This guide developed by the AHSN Network, the University of Plymouth and the pharma company Boehringer Ingelheim sets out four key principles to involve and engage patients and the public in digital health innovation:
- Engage – map out your strategy and motivations, identify a representative cohort and develop inclusive engagement practices.
- Acknowledge, value & support – show you value patients’ and the public’s contribution to ongoing and transparent communication, any necessary training and potential financial reimbursement.
- Communicate – tailored external communication and open feedback channels are crucial to maintaining engagement and accountability by all parties.
- Trust and transparency – In order to gain patients’ trust, organisations conducting PPIE should be trustworthy and transparent about potential risks.
How to involve and engage patients in digital health tech innovation – An evidence based guide (14 June 2022) https://www.boehringer-ingelheim.co.uk/about-us/our-company-uk/Principles%20of%20Patient%20and%20Public%20Involvement%20and%20Engagement%20(PPIE)
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