Patient involvement in the development of patient-reported outcome measures: The developers’ perspective (September 2017)

Summary

Patient-reported outcome measures (PROMs) are increasingly used in health care. To capture the patient’s perspective, patient involvement in PROM development is needed.

This study, published in BMC Health Services Research, aimed to investigate why PROM developers do or do not involve patients, how patients can be successfully involved and what the negative aspects and benefits of patient involvement are.