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Found 454 results
  1. Content Article
    This is an online platform and information portal for post covid syndrome (also known as Long Haul Covid, Long Tail Covid and Long Covid). It has been designed to be a central point for patients, practitioners and researchers globally.
  2. Content Article
    Lecture presentation slides from Professor Carl Philpot, University of East Anglia, on losing your sense of smell with coronavirus.
  3. Content Article
    Large numbers of people are being discharged from hospital following COVID-19 without assessment of recovery. Mandal et al. followed 384 patients who had tested positive and had been treated at Barnet Hospital, the Royal Free Hospital or UCLH. Collectively the average length of stay in hospital was 6.5 days. The team found that 54 days after discharge, 69% of patients were still experiencing fatigue, and 53% were suffering from persistent breathlessness. They also found that 34% still had a cough and 15% reported depression. In addition 38% of chest radiographs (X-rays) remained abnormal and 9% were getting worse. The study has identified persisting symptoms and radiological abnormalities in a significant proportion of subjects. These data may assist with the identification of people outside expected recovery trajectories who could benefit from additional rehabilitation and/or further investigation to detect post-COVID complications.
  4. Content Article
    The National Institute for Health and Care Excellence (NICE) is developing the COVID-19 guideline: management of the long-term effects of COVID-19 and has published the final scoping document and associated project papers. The Royal College of General Practitioners (RCGP) has produced a summary and included some top tips to aid the care of your patients whilst waiting for the national guidance to be produced.
  5. Content Article
    The COVID-19 pandemic has had far-reaching effects upon people’s lives, health care systems and wider society. As yet there is little research into the number of people at risk of developing ongoing COVID-19. Early attention has been on the acute illness generated by the virus, but it is becoming clear that, for some people,COVID-19 infection is a long term illness. This rapid and dynamic review authored by Dr Elaine Maxwell draws on the lived experience of patients and expert consensus as well as published evidence to better understand the impact of ongoing effects of COVID19, how health and social care services should respond, and what future research questions might be.
  6. Content Article
    In this statement, published by the World Health Organization, Professor Martin McKee, European Observatory on Health Systems and Policies highlights the importance of working with patients to understand Long COVID. "We need to work with patients and their families to develop new care pathways, including rehabilitation and online support tools. We need to look at employment rights, sick pay policies and access to benefit packages for those affected. And we need much more research, again with patients fully involved in deciding what questions to ask and how to answer them." Follow this link to read the full statement.
  7. Content Article
    Patient Safety Learning has been raising awareness of the safety concerns surrounding the care and treatment of people with persisting symptoms of COVID-19 long after initial infection, sometimes referred to as "long haulers" or having "Long COVID". We recently published a joint blog with patient group Long Covid Support, outlining our concerns and calling for a more coordinated response, led by a dedicated Long COVID Minister. Yahoo News senior editor Ed Hornick has been fighting the lingering symptoms of COVID-19 for over 10 months. "I have abnormal heart, gastrointestinal, and kidney functioning. I sleep with oxygen. Daily debilitating migraine headaches seem to be at a pain level 12; a noticeable tremor in my left hand comes and goes, and my leg muscles twitch uncontrollably. I get so dizzy from standing up that I nearly pass out. I’m often hit with a sense of jamais vu, the big sister of deja vu. I forget friends’ names and often repeat the same story in a conversation." Follow the link below to read his full story on Yahoo Life.
  8. Content Article
    On 21 January 2021, the Office of National Statistics (ONS) published its latest experimental estimates of long COVID symptom prevalence in the general population, using data from 9,063 respondents to the UK Coronavirus Infection Survey (CIS) testing positive for COVID-19 to 14 December 2020. The CIS is a survey sample of respondents randomly selected from the UK population (excluding communal establishments) who are followed-up weekly for the first month from enrolment, followed by monthly for a up to a year. At each visit, respondents are swab tested for COVID-19 and describe their current symptoms (from a list of 12 common COVID-19 symptoms) to the interviewer. The ONS estimated time-to-symptom-discontinuation using survival analysis techniques. Discontinuation was defined as the first post-infection occurrence of the respondent not reporting any symptoms for two consecutive visits (that is, the visit defining the date of discontinuation plus the next one). To allow time from infection to symptom onset, the ONS tracked symptoms reported at the visit where the respondent tested positive for COVID-19 or within the next month. 
