Summary
Coloplast UK is a manufacturer of ostomy, continence, urology and wound care products. They commissioned the Patients Association to conduct a project to explore and recommend ways to better engage patients and carers in policymaking and the assessment of medical technologies for intimate healthcare. The Patients Association held a roundtable meeting and case study interviews with patients with intimate healthcare conditions and other stakeholders. They also conducted a survey of third-sector organisations who represent those patients and carried out desk-based research.
This report summarises the findings of the project, which include that the existing mechanisms of engagement typically adopt a “patient involvement” approach where patients and carers do not have equal status as partners in the decision-making process. The report makes a number of recommendations to improve the way in which patients and their carers are engaged.
Content
Recommendations
- Improve the engagement process.
- Improve the recruitment process.
- Build the evidence-base to identify what matters to patients when assessing devices, effective patient engagement strategies and how patient and carer input influences decision-making.
- Enhance the integration of metrics that are important to patients into the assessment process.
- Support a care continuum that connects access to quality medical devices and products to high-quality clinical pathways and services.
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