The 11th annual Kidney Cancer UK patient survey: 2024 report (2 February 2025)

Summary

This report finds critical gaps in NHS support for kidney cancer patients, with the majority not receiving GP follow-ups or recommended cancer care reviews. The report reveals that over half (55%) of kidney cancer patients receive no GP or practice nurse follow-up after diagnosis, leaving them without crucial opportunities to address concerns, understand treatment options, or gain reassurance.

Content

Findings

• Two-fifths of kidney cancer patients were told about their diagnosis in a way that was not ‘appropriate’.
• Over half of UK kidney cancer patients reported no follow-up contact from their GP or practice nurse after initial diagnosis.
• Nearly two-thirds did not receive a GP Cancer Care Review 12 months post-diagnosis – going against standards set out by NHS England.
• This concerning lack of communication at crucial stages throughout the pathway means kidney cancer patients are unable to make informed decisions about their ongoing care – heightening feelings of fear and anxiety during an already distressing time.