern. It’s important that patients reporting with symptoms of long COVID are included as part of the COVID-19 response to mitigate some of the longer-term health impacts of the pandemic. This policy brief makes clear the need for policy-makers to take the lead on this issue.” Read full story Source: WHO, 25 February 2021
  6. News Article
    Scientists have warned that emerging data on Long Covid in children should not be ignored given the lack of a vaccine for this age group, but cautioned that the evidence describing these enduring symptoms in the young is so far uncertain. Recently published data from the Office for National Statistics (ONS) suggests that 13% of under 11s and about 15% of 12 to 16 year olds reported at least one symptom five weeks after a confirmed COVID-19 infection. Although children are relatively less likely to become infected, transmit the virus and be hospitalised, the key question is whether even mild or asymptomatic infection can lead to Long Covid in children, said Danny Altmann, professor of immunology at Imperial College London. “The answer is that it certainly can, and the Long Covid support groups contain a not insignificant number of children and teens,” Altmann said. Frances Simpson, a lecturer in psychology at Coventry University and co-founder of the Long Covid Kids group, said she was very worried about the emerging data on Long Covid in children. “We just think that there should be a much more cautious and curious approach to long Covid rather than a kind of a sweeping generalisation that children are OK, and that we should just let them all go back to school without any measures being put in place.” One issue, she said, is the sizeable gap between acute infection and Long Covid kicking off. Some children are initially asymptomatic or have mild symptoms but then it might be six or seven weeks before they start experiencing long Covid symptoms, which can range from standard post-viral fatigue and headaches to neuropsychiatric symptoms such as seizures, or even skin lesions." At the moment there is no consensus on the scale and impact of long Covid in adults, but emerging data is concerning. For children, the data is even more scarce. Recent reports from hospitals in Sweden and Italy have generated concern, but this data is not from national trials – they are single-centre studies – and include relatively small patient numbers, said Sir Terence Stephenson, a Nuffield professor of child health at University College London. Stephenson was awarded £1.36m last month to lead a study investigating Long Covid in 11- to 17-year-olds. “I don’t have a scientific view on what long Covid is in young people is – because frankly, we don’t know,” he said. Preliminary results are expected in three months. Read full story Source: The Guardian, 2 March 2021
  7. News Article
    Amongst the 3.9 million confirmed COVID-19 cases in the UK to date, it is estimated that around one in five people experience symptoms that last for five weeks or longer, and one in ten have symptoms that last for twelve weeks or longer. Termed Long COVID, people report a myriad of symptoms including chronic fatigue, breathlessness, loss of sense of smell, depression and concentration difficulties. Already totalling an estimated 186,000 people, long COVID will bring mounting pressure on primary care services. Within its COVID-19 rapid guideline for managing the long-term effects of COVID-19, NICE recommends health apps as part of giving advice and information on self-management. ORCHA has assessed almost 6,500 health apps to date against more than 350 measures and all major standards. From this research, they identified the top-scoring apps across each of the long COVID symptoms to help primary care, community settings and multidisciplinary assessment and rehabilitation services make informed decisions on the best apps for their patients. Read report
  8. News Article
    One in five people hospitalised with COVID-19 experienced hair loss within six months of first being infected with the virus, a cohort study of patients found. A team of Chinese experts looking into the long-term health consequences of the disease surveyed patients who had been discharged from Jin Yin-tan Hospital in Wuhan last year. Of the 1,655 people who took part 359 (22%) reported losing hair. Fatigue or muscle weakness, difficulty sleeping, smell disorder, anxiety and depression were some of the other most commonly reported symptoms, with a higher percentage of these reported among women. The long-term consequences of Covid-19 after six months remained "largely unclear", the study concluded. Read full story Source: The Independent, 23 February 2021
  9. News Article
    Today is an anniversary that George Hencken never imagined. It is exactly one year since she caught COVID-19. But unlike most people who have suffered from the disease, she remains ill. “It’s a year since I’ve felt like myself,” she said. “It’s a year since my life as I knew it came to an end. And I don’t know if I’m going to get it back again.” Long Covid doesn’t quite describe the depths of her fatigue. “It’s not tiredness. It’s like having jet lag and a hangover. It feels like I’ve been poisoned,” she said. The problem for Hencken and the thousands still suffering from the virus months later is that long Covid doesn’t describe much at all. The umbrella term covers people who are breathless and fatigued, or who have brain fog, headaches and tingling arms, or who have chest pains and heart palpitations, or all of those and dozens more symptoms besides. Support groups such as LongCovidSOS have been fighting hard for the condition to be recognised and taken seriously – sufferers say they feel disbelieved, and doctors initially had little information, support or even funding. Last week the government announced £18.5m through the National Institute for Health Research to fund four major studies attempting to understand exactly what long Covid means, why it affects so many apparently healthy people, and how they can be helped. Research by University College London will track the health of 60,000 people, including people with long Covid and a control group who will wear a Fitbit-style wristband to measure heart rate, breathing and exercise levels. The aim is to chart and identify clusters of symptoms, Professor Nishi Chaturvedi said. “My sense is that the multiplicity of symptoms that people are reporting suggests to me and many others that it’s not one thing, but several syndromes. We’re not even at the starting point yet of knowing what it is,” she said. Read full story Source: The Guardian, 20 February 2021
  10. News Article
    Boris Johnson is being urged to launch a compensation scheme for frontline workers who are suffering from the long-term effects of coronavirus. The all-party parliamentary group on coronavirus said the prime minister should recognise long Covid as an occupational disease, saying some sufferers have found it hard to return to work. A letter, signed by more than 60 MPs and peers, has been sent to Johnson. Layla Moran, the APPG’s chair, said: “Long Covid is the hidden health crisis of the pandemic, and it is likely to have an enormous impact on society for many years to come. “When it comes to frontline NHS, care and key workers, they were specifically asked to go to work and save lives while everyone else was asked to stay at home." “They were exposed to an increased level of risk of catching the virus, often without adequate levels of PPE.” The group wants the government to follow France, Germany, Belgium and Denmark, which have formally recognised Covid as an “occupational disease”. Read full story Source: The Guardian, 18 February 2021
  11. News Article
    The World Health Organization (WHO) has urged countries to prioritise rehabilitation for the medium and long term consequences of covid-19 and to gather information on “long covid” more systematically. WHO has produced a standardised form to report clinical data from individual patients after hospital discharge or after their acute illness to examine the medium and long term consequences of COVID-19.1 It has also set up technical working groups to build a consensus on the clinical description of what WHO now calls “the post-covid-19 condition” and to define research priorities. Speaking at the first of a series of seminars, WHO’s director general, Tedros Ghebreyesus, highlighted the “three Rs”—recognition, research, and rehabilitation. Recognition of the post-covid-19 condition was now increasing, he said, but still not enough research was carried out. He added that countries needed to show commitment to including rehabilitation as part of their healthcare service. “Long covid has an impact on the individual, on society, and on the economy,” he warned. Read full story Source: BMJ, 10 February 2021
  12. News Article
    Tens of thousands of coronavirus survivors needing long-term care are heaping pressure on Britain’s stretched community services, threatening a crisis that experts warn could dwarf that seen in hospitals over the past 12 months. As many as 100,000 intensive care patients, including up to 15,000 Covid-19 survivors, will need long-term community nursing care after being discharged from hospitals during the past 12 months, The Independent has been told. This will be on top of an as yet unknown number of Covid patients from the 350,000 treated on general wards since the pandemic began, as well as tens of thousands of people who were sick without going to hospital but have been left with debilitating symptoms of long Covid. Labour’s shadow health minister Liz Kendall warned: “There will be huge pressures on community services as people who need long-term support are discharged back into their own homes. “Ministers have got to put in place a proper workforce strategy for the NHS and community care otherwise we will see people struggling to recover and the burden of care could also fall on their families." “This is one of the long-term consequences of Covid that we haven’t begun to even think through yet.” Read full story Source: The Independent, 14 February 2021
  13. News Article
    The MP leading an investigation into coronavirus fears long Covid could cost the UK around £2.5 billion a year. Layla Moran believes the emerging crisis is comparable to the impact rheumatoid arthritis has on the health service, with hundreds of thousands of people expected to be dealing with the condition for months. The ONS says around one in ten people who test positive will go on to develop long Covid, a catch all term to describe a host of ongoing symptoms in coronavirus patients. More than 1.7 million COVID-19 infections have been reported since Christmas Day in the UK. Speaking exclusively to Metro.co.uk, Ms Moran – who chairs the All Party Parliamentary Group (APPG) on coronavirus, said: "The amount of money that we are expecting to spend long term on long Covid could be similar to rheumatoid arthritis. How many people know someone with rheumatoid arthritis? It is going to be higher for long Covid." Read full story Source: The Metro, 10 February 2021
  14. News Article
