ME: ‘I spend 20 hours a day lying down. I have four upright hours in the day’ (11 October 2022)

Summary

People with myalgic encephalomyelitis, or ME, have long felt disregarded by some medical professionals who believed their pain and exhaustion to be a psychological disorder. More recently, patient activism, combined with new data on the underlying biology of the illness, has resulted in changes in treatment guidelines and a renewed focus on ME as a biologically grounded post-viral disease. This article in the Irish Times highlights patients' experiences and the challenges they face.