The Health Foundation - What have we learnt from involving and engaging with patients and the public in our health data science projects? (5 October 2022)

Summary

In this Health Foundation blog, senior data analyst Anne Alarilla looks at what the organisation has learned from involving patients and the public in its analytical projects. Patient and public involvement and engagement (PPIE) in research allows patients and the public to be involved in decisions about what an organisation does and how it interprets and communicates analysis. It means that research is carried out in line with the ethical principle of ‘nothing about us, without us’.

In the blog, Anne outlines four key lessons:

1. If you’re new to this, work with experienced PPIE practitioners
2. Incorporate lived experiences when developing and refining analysis plans
3. Ensure the people you engage with understand what you’ll do with the findings
4. Make the findings relevant to patients and the public