The Patients Included charters were created by Lucien Engelen in 2010. Fed up of hearing people talk about 'what the patient wants' at medical conferences where no patients were present, he decided he would no longer speak at or attend conferences where patients were not speaking, offered bursaries to attend or part of the organising committee.
The charters provide organisations with a way to demonstrate their commitment to incorporating the experience and insight of patients into their organisations by ensuring that they are neither excluded nor exploited. The charters that have been published so far include:
- Conferences (v.1.0 May 2015)
- Journals (v.1.0 April 2016)
- Patient information resources (v.1.0 December 2016)
- Ethics (v.1.0 April 2018)
The Patients Included logo can also be used by conferences who adopt the conference charter.