    The MP leading an investigation into coronavirus fears Long Covid will be one of the biggest issues facing the UK for the next decade, after emerging research revealed most sufferers are still unable to work six months in. Layla Moran branded the scale of the problem ‘enormous’, as various experts warned that even healthy young adults have been left struggling to function for months on end. With hundreds of thousands of Brits now believed to have Long Covid, medics fear its impact on the world of work could herald another ‘massive economic crisis’. Workers in their 20s and 30s have told of a host of debilitating symptoms keeping them out of the office for much of last year and making simple tasks like walking to the toilet seem ‘like climbing a mountain’. Speaking exclusively to Metro.co.uk, Ms Moran – who chairs the All Party Parliamentary Group (APPG) on coronavirus – said: "The scale of this, in terms of the future prosperity of our country, is enormous. It is going to be, I think, one of the main issues that we are going to deal with not just in ten years but beyond." Read full story Source: Metro, 4 February 2021
  15. News Article
    Press release 3 February 2021 The charity Patient Safety Learning and patient group Long Covid Support are calling for the creation of a dedicated Minister for Long Covid to take a coordinated, multi-stakeholder approach to this issue.[1] Long Covid patients are people with confirmed or suspected Covid-19 who continue to struggle with prolonged, debilitating and sometimes severe symptoms months later.[2] Statistics indicate that there are currently hundreds of thousands of people living with Long Covid in the UK, with at least one in 10 people still experiencing symptoms 12 weeks after initial infection.[3] While there has been some progress to put in place support for people with Long Covid, there remains a complex spectrum of issues that need to be addressed. These are summarised in a blog, published by Patient Safety Learning and Long Covid Support today, calling for the UK Government to make urgent and significant improvements in their response to Long Covid.[4] Claire Hastie of the Long Covid Support, said: “Almost one year on from when many first fell ill, people with Long Covid are simply not getting the help they need. There is an urgent need to increase the pace and scale of the response to help the hundreds of thousands of people affected (including children). This needs to be driven by a dedicated minister with the power to affect change.” Helen Hughes, Chief Executive of Patient Safety Learning, said: “People living with Long Covid have too often been left ‘joining the dots’ trying to understand how they can access safe, quality treatment and support and what they can do to improve their health. Clinical advice and access to further investigations has been inconsistent, leaving many feeling abandoned, confused and understandably concerned for their future health outcomes. Long Covid not only impacts people’s physical and mental health, but also their ability to work and their economic circumstances. We believe the appointment of a Minister for Long Covid would help to provide leadership, accountability and a coordinated response to these challenges.” Notes to editors: [1] Patient Safety Learning is a charity and independent voice for improving patient safety. We harness the knowledge, insights, enthusiasm and commitment of health and social care organisations, professionals and patients for system-wide change and the reduction of avoidable harm. [2] The symptoms for those with Long Covid vary greatly but many are experiencing rashes, shortness of breath, neurological and gastrointestinal problems, abnormal temperatures, cardiac symptoms and extreme fatigue. [3] Office for National Statistics, The prevalence of Long Covid symptoms and Covid-19 complications, 16 December 2020. https://www.ons.gov.uk/news/statementsandletters/theprevalenceoflongcovidsymptomsandcovid19complications [4] Patient Safety Learning and Long Covid Support, Long Covid Minister needed to respond to the growing crisis, 3 February 2020. https://www.patientsafetylearning.org/blog/long-covid-minister-needed-to-respond-to-growing-crisis
  16. News Article
    New advice on how to treat coronavirus has been issued by the World Health Organisation (WHO) as it also begins a wide-reaching study into the effects of so-called "long COVID". For COVID-19 patients at home, WHO is now suggesting the use of a pulse oximetry machine to measure oxygen levels in the blood - but warns that this should only be done after full patient education and with medical follow-up support if necessary. For hospitalised patients, WHO is recommending the use of low-dose anticoagulants to prevent clots forming in blood vessels, known as thrombosis. And for sufferers who are already using supplemental oxygen, the organisation is officially endorsing the positioning of patients on their stomachs to increase oxygen flow. This is known as "awake prone positioning". The new guidelines also include a recommendation that healthcare professionals favour "clinical judgement over models" in making decisions for individual patients. Read full story Source: Sky News, 26 January 2021
  17. News Article
