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mo_hafeez

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Profile Information

  • First name
    mo
  • Last name
    hafeez
  • Country
    United Kingdom

About me

  • About me
    hello I have a 27-year-old son who is disabled and between me and my wife and 1 carer we look after him 24 / 7 . he is trachy, oxygen dependent, has lung and heart issues, has renal failure, has bones, blood, and growth issues .
  • Organisation
    home private
  • Role
    parent carer
  1. Community Post
    Hello ! We have a 27-year-old son who has complex needs and has a careful medication routine every 2 hours- which has now been running for the last 16 years or so. he is on heart, lungs, and diuretics to remove excess fluid from his body, so it can become a life-threatening situ very quickly if meds are not monitored very closely by 3 checks or even 4 checks per medication. we use more than one pharmacy as the meds he has are specials and cannot be sourced from the shelf and need to be made for him. we suffer from his named brands running out or being out of stock, even if it could be supplier has moved and the pharmacy is looking to recruit another. so nothing straightforward, we are always chasing different pharmacies, online pharmacies are the worst because they send out the nearest which could be completely wrong as he is 27 years old but in a body of 8 /9 years old - growth development. hope this helps as I've been brief. mo .
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