Summary
A group of patients and families with experience of end-of-life care worked with researchers from the Nuffield Trust to review findings from its research investigating the effect of the pandemic on people who were receiving end-of-life care at home. This web page summarises the research findings from the perspective of patients and family.
Content
Key findings
- Issues relating to medication near the end of life were seen as the biggest roadblock to a good death.
- Patients and their families faced difficulties getting the medication they needed.
- The quality of contact with health services is more important than the quantity.
- For people with Alzheimer's and dementia, informal carers play a particularly vital role.
- People living in the most deprived areas received fewer services during the pandemic than those in the least deprived areas.
Deaths at home during Covid-19: A patient and family perspective on new Nuffield Trust research (19 April 2023)
https://www.nuffieldtrust.org.uk/research/deaths-at-home-during-covid-19-a-patient-and-family-perspective-on-new-nuffield-trust-research
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