Patient engagement in a paediatric difficult asthma clinic (November 2018)

Summary

Patient engagement is a key component of quality improvement in health. Patient activation is defined as the patient's willingness to manage their health based on understanding their role in the care process and having the knowledge and skills to do so. For children parents have this role.

The Parent Patient Activation Measure (Parent-PAM) is adapted from Patient Activation Measure(PAM), a 13-point questionnaire designed to measure healthcare activation. PAM scores are stratified into "levels of activation": Level 1-does not believe the caregiver role is important (score ≤47.0) through to Level 4-takes action, may have difficulty maintaining behaviours (score ≥71).

This study, published in the European Respiratory Journal, aimed to evaluate caregiver activation using Parent-PAM in a paediatric difficult asthma(DA)clinic.