Families of people with complex medical needs are warning the NHS system that funds their care at home is struggling to provide sufficient support.
Despite recent significant increases in spending on Continuing Healthcare, experts say staff shortages and rising prices mean families are lacking help.
Some say at times they are so exhausted from providing care, they worry about the safety of their relatives.
The government says it has invested billions into health and social care.
The BBC followed 24-year-old Declan Spencer for 10 months, witnessing how the repeated breakdown of his care has left his mother having to provide it by herself, day and night.
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Source: BBC 7 August 2023