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Found 266 results
  1. Content Article
    Patient Safety Learning have been hearing from patients suffering persistent symptoms of COVID-19, that they are feeling abandoned and unsupported. But in this 2-minute Tuesday session, Stephanie O'Donohue, Hub Content and Engagement Manager, asks Long COVID patients about any positive experiences they’ve had with the healthcare system, and ways in which they’ve been made to feel safe.
  2. News Article
    Health Secretary Matt Hancock admits he is "worried" about the long-term impacts of coronavirus on those who have been infected. Mr Hancock said a "significant minority" of people had suffered "quite debilitating" conditions after contracting COVID-19. It comes after Sky News reported on how psychosis, insomnia, kidney disease, spinal infections, strokes, chronic tiredness and mobility issues are being identified in former coronavirus patients in northern Italy. Asked about the long-term impact of the disease on patients, the health secretary told Sky News: "I am concerned there's increasing evidence a minority of people - but a significant minority - have long-term impacts and it can be quite debilitating. "So we've set up an NHS service to support those with long-term impacts of COVID-19 and, also, we've put almost £10m into research into these long-term effects." Read full story Source: Sky News, 15 July 2020
  3. Content Article
    A group of doctors who have chronic COVID-19 symptoms have been digesting information on social media platforms from thousands of individuals in the UK and worldwide affected by covid symptoms for 16 weeks or more. Some of these symptoms and patients’ experiences have been summarised in a video “Message in a bottle—long covid SOS.” The announcement of an NHS portal for patients who have been admitted to hospital or dealt with the illness at home is a welcome signal that the problems of long standing covid symptoms are starting to be recognised. In this BMJ article, the authors explore these patients' experiences and urge that the new NHS portal should be co-created with by patients with COVID-19 and carers. There needs to be some bidirectionality in the creation of this service and subsequent research to avoid institutional “top down” blind spots about the condition.
  4. Content Article
    Early clinical experiences have demonstrated the wide spectrum of COVID-19 presentations, including various reports of atypical presentations of COVID-19 and possible mimic conditions. This article, published in the BMJ, summarises the current evidence surrounding atypical presentations of COVID-19 including neurological, cardiovascular, gastrointestinal, otorhinolaryngology and geriatric features. 
  5. Content Article
    This short film was created by patients who are experiencing long-lasting and debilitating symptoms of COVID-19, to raise awareness of their ongoing issues, also known as 'Long COVID'.
  6. Content Article
    In this blog, intensive care doctor Jake Suett draws on his personal journey and that of others to highlight the prolonged and frightening symptoms many patients with confirmed or suspected COVID-19 are experiencing. Jake outlines his concerns and sets out recommendations for future action to address the needs of these 'Long COVID' patients. Included is an example letter that can be adapted by others to call on MPs to raise awareness of those suffering persisting symptoms of COVID-19. 
  7. Content Article
    The coronavirus (Covid-19) pandemic will leave a deep and lasting scar on the mental health of millions in this country. The devastating loss of life, the impact of lockdown and loneliness, and the inevitable recession that lies ahead will affect all of us. Prioritising mental health has never been more critical than it is now. New mental health problems have developed as a result of the pandemic, and existing mental health problems have gotten worse. To understand how we can best support people during this uncertain time, Mind carried out research to understand the experiences of people with pre-existing mental health problems, the challenges that they are facing, the coping strategies that they are using, and the support they would like to receive.
  8. Content Article
    In this interview, Dr Jake Suett talks about his experience of persisting and debilitating symptoms after he was suspected to have contracted COVID-19. Additional reading: Patient safety concerns for Long COVID patients (6 July 2020) Press release: Patient Safety Learning calls for urgent action to ensure Long COVID patients are heard and supported (6 July 2020) My experience of suspected 'Long COVID' (6 July 2020) Dismissed, unsupported and misdiagnosed: Interview with a COVID-19 ‘long-hauler’
  9. Content Article
    An increasing number of people with confirmed or suspected COVID-19 are continuing to struggle with prolonged, debilitating and sometimes severe symptoms months later.[1] Many were never admitted to hospital and have instead been trying to manage their symptoms and recovery at home. These patients are sometimes referred to as the ‘long-haulers’ or described as having ‘post-acute’, ‘chronic’ or ‘long-term’ COVID-19. Here, we will use the term ‘Long COVID’. With social distancing restrictions still in place, patients in the UK and across the world have been turning to social media support networks[2] to connect with others who are experiencing similar challenges. These patients have raised very credible concerns about the care they are receiving[3] and the uncertainties they face. Their concerns are revealing many implications for patient safety. We have recently shared on the hub the story of Dr Jake Suett[4], one of the many people experiencing symptoms of Long COVID. When we conclude this article, we will return to his story and highlight the changes that he is calling for. However, first, we will focus on the patient safety aspects of Long COVID, highlighting key areas of concern and action needed (a full list of actions can be found summarised here).
