This case story highlights the need for a consistent emergency response to convulsions in children, looking specifically at sudden unexpected death in epilepsy. NHS Resolution case stories are based on real events. They are sharing the experience of those involved to help prevent a similar occurrence happening to patients and staff.
Key learning points:
- There are at least three epilepsy-related deaths a day in the UK. Sudden unexpected death in epilepsy (SUDEP) is less common in young children than in adults, but can still happen.
- All children suffering a first convulsion, whatever the suspected trigger, must be conveyed to A&E; even if the convulsions have stopped by the time the ambulance crew arrive. This is in case the convulsions signify a serious underlying condition requiring treatment.