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Dianne

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8 Novice

Profile Information

  • First name
    Dianne
  • Last name
    Patey
  • Country
    United Kingdom

About me

  • About me
    Interested in prevention of psychological harm and unnecessary pain caused by medical procedures carried out without adequate pain relief on conscious patients. Particularly relating to outpatient hysteroscopy.
  • Organisation
    Campaign Against Painful Hysteroscopy
  • Role
    Supporter
  1. Community Post
    THE AFTER EFFECTS (Part 2) SUFFERING AND FINANCIAL LOSS OVER 3 YEARS I am including this information in the hope that it will reinforce how much suffering and loss can be caused by subjecting women to such excruciatingly painful practices, during gynaecological procedures. The woman that leaves that room is not the same woman that went in. The patient leaflet said I would be able to return to work the next day. I went to work but my sister had to collect me at lunch time and take me home. I had some internal pain and felt pulled about. Mentally, I could not function. I was still in shock and crying. My sister attempted to comfort me and I said "how can they do that to a human being?" I had the Bank Holiday to try and recover. I am not the sort of person that takes time off sick. I was mentally wrecked. I could not cope with what had happened to me. I felt as if I had been attacked. It kept going over and over in mind. On the 5th morning after the procedure I tried to get ready for work. I got into the shower and all sense of time seemed to disappear. It is possible that I dissociated again. I remember leaning against the wall in the shower thinking I just can't, I just can't. Something was seriously wrong with my mind. I kept trying to get ready for work but had a massive panic attack. It was very scary. I had never experienced one before. I had to see my GP. She prescribed Propanalol to calm me down. I was given the number for NHS counselling but the wait was around 6 weeks. A friend recommended a private therapist and I had my first appointment 3 days later. I eventually went back to work with the help of therapy. I was however, signed off sick for 8 weeks. I remained on medication for 4 months. I started to feel better and thought I had moved on. Things were fairly good initially, but gradually the intrusive thoughts returned. I was suffering from PTSD/trauma. I did not expect to be lying in bed 2 years later, unable to sleep, crying, reliving the trauma and holding my body rigid. I attended 6 counselling sessions at my GP surgery. These were helpful but did not solve the problem. I learned about EMDR therapy to treat PTSD. There was a long wait so I sourced it privately. I could not carry on like that. I couldn't concentrate on normal life. I wasted so many days. A lot of time was spent crying. I have had a lot of trauma counselling over the last 8 months which should finish soon. I cannot erase the memory but I am trying learn to live with it. My financial losses (unpaid time off work, therapy costs, travelling expenses etc) amount to several thousands of pounds which I will not get back. I will not be able to look after my health properly in the future. I have never missed a cervical smear in my whole life but I will never be able to have another one. I couldn't cope with the fear of any future procedures. This is a big disadvantage and a worry because my Mother died from ovarian cancer. I am not a wimp. I have had 2 children, surgery and many other biopsies. Apart from a thyroid biopsy all other biopsies were done with appropriate pain relief. My husband has to come with me on medical appointments now as each one raises my anxiety levels. I will never forget the terror and pain of that hysteroscopy. Mental health is as important as physical health. It's shameful that mental well being is ignored. I believe that operating within the womb without adequate pain relief should not be done. I know now that I am not that unusual to have experienced out patient hysteroscopy as traumatically as I did. It happens to women every day. Knowing that I am not alone in this has probably saved my sanity and is helping my recovery. I do however remain in a state of disbelief that anyone can condone this practice.
  2. Community Post
    HYSTEROSCOPY, BIOPSY & POLYP REMOVAL (Part 1) First of all I was taken into a room where the consultant quickly looked at my file and I was asked to sign the consent form. Very little discussion took place. I was to have a hysteroscopy to check for cancer of the womb. A biopsy was mentioned and also the fact that I had a polyp. I knew about the polyp because it had been found in 2010 during a previous hysteroscopy. The consultant at that time saw no reason to remove it and I believed that it would be left again as I had no symptoms. No options were discussed. I felt scared and vulnerable. I was taken into the treatment room and I sat down and started to weep. I was trying to keep calm and be brave. One of the nurses asked me what was wrong. I said "I have had womb biopsies done before and I know how