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How is the coronavirus outbreak impacting on other areas of your care or treatment? Share your #safetystories

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747670817_covid-hub-image-white-text(1).jpg.15dc84c927346c239683b7acdbf6f509.jpgAre you a patient with an issue not related to the coronavirus, and yet facing new challenges because of it?

Understandably the healthcare system is currently focusing its attention on the deadly effects of the coronavirus, so the need to pay attention to patient safety is now more important than ever. We’re asking for patients, carers, family members and friends to share their stories, highlight weaknesses or safety issues that need to be addressed and share solutions that are working. We’re looking for people to share with us:

  • What have you noticed that has been different since the crisis started? (e.g., outpatient appointments, collection of medication, GP appointments, cancellation of operations).
  • Whether you have had an elective intervention or appointment postponed? (Do you know the warning signs to call for help? Is there a hotline or urgent clinic for you to contact?).
  • Has anything improved since the crisis? (e.g., has the use of digital/virtual interventions (accessing a GP) had a positive effect).

Read a summary of this initiative here.

If you are a member of the hub, just reply to this topic below. If you're not already a member of the hub, it's quick and free to join. Register here.

We will be identifying themes and reporting to healthcare leaders with your insights. We want to help close the gaps that might emerge as everyone focuses on the pandemic.

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A member of the hub has just shared the nightmare she is currently living through with her 25-year-old son who has significant cerebral palsy due to kernicterus and is speech, hearing and motor impaired but is isolated with no help.

What more should be done? Do you have a similar story to share? How can we protect the most vulnerable during this pandemic? Add your comments below.

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Adele Doherty, Head of Dementia Voice at Alzheimer's Society, has written a blog highlighting the difficulties and fears for dementia patients and their families and carers during the coronavirus pandemic.


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