Delays to establishing NHS care for very severe ME (a briefing paper by #ThereForMe, March 2026)

Summary

It is estimated that around 1 in 4 people with Myalgic Encephalomyelitis (ME) are severely or very severely affected.

In this briefing paper (attached), campaign group #ThereForMe explain that due to a lack of specialist care, patients and their carers are facing immense challenges. The briefing outlines several patient safety risks, the Government response, recent changes, and a set of clear recommendations for safer care.