Policy paper: UK Rare Diseases Framework (DHSC, 9 January 2021)

Summary

A framework from the Department of Health and Social Care (DHSC) setting out a coherent, national vision on how the UK will improve the lives of those living with rare diseases. 

The framework outlines 4 key national priorities:

• helping patients get a final diagnosis faster
• increasing awareness among healthcare professionals
• better co-ordination of care
• improving access to specialist care, treatment and drugs.