    Long Covid is no respecter of youth, health or fitness. It afflicts more women than men but it can strike anyone down, including people whose initial infection seemed mild, or even asymptomatic. In some cases, long Covid could mean lifelong Covid. The effects can be horrible. Among them are lung damage, heart damage and brain damage that can cause memory loss and brain fog, kidney damage, severe headaches, muscle and joint pain, loss of taste and smell, anxiety, depression and, above all, fatigue. We should all fear the lasting consequences of this pandemic. Long Covid is shorthand for a range of conditions. Some scientists divide them into three broad categories, others into four. Of these, one seems to ring a bell. It’s a cluster of symptoms that bear a strong similarity to myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS). This is a devastating condition that affects roughly a quarter of a million people in the UK, and is often caused, like long Covid, by viral infection. Among the common symptoms of ME/CFS are extreme fatigue that is not relieved by rest, and “post-exertional malaise”: even mild physical or mental effort can make patients extremely unwell. Many sufferers are confined to their home or even their bed, with their working life, social life and family life truncated. There is, so far, no diagnostic test and no cure. Yet ME/CFS has been disgracefully neglected by science and medicine. The NHS is now setting up specialist clinics to treat long Covid. But already, apparent mistakes are being made. Without the necessary caveats, the NHS recommends steadily increasing levels of exercise for people suffering from post-Covid fatigue. But as ME/CFS patients with post-exertional malaise know, this prescription, though it sounds intuitive, could be highly damaging. We need massive research programmes into both long Covid and ME/CFS, coupled with better information for doctors. Read full story Source: The Guardian, 21 January 2021
  18. News Article
    A Times reporter caught the coronavirus during the New York City outbreak last April. But the acute phase of the illness was just the beginning. Laura recounts her experience of Covid nearly 3 months after first being diagnosed. "I remember the second time I thought I would die." Read full story Source: The New York Times, 21 January 2021
  19. News Article
    Nearly a third of people who were discharged from hospitals in England after being treated for COVID-19 were readmitted within five months – and almost one in eight died, a study suggests. The research, which is still to be peer-reviewed, also found a higher risk of problems developing in a range of organs after hospital discharge in those younger than 70 and ethnic minority individuals. “There’s been so much talk about all these people dying from Covid … but death is not the only outcome that matters,” said Dr Charlotte Summers, a lecturer in intensive care medicine at the University of Cambridge who was not involved in this study. “The idea that we have that level of increased risk in people – particularly young people – it means we’ve got a lot of work to do.” There is no consensus on the scale and impact of “long Covid”, but scientists have described emerging evidence as concerning. According to recent figures provided by the Office for National Statistics (ONS), a fifth of people in England still have coronavirus symptoms five weeks after being infected, half of whom continue to experience problems for at least 12 weeks. Read full story Source: The Guardian, 18 January 2021
  20. News Article
    Younger people who think they are “invincible” need to be aware of the shocking life-changing reality of long Covid, according to health professionals who are living with the condition. Long Covid, also known as post-Covid syndrome, is used to describe the effects of COVID-19 that continue for weeks or months beyond the initial illness. Speaking at the All-Party Parliamentary Group (APPG) on Coronavirus, Dr Nathalie MacDermott, 38, said neurologists believe Covid has damaged her spinal cord and she can only walk about 200 metres without some form of assistance. She said the damage has affected her bladder and bowel too, causing urinary tract infections, and she gets pain in her arms and has weakness in her grip. Dr MacDermott, a clinical doctor sub-specialising in paediatric infectious diseases in the NHS, told MPs there needs to be “better recognition” from employers that long Covid is a “genuine condition” and that people may need to be off work for a significant period of time. She added: “And I think we need better recognition in the public, particularly the younger public who think that they’re invincible. “I’m 38 and I wonder if I’ll ever be able to walk properly without crutches again. Will this continue to get worse? Will I end up in a wheelchair?” Read full story Source: 12 January 2021, Lancashire Post
  21. News Article
    Three quarters of patients surveyed at Jinyintan Hospital in Wuhan, China had at least one ongoing symptom The majority of people admitted to hospital with coronavirus still had symptoms six months after getting ill, a new study has revealed. Over three quarters of Covid patients surveyed at Jinyintan Hospital in Wuhan, China had at least one ongoing symptom – with the most commonly reported being fatigue or muscle weakness. A total of 1,733 patients, with a median age of 57, were examined for the study between 7 January and 29 May last year. At a follow-up, 76% of patients reported at least one ongoing symptom. Read the full article here
  22. News Article
    More than one in ten secondary school pupils and over a third of school staff who had COVID-19 have suffered ongoing symptoms, figures suggest. The most common symptom reported by staff and pupils was weakness/tiredness, while staff were more likely to experience shortness of breath than pupils, according to a small study of schools in England. The survey from the Office for National Statistics (ONS) estimates that about 35.7% of staff and 12.3% of secondary school pupils with a previously confirmed Covid-19 infection reported experiencing ongoing symptoms more than four weeks from the start of the infection. Among those experiencing ongoing symptoms, 15.5% of staff and 9.4% of secondary school pupils said their ability to carry out day-to-day activities had been significantly reduced. Geoff Barton, general secretary of the Association of School and College Leaders, said: “This survey data reveals the largely hidden long-term effects of Covid on both students and school and college staff. Read full story Source: Wales Online, 28 September 2021
