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COVID-19 long-haulers: are they receiving the right support?

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A significant number of people (who may or may not have been acutely unwell with COVID-19) are experiencing a prolonged and debilitating recovery at home. In this interview, a patient called Barbara, speaks of her personal experience of safe and unsafe care and highlights the dangers of ‘catch-all’ diagnoses. 

The interview highlights the important question..."are the COVID-19 'long-haulers' receiving the right support and care?"

Please join the conversation by sharing your thoughts and experiences below. If you are not already a member, you'll need to sign up first here. It's quick and easy to do. 

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Guest Jack b
Guest Jack b

Online services are not helpful need to be thoroughly assessed and monitored and quickly as for many it’s almost 7 months and scarring is happening in vital organs.Very careful on the graded exercise and cbt -money spent on  the assessments  and monitoring and quickly 

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Guest Gerdayoga
Guest Gerdayoga

I’m 6 months plus now struggling with this illness. The only thing that has helped me throughout has been iyengar yoga. The IYA UK have produced a covid suggested recovery program (On their website)which should definitely be looked at as is a wealth of expertise from senior teachers (some who have also struggled with covid19)Breathing has been a huge help To me throughout this and again all Iyengar teachers Have a wealth of knowledge about different methods and techniques in breath control. If we can bring yoga into the program it gives the patient the empathy and kindness that has been so lacking for some throughout this and also will give useful techniques to support the body and breath with this illness . 

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Thank you 'Gerdayoga' for your post and I'm sorry to hear you're struggling with this.

Here's the link to the Iyengar Yoga covid recovery programme you mention: https://iyengaryoga.org.uk/covid-19-a-suggested-recovery-programme/ so others can take a look.

If you would like to continue the discussion please do post again or you can email us directly at content@pslhub.org. We are collating all feedback and can maintain your anonymity if you prefer.

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Guest Fifth Sense
Guest Fifth Sense

Persistent smell and taste loss following Covid-19 can occur in about 10% of those who experience the symptoms when actively infected by Covid-19. These symptoms can have a significant quality of life impact: https://doi.org/10.1111/coa.13484. For support - go to Fifth Sense

 

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Anonymous
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