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  • Top picks: 5 key resources about patient safety for people with dementia

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    At Patient Safety Learning we believe that sharing insights and learning is vital to improving outcomes and reducing harm. That's why we created the hub; providing a space for people to come together and share their experiences, resources and good practice examples. 

    Dementia is an umbrella term for a number of diseases that affect the brain, with Alzheimer’s disease its most common cause. To coincide with Dementia Action Week, we have picked five resources and reflections about keeping people with dementia safe in health and care settings, and when considering medication choices.


    1 Alzheimer's Society: 'This is me' leaflet

    This simple leaflet was developed by the Alzheimer's Society for anyone living with dementia, or experiencing delirium or other communication difficulties. It provides a central place where those closest to the person can fill in key information about them, such as their preferred name, cultural background, routines and likes and dislikes. The leaflet can then be shown to health and social care professionals in new and unknown settings to help them better understand the person and deliver care that is tailored to their individual needs.

    2 Keeping patients with dementia safe: an interview with Alison Keizer and Fran Hamilton

    When people with dementia enter a new healthcare setting, the environment may be confusing and difficult to navigate. They may be unable to use their usual coping strategies and have difficulty communicating their needs and concerns to staff. This can present a wide range of risks to their safety while accessing care.

    In this interview, Alison Keizer, trust-wide Dementia Lead, and Fran Hamilton, Occupational Therapist and Deputy Dementia Lead at Sussex Community NHS Foundation Trust, describe the patient safety issues affecting patients with dementia and suggest how they can be supported to reduce these risks.

    3 Healthcare Improvement Scotland: Dementia in Hospitals Improvement Toolkit

    This toolkit has been developed by Healthcare Improvement Scotland to help inpatient and residential settings that support people with dementia to improve the quality of their care. It is divided into three sections:

    1. Getting started, which looks at the steps needed to manage an improvement project
    2. Using people’s experience to develop improvement priorities, which looks at methods that can be used to collect the experiences of people with dementia, their carers and staff.
    3. Improvement areas, which shares work and interventions by improvement teams from across Scotland.

    4 Alzheimer's Society: Tips for carers - questions to ask the doctor about antipsychotics

    Antipsychotic drugs may be prescribed for people with dementia who develop symptoms such as aggression and psychosis. This webpage from the Alzheimer's Society provides information on the prescription of antipsychotic medications for people living with dementia. It describes their potential side effects and includes a list of helpful questions that carers should ask healthcare professionals before the person they care for is prescribed antipsychotic medication.

    5 Blog - Inappropriate prescribing during a pandemic: dementia and antipsychotics

    This anonymous blog written for the hub describes the recent experience of a patient with young-onset dementia being prematurely prescribed antipsychotics while living at a care home. 

    Written by a family member, the blog describes the family’s concern about the medication being prescribed when there were obvious non-drug based alternatives to pursue, including 1:1 support and further investigations. They also express concern that family members are increasingly unable to have a say in their loved one’s care and treatment. The writer describes how the personality of their loved one has changed dramatically, for the worse, since being on antipsychotics, saying, “He became a shell of who he was in a very short amount of time.”

    Do you have a resource or story to share about dementia or a related condition? We’d love to hear about it - leave a comment below or join the hub to share your own post.

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