It would be so useful if advance care planning documents including DNACPR and ReSPECT were coproduced with patients and families. I understand the need for clear forms, easy to read in a hurried situation, and that are concise and to the point, but I do feel coproducing future documents with patients like myself who have a life-limiting condition and who have had these conversations and used other versions of ACP documents, and current and former carers with this lived experience, would enable far better - more representative - documents to be created that make sense to patients and families and not trying to fit us into a form but designing a form that allows everyone to be accommodated. I'm not saying a new design for everyone -- but designing them around what makes sense to the patient cohort and carers/families, who all understand the need for ACP, have personal lived experience and want to give back in whatever way they can.
