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Natalie Sullivan

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About Natalie Sullivan

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    Starter

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  • First name
    Natalie
  • Last name
    Sullivan
  • Country
    United Kingdom

About me

  • About me
    Patient experiences
  • Organisation
    Patient
  • Role
    Patient advocacy

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  1. Community Post
    Hi Helen. Thanks for your response. I had actually read that and completely forgotten that I had. Thanks for reminding me ! I'm also working on trying to better navigate the hub. With regard to point 3 below, I presume that the service offered will be determined by individual CCG's. So for example, in some areas, the service is being provided by the pulmonary rehab team. Whilst very welcome, I would presume that a respiratory nurse will not assess for all of the following or is the plan that they will be trained to do so ? 3. Designated Long Covid clinics, as announced today. This will involve each part of the country designating expert one-stop services in line with an agreed national specification. Post-Covid services will provide joined up care for physical and mental health, with patients having access to: – A physical assessment, which will include diagnostic testing, to identify any potential chronic health issues. – A cognitive assessment, to assess any potential memory, attention, and concentration problems. – A psychological assessment, to see if someone is suffering potentially from depression, anxiety, PTSD, or another mental health condition. Patients could also then be referred from designated clinics into specialist lung disease services, sleep clinics, cardiac services, rehabilitation services, or signposted into IAPT and other mental health services
  2. Community Post
    Hi. Has any progress been made with regards to locating clinics? Has Simon Stevens responded to the letter from PSL? It seems to be the case that same CCG's are choosing to set up clinics whereas some are referring patients to existing rehabilitation programs, usually within pulmonary/respiratory services. I expect the guidance criteria given to GP's as to which patients meet the local threshold for eligibility will also vary from one CCG to the next. This will be due to individual CCG's having the say as to what services are commissioned regionally, but is there any national guidelines as to what services should be offered and how patients are referred?
  3. Content Article Comment
    It would be interesting to compare whether less people go on to develop long covid in the areas that have piloted virtual wards/safety netting compared with regions that have not, Although it may be the case that people that are predisposed to long covid fall into a different subset to people who are likely to be admitted to hospital. However as a number of patients who sheltered at home during the first lockdown, experienced breathlessness/myalgia/chills/fatigue but were not monitored it, it seems to be a question worth asking.
  4. Community Post
    I was advised by my GP practice on the 15th October that I have been referred to a Post Covid Rehab pathway. Noone has been in touch yet, but when they do, I'll update you as to what that means...
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