Presentation from Linda Kenward: Engaging patients and service users for safety (October 2019)

Simple but powerful points 

Which organisations have engaged with this ?

I know one patient leader who leads the way, but not primarily in patient safety : David Gilbert 

I know one safety expert who respects patient expertise.  I will not name her. I urge her to speak out more on this!

When patient safety is personal. For both sides 

My experience is patients are kept at bay,  all extra work done to protect services. Especially in how the story is told! The starting point. And so from harmed patient perspective where bias,  being ignored, dis respected,  powerless ..all starts....and so never ends. Never resolved.  And so very little learning emerges.  It takes exceptional patients like JamesTitcombe to get their story heard.told and re told.  Exceptions prove the rule.  So wrong. Unhealthy.  Excluding.  Uneducating . And literally dangerous for patients, and also the vital alliance they should be building with health care staff and systems who truly want to improve. Dangerous. Deadly. And Wrong.