  9. Content Article
    According to the Office for National Statistics (ONS), around one in five people who tested positive for COVID-19 had symptoms that lasted for five weeks or longer, and one in 10 people had symptoms that lasted for 12 weeks or more. This article, published in Which, looks at some of the challenges facing people living with persisting symptoms months after their initial infection and provides tips for accessing support. Content includes: What is Long COVID? Talking to your GP and specialist referrals Long COVID clinics Managing Long COVID at home Support groups and research projects Financial support Living with Long COVID – Francesca’s story How to support someone with Long COVID.
  10. Content Article
    This blog, published in the Journal of Orthopaedic and Sports Physiotherapy, is written by a group of rehabilitation professionals with personal experience of Long COVID. Professionally, they would often advocate for exercise as a first-line intervention. However, in their personal lives they have found themselves contradicting their professional recommendations. In this blog blog post, they share their: battle adapting to an altered lifereluctant acceptance of reduced function (even temporary) to balance rest and usual activities fear of permanent reductions in physical and cognitive abilities.
  11. Content Article
    The COVID-19 pandemic has caused unprecedented morbidity, mortality and global disruption. Following the initial surge of infections, focus shifted to managing the longer-term sequelae of illness in survivors. ‘Post-acute COVID’ (also known as ‘Long COVID’) is emerging as a prevalent syndrome. It encompasses a plethora of debilitating symptoms (including breathlessness, chest pain, palpitations and orthostatic intolerance) which can last for weeks or more following mild illness. Dani et al. describe a series of individuals with symptoms of ‘Long COVID’, and posit that this condition may be related to a virus- or immune-mediated disruption of the autonomic nervous system resulting in orthostatic intolerance syndromes. They suggest that all physicians should be equipped to recognise such cases, appreciate the symptom burden and provide supportive management. They present our rationale for an underlying impaired autonomic physiology post-COVID-19 and suggest means of management.
  12. Content Article
    In The Lancet correspondence, Norton and colleagues on behalf of the ISARIC and GloPID-R Long COVID Forum Working Group, write following an international, multistakeholder forum, in which peoples’ voices were central, to expand the call to action and to identify how we can prevent long COVID from becoming the long-lasting legacy of COVID-19.
  13. Content Article
    “Long Covid” was first used by Elisa Perego as a Twitter hashtag in May to describe her own experience of a multiphasic, cyclical condition that differed in time course and symptomatology from the bi-phasic pathway discussed in early scientific papers, which focused on hospitalised patients. Just three months later, following intense advocacy by patients across the world, this patient made term has been taken up by powerful actors, including the World Health Organization. Politicians have used it too: Matt Hancock, UK health secretary, explained to a parliamentary committee that “the impact of long covid can be really debilitating for a long period of time.” “Long Covid” has clearly struck a chord. However, it’s not the only term being used to describe persistent symptoms: we’ve also seen post-acute COVID-19, postcovid syndrome, and chronic COVID-19. In this BMJ Opinion article, Elizabeth Perego and colleagues explains why, as patients and professionals, they see “Long Covid” as better able to navigate the socio-political, as well as clinical and public health challenges, posed by the pandemic in the coming month.
  14. Content Article
    In this paper, published by the Tony Blair Institute, authors combine data from the Covid Symptom Study with emerging evidence from the broader scientific community to understand what we do and don’t know about those suffering with long-term symptoms of COVID-19. Properly understanding the scope and scale of the issue of Long COVID is critical in both communicating and balancing the overall risk of the virus.
  15. Content Article
    As yet, no commonly agreed clinical definition of long term covid-19 exists, nor a clear definition of treatment pathway. To assist clinicians, the National Institute for Health and Care Excellence (NICE), the Scottish Intercollegiate Guidelines Network (SIGN), and the Royal College of General Practitioners (RCGP) have developed the COVID-19 rapid guideline: managing the long term effects of COVID-19. It covers care for people with signs and symptoms that continue for more than four weeks, and which developed during or after an infection consistent with covid-19, and which are not explained by alternative diagnoses. This guide, published by the BMJ, provides a summary of the NICE, SIGN, and RCGP rapid guideline.