  10. Content Article
    Weeks and months after having a confirmed or suspected Covid-19 infection, many people are finding they still haven’t fully recovered. Emerging reports describe lingering symptoms ranging from fatigue and brain-fog to breathlessness and tingling toes. So why does Covid-19 cause lasting health problems? In this podcast, Ian Sample discusses some of the possible explanations with Prof Danny Altmann, and finds out how patients might be helped in the future.
  11. News Article
    NHS England is launching a new service for people with ongoing health problems after having coronavirus. The government says "tens of thousands" of people have long-term symptoms after catching COVID-19. "Your Covid Recovery" will be an online portal for people in England to access tutorials, contact healthcare workers and track their progress. The project will be rolled out in two phases, with the web portal launching later this month. It will only be accessible via a personal log-in and will be available to virus patients who had to be treated in hospital, as well as to those who managed their illness at home. Later in the summer, tailored rehabilitation will also be offered to those who qualify, following an assessment. Each programme will last a maximum of 12 weeks, the Department of Health and Social Care said. Read full story Source: BBC News, 5 July 2020
  12. News Article
    Most people experience COVID-19 as a short-term illness: once the infection has been fought off, they bounce back to health. But evidence is emerging of a significant minority – sometimes referred to as “long haulers” – who struggle with long-term symptoms for a month or longer. Anecdotal reports have abounded of people left with fatigue, aching muscles and difficulty concentrating. Online support groups on Facebook and Slack have sprung up, already hosting thousands of members who say they have not got better. Speaking to the BBC’s Andrew Marr Show on Sunday, Matt Hancock said it was difficult to gauge the scale of the problem. “This is a really serious problem for a minority of people who have Covid,” the health secretary said. “Some people have long-term effects that look like a post-viral fatigue syndrome.” Scientists are only just beginning to investigate the potential causes of enduring fatigue, but say that there are likely to be a wide variety of reasons why some people face a longer road to recovery. Read full story Source: The Guardian, 5 July 2020
  13. News Article
    We’re swiftly learning the symptoms of Covid-19 may last longer than previously thought. One in 10 people are reporting a longer tail of symptoms, which exceeds the suggested two-week recovery time. It’s thought around 30,000 people in the UK could be impacted by a prolonged version of the illness – what some are calling ‘long covid’. These people are months into their recovery from the virus and still fighting a range of persistent symptoms. In some cases, the symptoms disappear for a while before coming back. In others, they’re gradually improving over time. Research from the Covid-19 Symptom Study in the UK, led by Professor Tim Spector of King’s College London, shows after three weeks of first reporting symptoms, a group of people continue to experience fatigue, headaches, coughs, loss of smell, sore throats, delirium and chest pain. People with mild cases of the disease are more likely to have a wide range of symptoms that come and go over an extended period, Prof Spector found. And these people are often flying under the radar because they’re not in hospital. Those who believe they’ve had ‘long covid’ are now calling on the government to recognise their plight, invest in research and put support in place. Read full story Source: Huffpost, 2 July 2020
  14. News Article
    Psychiatrist Dr. Scott Krakower was diagnosed with the coronavirus in April and continues to have symptoms more than two months later, making him what’s known as a “long hauler.” Although Krakower said he's feeling better, he is not able to return to work. “Each day is different. Some days are up, some days are down. I would say the mornings are better for me and then by 1 or 2 o’clock is when my voice and my shortness of breath kick in more and then it’s harder to do things.” Krakower hasn’t had a clear answer about when he will recover or whether that may happen, although he takes solace in the fact that he is improving. Krakower continues to try and shake off the symptoms, a signature of long hauling. It’s a trait that has been on display before with MERS and SARS, says Dr Robert Glatter, an emergency physician at Lenox Hill Hospital in New York City. “What we’re seeing is that this is a byproduct of the inflammation from the virus itself. In other words, dead fragments of virus elicit an immune response. And as a result of this, the body reacts and produces certain types of substances that can really have adverse effects,” Glatter said. Read full story Source: Today, 1 July 2020
  15. Content Article
    The COVID Trauma Response Working Group has been formed to help coordinate trauma-informed responses to the COVID outbreak. It is made up of psychological trauma specialists, coordinators of the psychosocial response to trauma, wellbeing leads at NHS Trusts and people with lived experience of psychological trauma. The working group is being coordinated by staff at University College London and the Traumatic Stress Clinic at Camden and Islington NHS Trust. On their website you will find many resources and information on the work they are doing.
  16. News Article
    Initial survey findings show the long road to recovery for people who have faced COVID at home without going into hospital New survey findings from over 1,000 people show that those recovering from mild-moderate COVID are struggling for weeks with symptoms, raising concerns that there is not adequate support for people who have not been in hospital with the illness. The ongoing survey is being run by Asthma UK and the British Lung Foundation, through their post-COVID HUB, which they set up, alongside a helpline and WhatsApp service, to support anyone left with breathing difficulties after COVID. Read full article here
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