Creatively improving end of life care for people now and in the future: Seth's legacy
Event created by Patient-Safety-Learning
In 2014 Seth Goodburn died from pancreatic cancer 33 short and heart breaking days after diagnosis. Seth's wanted to die at home however, the weight of systems and processes meant that he sadly died in an acute hospital. After Seth died his wife Lesley shared their story via a play, a film and an educational resource called Seth's Story
Sharing the story has three aims to:
- improve and of life care.
- highlight the need for psychosocial support.
- raise awareness of pancreatic cancer signs and symptoms.
Ten years later, join us at this free conference to hear the impact of sharing Seth's Story, the improvements that have been made and future plans to help others share their experiences through creative art forms.
This interactive series of talks and discussions will cover:
- Hearing and seeing the person who has a terminal disease
- Role of creativity in understanding experience of care at end of life
- The power of sharing lived experiences through storytelling
- The role of the people who are important to the person receiving care and their role in care partnerships
- Understanding who and what is important to the person receiving care
- Can compassion be taught or is it an innate quality
- How to have compassionate kind and gentle conversations
- How can we support people to celebrate their life as life draws to an end
- How will the new integrated care systems help focus on palliative and end of life care
- What are the key challenges for the future of end of life care
The event is hybrid, virtual and also hosted at Marie Curie London, 1 Embassy Gardens, Nine Elms, Vauxhall, SW11 7BW, with a complimentary sandwich lunch.
More information is available on the event flyer
