Learn: Rare diseaseshttps://www.pslhub.org/learn/patient-safety-in-health-and-care/conditions/rare-diseases/?d=1Learn: Rare diseasesenEquity for Rare: Delivering fair healthcare systems for people affected by rare conditions (24 February 2026)https://www.pslhub.org/learn/patient-safety-in-health-and-care/conditions/rare-diseases/equity-for-rare-delivering-fair-healthcare-systems-for-people-affected-by-rare-conditions-24-february-2026-r14442/14442Wed, 03 Jun 2026 11:02:00 +0000From diagnosis to system change: what rare disease is teaching us about safety, bias and AIhttps://www.pslhub.org/learn/patient-safety-in-health-and-care/conditions/rare-diseases/from-diagnosis-to-system-change-what-rare-disease-is-teaching-us-about-safety-bias-and-ai-r14254/

]]>14254Mon, 13 Apr 2026 07:08:02 +0000Top picks: Rare diseaseshttps://www.pslhub.org/learn/patient-safety-in-health-and-care/conditions/rare-diseases/top-picks-rare-diseases-r14094/

]]>14094Thu, 26 Feb 2026 08:06:00 +0000Rare care matters: The struggle to access diagnosis and care for rare autoimmune rheumatic disease patients (April 2025)https://www.pslhub.org/learn/patient-safety-in-health-and-care/conditions/rare-diseases/rare-care-matters-the-struggle-to-access-diagnosis-and-care-for-rare-autoimmune-rheumatic-disease-patients-april-2025-r13100/13100Tue, 29 Apr 2025 08:30:00 +0000England Rare Diseases Action Plan 2025 (DHSC, 28 February 2025)https://www.pslhub.org/learn/patient-safety-in-health-and-care/conditions/rare-diseases/england-rare-diseases-action-plan-2025-dhsc-28-february-2025-r12908/12908Tue, 18 Mar 2025 09:07:01 +0000Highlighting Loeys-Dietz syndrome and the need for awareness (June 2024)https://www.pslhub.org/learn/patient-safety-in-health-and-care/conditions/rare-diseases/highlighting-loeys-dietz-syndrome-and-the-need-for-awareness-june-2024-r11852/11852Mon, 29 Jul 2024 14:11:37 +0000England Rare Diseases Action Plan 2024 (DHSC, 29 February 2024)https://www.pslhub.org/learn/patient-safety-in-health-and-care/conditions/rare-diseases/england-rare-diseases-action-plan-2024-dhsc-29-february-2024-r11100/11100Tue, 05 Mar 2024 09:25:00 +0000GIRFT - Spinal surgery: National suspected cauda equina syndrome (CES) pathway (February 2023)https://www.pslhub.org/learn/patient-safety-in-health-and-care/conditions/rare-diseases/girft-spinal-surgery-national-suspected-cauda-equina-syndrome-ces-pathway-february-2023-r9019/9019Wed, 15 Mar 2023 11:36:00 +0000England Rare Diseases Action Plan 2023 (DHSC, 28 February 2023)https://www.pslhub.org/learn/patient-safety-in-health-and-care/conditions/rare-diseases/england-rare-diseases-action-plan-2023-dhsc-28-february-2023-r8889/8889Thu, 02 Mar 2023 11:20:00 +0000England Rare Diseases Action Plan 2022 (DHSC, 28 February 2022)https://www.pslhub.org/learn/patient-safety-in-health-and-care/conditions/rare-diseases/england-rare-diseases-action-plan-2022-dhsc-28-february-2022-r6243/6243Mon, 28 Feb 2022 11:04:00 +0000Policy paper: UK Rare Diseases Framework (DHSC, 9 January 2021)https://www.pslhub.org/learn/patient-safety-in-health-and-care/conditions/rare-diseases/policy-paper-uk-rare-diseases-framework-dhsc-9-january-2021-r8888/8888Tue, 02 Mar 2021 11:12:00 +0000OrphanAnesthesia: Patient Safety Cardhttps://www.pslhub.org/learn/patient-safety-in-health-and-care/conditions/rare-diseases/orphananesthesia-patient-safety-card-r4106/4106Fri, 26 Feb 2021 18:25:00 +0000Collaboration between patient organisations and a clinical research sponsor in a rare disease condition: learnings from a community advisory board and best practice for future collaborations (16 December 2020)https://www.pslhub.org/learn/patient-safety-in-health-and-care/conditions/rare-diseases/collaboration-between-patient-organisations-and-a-clinical-research-sponsor-in-a-rare-disease-condition-learnings-from-a-community-advisory-board-and-best-practice-for-future-collaborations-16-december-2020-r4104/4104Tue, 05 Jan 2021 18:07:00 +0000“No one would believe me”: A common feeling for people living with a rare disease (5 October 2021)https://www.pslhub.org/learn/patient-safety-in-health-and-care/conditions/rare-diseases/%E2%80%9Cno-one-would-believe-me%E2%80%9D-a-common-feeling-for-people-living-with-a-rare-disease-5-october-2021-r4099/4099Wed, 25 Nov 2020 16:18:00 +0000Long diagnosis, misdiagnosis, or no diagnosis – how rare diseases go under the radar (17 November 2020)https://www.pslhub.org/learn/patient-safety-in-health-and-care/conditions/rare-diseases/long-diagnosis-misdiagnosis-or-no-diagnosis-%E2%80%93-how-rare-diseases-go-under-the-radar-17-november-2020-r4098/4098Wed, 25 Nov 2020 16:11:00 +0000Illuminating the rare reality (28 February 2019)https://www.pslhub.org/learn/patient-safety-in-health-and-care/conditions/rare-diseases/illuminating-the-rare-reality-28-february-2019-r4100/4100Sun, 25 Oct 2020 17:34:00 +0000Gene therapy: Your questions answered (19 July 2018)https://www.pslhub.org/learn/patient-safety-in-health-and-care/conditions/rare-diseases/gene-therapy-your-questions-answered-19-july-2018-r4107/4107Thu, 27 Feb 2020 20:57:00 +0000Regulating rare disease: Safely facilitating access to orphan drugs (2018)https://www.pslhub.org/learn/patient-safety-in-health-and-care/conditions/rare-diseases/regulating-rare-disease-safely-facilitating-access-to-orphan-drugs-2018-r4105/4105Wed, 26 Feb 2020 18:18:00 +0000National Organization for Rare Disorders: Rare Disease Database for patients and familieshttps://www.pslhub.org/learn/patient-safety-in-health-and-care/conditions/rare-diseases/national-organization-for-rare-disorders-rare-disease-database-for-patients-and-families-r4101/4101Tue, 25 Feb 2020 18:10:00 +0000