I had two Pfizer vaccinations. Maybe because I live close to a large hospital and have seen a neurologist who is now leading a Long Covid clinic, I have never had my reaction questioned. In many ways initially I think I was treated as an interesting curiosity.
However that doesn’t mean I’ve had any useful treatment. Sadly the NHS feels too siloed, slow to react to emerging learnings and generally subject to political and financial pressure that means accepting vaccine injuries as fact is not something consultants, let alone GPs, want to do.
I worked out I had MCAS in summer ‘21 but I was first laughed at and then ignored when I suggested this. It’s too niche apparently. I’ve paid privately to be diagnosed, bought private prescriptions. The same for PoTS. Yet those who diagnosed me also work for the NHS yet these aren’t accepted and put on my records, and my GP won’t take on my prescriptions.
I understood initially why there was a lack of knowledge as the vaccines were new, but it’s been nearly three years and no doctor I see now i surprised. But where is the support? Who is researching us? That’s even more worrying than the lack of care or foresight.