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Patient Safety Learning

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  1. From the Campaign Against Painful Hysteroscopy Facebook Group:

    "According to NHS England's 'Getting It Right First Time' plan hysteroscopies will be done in Women's Health Hubs independent from hospitals. So what will that mean for women who'd prefer not to be awake during hysteroscopy? We need to ask NHS England."

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  2. Framework for Involving Patients in Patient Safety is on Future NHS and is a collection of very extensive resources not ‘formally published’ but include case studies on engagement, remuneration, Trust and ICB PSP Job descriptions/remuneration/PSP agreement, etc. To access, you need to join the Future NHS platform. It’s possible for PSPs to join although it’s a bit trickier to do without an NHS email address. With persistence, it can be done!

  3. Notes from the PSPN meeting on 9 October 2023

    The meeting started with a discussion about the level of awareness of PSIRF amongst patients, families and carers, what trusts are doing to raise awareness and when patients should be given information. The conversation then focused on how to communicate compassionately with patients and families and ensure their priorities and expectations are listened to.

    Members also discussed the variation in how Patient Safety Partners are being recruited and contracted by trusts. There was discussion about ensuring independence from the organisations PSPs are working with. There was then a wide-ranging conversation about the extent to which PSPs should be involved in PSIRF training, engaging with patients, contributing to investigations and having a strategic input. There was a general sense that it was helpful to hear from PSPs working in other trusts to understand this variation, share ways of working and raise concerns and issues.

    Download the full meeting notes:

    PSPN notes 9_10_23.docx

  4. NHS England » Patient Safety Incident Response Framework and supporting guidance

    Contains documents on:

    • Patient Safety Incident Response Framework
    • Engaging and involving patients, families and staff following a patient safety incident
    • Guide to responding proportionately to patient safety incidents
    • Oversight roles and responsibilities specification
    • Patient safety incident response standards
    • Patient Safety Incident Response Framework - Preparation guide
    • Patient safety incident response policy and plan templates
  5. Hi @Illumi123

    So sorry to hear of your horrific experience when you went to get an IUD fitted. No-one should have to experience this type of pain. Although many women have only mild discomfort when they have an IUD, as you can read from this thread, many like yourself have a much worse experience.

    If possible, please do speak to a trusted friend or adult about you concerns and experience. We would also encourage you to go and see a healthcare professional, potentially with a friend or trusted adult for support, to discuss your concerns and the pain relief options that are available to you. Having more information may help you feel in a stronger position when the time comes to have your IUD removed. Also, if possible through school or the community, it may be helpful to speak to a counsellor about how you may be able to manage your fears in relation to this if this is something you would feel comfortable doing.

    Please continue following this thread as there may be a healthcare professional or patient who has gone through something similar who could advise you further on the options available to you in the US.

  6. I'm sorry to hear that @Blodwen

    There should be procedures in place at the private hospital to raise concerns directly with them as a complaint. 

    However, if you have tried that and got nowhere, I would advise you to take a look at the AvMA website which provide clear and straightforward information on the steps you can take and guide you through making a complaint: 

    AvMA - Complaints about NHS or private healthcare

    Also, PHIN has information on making a complaint as a private patient:

    PHIN - Making a complaint as a private patient

    I hope that helps. 

  7. @Anne1010 I'm so sorry to hear that your last procedure was a painful experience and can understand your fears for the hysteroscopy. If you take a look at the comment posted in this thread by @Katharine Tylko on the 6 August (a few comments up) it gives the guidance from the RCOG on hysteroscopy procedures. It also highlights the facebook group -  Campaign Against Painful Hysteroscopy - which might be helpful to you and offer support and advice.

  8. A new blog, published on the hub, tells the story of Jenny who passed away from pulmonary embolism, having been misdiagnosed.

    Her son Tim is campaigning for improvements in pulmonary embolism awareness and care to reduce the risks of misdiagnosis. 

    Have you, or someone you know, been affected by a pulmonary embolism? 

    Was there a misdiagnosis? 

    Please share your experiences, and thoughts on Tim's blog, in the comments below. 

    You'll need to be a hub member to comment below, it's quick and easy to do. You can sign up here.

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