Sajid Javid has revealed details of his young relative’s “brave battle” against myalgic encephalomyelitis, warning that patients with the condition are being “dismissed entirely” by doctors.
During a debate held in Westminster Hall on Wednesday, the former health secretary spoke of the distressing experience of his cousin’s “amazing” daughter who developed the debilitating illness seven years ago, aged 13.
ME is a complex neurological disorder that affects about 250,000 people in the UK and leads to symptoms including exhaustion and pain. Severe cases can be fatal, with patients bedridden and unable to eat or drink, and care held back by a lack of specialist NHS services.
Source: The Times, 2 May 2024
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