COVID-19 patient experience survey #2: call for participants

Summary

Patient Led Research for COVID-19 invite you to participate in this research study if you have previously experienced or you are currently experiencing symptoms consistent with COVID-19 as a result of suspected or confirmed SARS-CoV-2 infection.

The aim of this research study, sponsored by University College London (UCL), is to better describe and understand the patient experience and recovery of those with confirmed or suspected COVID-19, with a specific emphasis on the Long COVID experience. The focus of this study includes participants’ backgrounds, testing, symptoms, and psychological wellbeing. A secondary aim of this study is to publish patient-driven data in order to advocate for the Long COVID population within the medical community.

Patient Led Research for COVID-19 are a self-organised group of COVID-19 long-haul patients working on patient-led research around the COVID experience and prolonged recoveries. They are all researchers in relevant fields – participatory design, neuroscience, public policy, data collection and analysis, human-centered design, health activism – in addition to having intimate knowledge of COVID-19.