Jump to content
  • Content Count

    1
  • Joined

  • Last visited

LucyAlexandria

Members

Community Reputation

4 Novice

1 Follower

About LucyAlexandria

  • Rank
    Starter

Profile Information

  • First name
    Lucy
  • Last name
    Watts
  • Country
    United Kingdom

About me

  • About me
    I'm a patient with a life-shortening condition who works closely with the NHS to improve services, to make services more patient-focussed, improve patient experience, encourage and support more patient involvement/coproduction within the NHS, to improve access to palliative care and to ensure thorough advance care planning, and patient safety is an important part of the work.

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. Community Post
    It would be so useful if advance care planning documents including DNACPR and ReSPECT were coproduced with patients and families. I understand the need for clear forms, easy to read in a hurried situation, and that are concise and to the point, but I do feel coproducing future documents with patients like myself who have a life-limiting condition and who have had these conversations and used other versions of ACP documents, and current and former carers with this lived experience, would enable far better - more representative - documents to be created that make sense to patients and families and not trying to fit us into a form but designing a form that allows everyone to be accommodated. I'm not saying a new design for everyone -- but designing them around what makes sense to the patient cohort and carers/families, who all understand the need for ACP, have personal lived experience and want to give back in whatever way they can.
×