  16. Content Article
    Ahead of a Parliamentary debate on long covid, over 1600 people shared their experiences of the condition, describing how it had affected their health and everyday lives.There were several common themes which emerged from the contributions:Many described how symptoms limited their ability to take care of themselves and complete basic tasks.Many described suffering mental health issues resulting from the condition, including anxieties about the future and prospects of recovery.Many reported issues with diagnosis and treatment due to a lack of medical understanding about the condition.Many feared how the condition had affected their children and family life.Follow the link below to find out more about the debate and the Government's response.
  17. Content Article
    This guide, published by the Faculty of Occupational Medicine, aims to help healthcare workers understand how to approach the return to work process for patients with Long COVID.
  18. Content Article
    Authors of this Lancet correspondence write following an international, multi-stakeholder forum, in which peoples' voices were central, to expand the call to action and to identify how we can prevent long COVID from becoming the long-lasting legacy of COVID-19.
  19. Content Article
    Official statistics indicate there are currently hundreds of thousands of people living with Long Covid in the UK. Many of those who contracted Covid-19 at the start of the pandemic are still experiencing significant symptoms almost a year on from their initial infection; some have already passed that grim milestone. Meanwhile, we can expect case numbers of Long Covid to rise significantly as people continue to become infected; recent data shows that at least 1 in 10 people still experience symptoms 12 weeks after initial infection.[1] The implications of Long Covid for individual patients, our health service and wider society are multifaceted, complex and likely to be long-term. There has been some progress to put in place support for people with Long Covid, but many are yet to receive help. Call to action Patient Safety Learning and patient group Long Covid Support are calling for an urgent and significant increase in the scale and pace of the response, and a coordinated, multi-stakeholder approach. We are calling for this to be set up and led by a dedicated Minister for Long Covid, responsible for: Assessment of the issues affecting people with Long Covid, whether or not they were hospitalised (physical and mental health, employment, welfare, education). Delivery plans for meeting the needs of people living with Long Covid. Cross-government coordination and communication. Public information and awareness raising around Long Covid. Data collection, measurement and reporting on the number of adults and children with Long Covid to inform service planning and funding. Identifying research needs, commissioning research and ensuring this informs service delivery. Delivery of a communication and engagement strategy to all key stakeholders.
  20. Content Article
    This US-based article, published on Endocrine Web, includes testimonials from people who have experienced prolonged and debilitating symptoms of COVID-19. They are often referred to as people with 'long-COVID' or as 'long-haulers'.
  21. Content Article
    Independent SAGE is a group of scientists who are working together to provide independent scientific advice to the UK government and public on how to minimise deaths and support Britain’s recovery from the COVID-19 crisis.This report seeks to answer some of the more common questions that they are asked about Long COVID and sets out key recommendations.
  22. Content Article
    The Faculty of Occupational Medicine (FOM) has published guidance for healthcare professionals to assist them in facilitating the return to work of people who are unable to work due to Long-COVID. Follow the link below or download the guidance as a pdf.
  23. Content Article
    In this article, published in Guidelines in Practice, Dr Ashish Chaudhry and Dr Harsha Master offer nine top tips for recognising and managing Long COVID-19 symptoms in primary care. This article aims to help clinical colleagues learn about: lingering or new symptoms after an acute case of COVID-19, known as ‘Long COVID’ identifying patients with Long COVID managing or referring patients who need active intervention and investigation.
  24. Content Article
    This letter to the UK Prime Minister and published in the BMJ, was written on behalf of the Long COVID SOS Group. In it, the group call for Boris Johnson to make Long COVID a primary consideration in policy decision making for lifting restrictions. 
  25. Content Article
    Prof Danny Altmann of Imperial College London is a clinical immunologist who is passionate about understanding the immune system and how it impacts on human health. Here he is interviewed by Margaret O'Hara and Claire Hastie of Long COVID Support, to answer questions about the COVID vaccines and the implications for people with Long COVID.
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