painful the procedure will be" She replied "Oh then there's not much we can say then". I was shocked at her reply. It was confirmation to me that everyone knew what was about to happen! The consultant observed that I was crying and asked if I would like to come back another day. I couldn't understand the logic of that because this procedure was going to hurt, without a doubt, on whatever day it was done. I had taken 3 types of pain relief instead of the suggested paracetamol. I took 2 paracetamol, 2 ibuprofen and 2 codeine (from a friends prescription) so I could give myself the best chance of coping. So, the procedure got under way. I felt the scope pass up through my cervix. It was uncomfortable. The consultant was looking at what she was doing, did not have any conversation with me and the nurses were across the room. I was managing to keep myself calm at this point. Suddenly, without warning, I felt pain. I screamed. I was embarrassed and upset. I guessed that a biopsy had been attempted. The consultant got up and walked to the other side of the room. No acknowledgement of my pain, no explanation. Her back was towards me and she was talking to a nurse. I had no idea what was happening. I felt excluded, vulnerable and I wondered what she was saying about me. Eventually she came back and said "I don't think the sample will be sufficient" She sat down to start again but immediately got up and started to walk away. I looked at her enquiringly. She said "you've gone into spasm". I felt like it was an inconvenience to her. She went back over to the nurses. When the consultant started again I expected more information and dialogue but there wasn't any. I thought she may enquire if I was ok to try for another biopsy but instead, without telling me, she decided to start the polyp removal. The pain was getting worse. I asked if I could have some pain relief. She replied "I can give you an injection into your cervix". I asked if that would stop the pain in the womb where she was cutting". She said "no". I declined as there was no point in having more pain to deal with when it would have no effect. I had lost all control over what was happening to me. I did not know what to expect next. By now I was reaching the top of my pain threshold. I was becoming very distressed. There was still no discussion, no one asked if I was ok to continue and the nurses were not near me or giving me any support. I could not continue enduring the horror. I remember thinking I have got to physically move away from the pain source but then I thought, but I can't because the instruments might puncture my insides. What happened next was very strange. I experienced staring at the consultant but her face looked cloudy. The pain stopped apart from an acceptable but odd and less intense pain across my pelvic region. Then I felt totally relaxed and the fear had gone. I had dissociated. For a few blissful seconds I was ok. Unfortunately, the nurses came running over and one said my name. They took my hands. I panicked because I thought that they were going to hold me down. I submitted. I was instructed to count and breathe. The pain was terrible. I dare not stop the breathing. I was taking as much air in as I could and consciously creating pain in my chest to try and block some of the pain from my pelvic area. Still no one was talking to me. (Apart from the breathing instructions) I had no idea how long I would be enduring the pain. Finally the consultant said "I'm finished". At this point, I was really in shock and was shaking uncontrollably. The consultant came over and tried to show me the polyp. She seemed excited that it had a long stalk. I looked at her in disbelief. She said "Oh I don't suppose you want to see that, do you". When someone has just been through a terrifying and painful ordeal, why on earth would you show them the flesh that you had just cut out of their body. I was horrified. The consultant left the room and I did not see her again. I was so scared I dare not sit up. The nurses were not paying much attention to me but then one noticed that my private parts were still on show. She said "cover yourself up". I did not feel human any more. I did not respond so she came and covered me. I was then expected to get up quickly, get dressed and get out ready for the next patient. My legs were so shaky I feared standing up in case I collapsed. I managed to get dressed. I could not believe what had happened to me. They fetched my husband to take me home. They told him that I had worked myself up into a state and he felt that this indicated it was caused by my anxiety and weakness. I could not go to the car park straight away. I felt dreadful. I was fearing walking back through the waiting room. We were ushered into a room across the corridor where my husband and I sat for about half an hour before I could risk walking to the car. This was not a room that was designed or fit for patients to recover. I felt as if I had suffered a violent sexual attack. I was totally stunned. This post is quite long so my next post (Part 2) will give an account of what happened next.
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