  23. News Article
    One in 40 people with coronavirus has symptoms lasting at least three months, Office for National Statistics figures suggest. In April, an ONS report put the proportion at about one in every 10. The latest, large and comprehensive analysis suggests long Covid may be less common than previously thought. But the condition is not fully understood and still has no universally agreed definition, leading to different studies producing different figures. However, like many other reports, the analysis suggests women, 50- to 69-year-olds and people with other long-term health conditions are the most likely to have symptoms of long Covid 12 weeks after a Covid infection. People with high levels of virus in their body when testing positive are also more likely to have long Covid, the analysis suggests. Read full story Source: BBC News, 17 September 2021
  24. News Article
    In recent months, long Covid has received a great deal of media and public attention. Research has found that as many as one in four of those infected with Covid suffer from chronic long-term symptoms, including headaches, dizziness, abdominal pain, heart problems, fatigue, anxiety, depression, cognitive impairment and other conditions. It is a difficult and complex illness, and we must do much more to help those who are struggling with it. At the same time, it is important to realise that rather than being a strange special case, long Covid is probably part of a broader phenomenon that affects many more people. In recent years, doctors and researchers have increasingly realised that many of those who survive an illness of any kind, or who go through serious physical trauma, are at high risk for a range of debilitating and chronic physical, cognitive and mental health symptoms – problems that closely resemble long Covid. As medicine has advanced, clinicians have learned how to save hundreds of thousands of severely ill or injured patients who would have previously died. Although this is a remarkable accomplishment, however, in many cases, survival does not mean complete recovery: some patients find that their bodies, brains and psyches continue to bear the scars of what they have gone through. One non-Covid study found that a year after hospitalisation, a third of patients with severe respiratory failure or shock had significant cognitive impairment. Another found that between a quarter and a third of patients who were treated in the ICU had significant and long-lasting symptoms of anxiety, depression or PTSD. Researchers have found similar results for survivors of other medical conditions, including cancer, multiple sclerosis and ALS. Unfortunately, people with long Covid, as well as other chronic post-illness symptoms, often find that the medical establishment doesn’t understand their experience, and so minimises or questions it. This is not surprising: clinicians tend to pay less attention to how patients with severe illness do once they are out of mortal danger, or once symptoms extend beyond an arbitrary time frame. Read full story Source: The Guardian, 12 September 2021
  25. News Article
    Dr Kelly Fearnley caught COVID-19 in November 2020, after being redeployed to work on a coronavirus ward. Ten months on, she’s still living with debilitating symptoms of the condition known as long Covid. The latest estimates, published in June, suggest more than two million people in the UK have had long Covid since the pandemic began, while figures released by the Office for National Statistics in April show that more than 120,000 of those are NHS staff. Dr Fearnley discusses with iNews her experience of being taken to hospital after becoming seriously unwell. Dr Fearnley had a high resting heart rate and wasn’t able to get out of bed. She had pins and needles and was experiencing attacks of breathlessness, as well as violent shaking of her entire body. Yet, after running tests, she says the senior doctor she saw made it clear they believed Dr Fearnley was suffering from anxiety. “I was [treated as] an anxious little girl. My concerns weren’t taken seriously. Despite being a doctor myself, I felt let down by my colleagues at a time when I needed help but help wasn’t there,” Dr Fearnley said. “Sadly, I know my experience isn’t uncommon. I know a lot of long haulers have had their symptoms dismissed as anxiety.” But Dr Fearnley’s experience is also not unique to long Covid patients. “There’s a long history in medicine of dismissing hard-to-diagnose and hard-to-treat patients as having psychological or behavioural problems,” says Brian Hughes, Professor of Psychology at the National University of Ireland, Galway. “Historically, these problems have also been far more likely to emerge where illnesses primarily affect women,” he added. There are countless examples of this, but the condition that’s been most closely linked to long Covid is myalgic encephalomyelitis (ME) – also known as chronic fatigue syndrome or ME/CFS. 2020 research into GPs’ knowledge and understanding of the condition found that between a third and half of GPs did not accept ME as a “genuine clinical entity“. As a result, patients have continued to have their symptoms disbelieved or dismissed as psychological for decades. Read full story Source: iNews, 9 September 2021
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