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rich squince

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Everything posted by rich squince

  1. Content Article Comment
    Excellent. I would add others: epistemic exclusion( 'we are experts ');Also where trauma means criticism of whole system it cannot be accepted (read https://blackwells.co.uk/bookshop/product/9781541602953?gC=5a105e8b&gclid=CjwKCAjwq4imBhBQEiwA9Nx1Bm3D3359eYA8MqVfgsgoh5JPPRBzq60mOKmcKZqgAlm_I8nuyQ0cexoCmNkQAvD_BwE ) also: interest ( professional, system, financial, personal, political, historical) meaning challenge is not possible because of implications. also 'othering'- patholigising , blaming, individualising. All linked. Solution: Patient inclusion, leadership, empowerment, centering. No one dares do this!
  2. Content Article Comment
    HSIB Reccs made to NHSE and actions to ICBs but the latter do not have to respond to action suggestions. Who will chase up their local ICBs? The family should!
  3. Content Article Comment
    Damning on what not being done. Only solution is patient centred harm reporting and investigation and patient leadership at governance, culture and implementation level. All other internal system fixes will not do. For example
  4. Content Article
    This constructive commentary reflects on two recent related publications, the Healthcare Safety Investigation Branch (HSIB) report, Variations in the delivery of palliative care services to adults, and an article from Sarcoma UK, Family insights from Dermot’s experience of sarcoma care. Drawing from these publications, Richard, brother-in-law of Dermot, gives a family perspective, calling for a more open discussion around how we can improve palliative care and sarcoma services, and why we must listen and act upon family and patient experience and insight.
  5. Content Article Comment
    A patient voice directly and indirectly expressed through a HSIB national report https://sarcoma.org.uk/news/sarcoma-uk-supports-hsib-recommendations-on-variable-and-inequitable-palliative-care-in-england/
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